Sunday, May 27, 2012

Migraine and Suicide

By Leeloo Saturday, August 16, 2008

For this post, I'm going to tackle a subject that I don't think we discuss much in the Migraine community.  Personally, I feel like I need to address it, if for nothing more than to explore the thought for my own benefit.

 

A few months ago, I admitted to my Migraine specialist that I felt suicidal when I am in the midst of a severe Migraine.  I panic.  When you are in that much pain, there isn't a whole lot of thinking going on, not on my end, anyway.  I've paced my halls in the early morning, just wanting to put my head through the walls.  Anything to make the pain stop.  With a logical, mostly pain-free mind I know that suicide isn't the answer.  I also know that I cannot be alone with myself when I am in that much pain, because I don't trust an irrational, storming brain.  We're really not in our "right" minds with Migraine attacking.

 

Many people have committed suicide over Migraine.  When you do not have the support or structure or knowledge to arm yourself with, attacks seem hopeless and never-ending.  You get caught in a vicious cycle of medicating, fatigue, and pain.  You may have others in your family who don't understand the limits that Migraine will push you to, so you end up feeling even more lost.  Stroke risks aside, Migraine CAN be a killer, but while some of us worry about stroke, many more are wondering just how they are going to make it through the next day with no one around to help them.  And yet, people keep brushing Migraine aside as an emotional, nervous affliction that can be easily fixed by drinking a daily mixture of vinegar or having your back adjusted regularly...Which makes no sense to me, but then, a lot of people don't stop to consider what makes sense.

 

Migraine sounds so easy, until you get into the meat of it all.  Until you've shared your home with someone who suffers on a daily basis, so many people will continue to misunderstand, or even ignore what is right under their nose.

 

Migraine is very difficult to deal with.  It leaves no mark on most of us after its wake, and we suffer unimagineably and invisibly.  Many of us succumb to depression in response to these events, as if Migraine weren't bad enough on its own.

 

I do take Zoloft for my depression.  It helps my anxiety more than it helps my depression, but I likely need an adjustment in the dosage.  It's not a crutch to take an anti-depressant when you know you need additional help.  It's nothing to be ashamed about to admit that Migraine may have you in a position lower than on your knees.  It takes a lot of courage to admit that you've got deeper problems, but by admitting them you realize that you're willing to take back your life even if you know it's going to take more effort and time than you think you can offer to yourself.

 

Migraine is sometimes more than just fuzzy feelings, bizarre visions, and headpain.  Migraine can take you places you don't want to go, even after an attack has concluded.  With chronic Migraines, sometimes depression is the next step in the disease process.  Support is very necessary for people such as ourselves.  Knowing yourself is imperative, and giving yourself whatever can give you the most positive impact during an attack is something you need to allow yourself to do. 

8/18/08 10:27am

I totally understand. I suffer from PTSD, fibromyalsia, and chronic migraines. You are exactly right in that as sufferers we need support. This disease is not something that is easily handled on your own. Two years ago I attempted suicide and thanks to the Lord above help found me. I won't say it was the migraines alone but the effects that the migraines and depression played on my life drove me to a very dark place. Now I am proud to report that I have an unwavering support system and have minimized the stressors that I had at that time. My migraines are much worse, but the depression that I once had only surfaces in extremely stressful periods. I wish I had advice for those out there dealing with this as I have, but the only thing I can say helped me was my Faith and family.

8/18/08 3:21pm

Leeloo, thank you for this sharepost!  I know it's a difficult topic, but it's certainly one that we migraine sufferers need to think about!

 

I know the desperate, panicked feeling you described!  My migraines often go on for many days, with extremely high pain and vomiting.  After a few days of that kind of suffering, I find myself completely terrified!  Rational thinking is completely impossible.  I just need the pain to stop!  When I reach that point, I usually need some outside help (ER or infusion at my doc's office) to find some sense of control again. 

 

I understand why some chronic pain sufferers become desperate. 

 

But we all have to hang on to the hope that we'll find a medication regimen that will make things more manageable.  We've got to find that hope...and hold on to it tightly!

 

jenny 

8/20/08 10:51pm

Leeloo,

Thank you for sharing this with us. It is so hard to deal with the depression that chronic migraines can lead to.  I,too, have felt the same way after several bad days in a row.  My husband bought a gun a few years ago for me because he was working out of town a lot. He took me to the gun range, and I took lessons to learn how to shoot it and become more comfortable with it.  Well, I got really depressed and crazy, I guees, about 6 months ago due to severe pain and I told him to get it out of the house.  When I am in my right mind, like you said, I would never hurt myself. But in the throes of severe pain and desperation, I am not always so sure. So I had him take it out just to be safe and sure. I told him recently he could bring it back if he wanted to, but he won't now.

 

I am lucky to have him, though, he is my best support system. He has to lift me up so much, and I feel so guilty about it so much of the time, as I am sure most of us do, and that only adds to the depression. I agree with you that there is nothing wrong with going on an anti-depressant if you need to. I have been on one for years.  I actually came off of it for about 8 months last  year, and it was bad, so I had to get back on it and will not even think about coming off of it for a very long time. I will have to get a lot better first. 

 

I know the frustration you feel with trying all the preventatives. I have tried 4 so far this year. 2 for only a couple of weeks because the side effects were HORRIBLE!! I see the dr this week to see what the next one will be??

 

Thank you so much for starting this topic and sharing your experience. It really does help when you know that someone out there really does understand what you're going through.

 

Take care,

Sherry

11/ 6/08 11:14am

LeeLoo, thank you for giving me the freedom to admit that when I am in the throws of my worst, most confused and debilitating migraines, I have had times when I feel that I would rather not live like this.  I've taken this to be another symptom of how bad the migraine is, and add any special comforts I can find distract myself, check my medication chart and the time, and see when I am due for another dose of whatever I may take. This is the maximum of my ability to read during a migraine, to my severe frustration, and even TV and movies can be hard to follow because I experience scrambled hearing as well, so they don't provide much distraction, and can even be more upsetting, in addition to the noise and light. This may seem silly, but sometimes it helps me to find another room, more warmth or cool, water, tea, a fuzzy blanket, a kitten or my dog, focus on some other part of my body that feels less awful. Something as simple as the hand petting the blanket or the blanket embracing me or the pet, holding the cool or warm drink, or even rocking myself in a rocker or on the couch sometimes lets me drop off to sleep.   This forum is wonderful, because we can address this important issue, and keep it in perspective, to keep one another seeking safe personal and professional support.

1/ 9/09 4:12pm

I agree with what you wrote.  I have had migraine since I was 12.  It's very difficult for others to sympathize since we look normal, and when we don't have a migraine act "normal." My headaches have gotton worse lately and doctors and trying to figure out why...brain scan (normal) and last week a EEg (no results yet). I just finished radiation for cancer, and my theory is that it was a huge insult to my body, and my head is screaming in protest.  All I have to take right now is Excedrine migraine...but I am afraid to take it too often, even though it takes the edge off, not much though.  The problem is that when the headache is really bad I have deep depression (I never had that before), and suicidal thoughts that won't quit.  My dr gave me Visteral, which just knocks me out. Not a good plan for me.  I can't think at all  when the headache is so bad. I went to see a psychiatrist yesterday who suggested that when I feel so suicidal I should check into a psch. ward!  I don't think so.  I can't talk, think, drive, etc!!And I won't ask my husband for help (He is in denial anyway.) I am waiting for relief from the next round of doctor visits, if I can get to the next appointment. 

Anonymous
Anonymous
4/21/09 9:47pm

I realize this post was from awhile ago, but I wanted to leave a comment and just say how much I appreciate you writing it and putting it out there. Maybe it was the emotional and physical exhaustion from a migraine today, but it brought a few tears to my eyes. Especially when the migraines just feel like they are never going to end, it's nice to hear there are other people out there struggling to make it through each day. I don't know many other people who get migraines, so I remember the first time I got a doozy, I was confused why all I could picture was a cold, metal gun. I have never even held a gun before. I remember telling my mom that and she was horrified but brushed it off. I thought it was just me, but this post just confirms the fact that having a migraine does not allow you to think clearly.

3/ 2/10 7:43pm

Your article is one of the best that I've seen and I wish with all my heart that the medical community would take heed.  I once read a quote by a physician that the pain of migraine was akin to the pain experienced by someone with a terminal injury -- except that the migraine didn't stop, it continued whereas the injured victim experienced relief when their life ended.  That is the best description of migraine I have ever heard.

 

I suffered from migraines from the time I was about 22 until I was around 51 and actually woke up once during one of the rounds of "wake up, throw up, and pass out again" with a 22 caliber revolver in my hands.  I had no memory of picking up the gun and the idea that I came so close to taking my own life was frightening beyond words.

 

However, the insults hurled on a migraine sufferer are almost as unbearable as the migraines.  I understand the frustration of spouses, friends and family who live with us, but that doesn't excuse uncaring attitudes.  I've had one husband who told me to "just pretend my head didn't hurt", and one who physically dragged me across the floor during an episode.  Thankfully, I am married to a man who understands that I'm not faking the pain.

 

Likewise, I've had ER physicians accuse me of "drug seeking" and one even telling the friend who accompanied me to the hospital that I was seeking drugs to deal with depression from my childhood.  In addition, he stated that he didn't believe that migraines existed and did not treat them.  In one episode of the television show ER, a doctor sarcastically told another attending physician to handle xxx and he would tale the migraine in another section.

 

You nailed the apathy in stating that migraines show no physical indicators.   When I broke my arm, I was immediately given a morphine injection before being processed by the ER admissions area.  The pain of migraine is 100 times worse than my broken arm, but there is no dangling limb to indicate the problem and I have often sat in the ER triage for hours.

 

For those who live with this pain, you are not crazy and you are not alone, though this is a small comfort when the pain is at its worse.  For those who dismiss migraine sufferers, my fervent prayer is that they will at some point experience just one episode.

 

Anonymous
jake
3/26/10 6:08am

im 24 and have been experiencing what my doctor describes as the worst case of cluster headaches he has seen in his lifetime, over the past 3 years. ive had a few serious head injuries, at the site of some of the pain, but the pain behind my eyes gets so incredible that it takes a barrage of drugs to stop the migrane from lingering for weeks at a time, yes, weeks, coming and going throughout the day. i take methadone and percocet right now and i smoke marijuana as well if im lucky enough to find somthing expensive enough and potent enough to get rid of my nausea and headache, not give me one as some cheap stuff will do. i fight with the idea of suicide when im in the middle of a few week stretch in and out of crippling pain, and being manic depressive definately goes against it, as does me taking narcotic pain killers for migranes when i had a history of pot abuse, but my doctor felt like nothing else would work . i had to detox when i went to jail for 2 months, came off oxy, methadone, and klonopin cold turkey and lost alot of weight got really sick, my blood pressure wouldnt go below 175/115  from the day i started until the day i got out of jail, doctors office 2 days later back on methadone my pressure was 155/90. i have no insurance so it makes things more difficult but if my state passes med. marijuana and me and my doctor can agree that it would be worth trying since i do it anyway and it does work, then i will try again to get off of methadone. i hate it, dont ever start taking methadone i dont care what the hell is wrong. dont get on opiates with longer half lives than 15 hours and you might be ok to use them for migranes without getting physically addicted like me, but i went down from 120 mg to 40 now, but i dont really feel like im going to make it through my 30th birthday, i just dont have a good feeling about being a drug addict and in this much pain, im scared im going to overdose accidentally, i dont want to go out like that

5/12/10 2:05am

As I sit here and read this message I am in tears.  I have been suffering from Migraines since I was 4, diagnosed at 12 and it has been a long and trying 30 years.  I have explained to people the pain and suffering (not looking for sympathy but just trying to educate), and the few people that really understand is my immediate family.  I have lost many jobs because of Migraines, and My life and activities have suffered tremendously.  There have been a million and one times I wanted to end it all.  I'll be honest and tell you all that it is because of my children that I keep hanging on.  It is the worst pain I can ever imagine, I have given birth 5 times and I would give birth 20 more times if I could get rid of these migraines, childbirth has absolutely NOTHING on them.  I immobilizes your entire body. You are enslaved to yourself.  I pray for all of you.  Your post said it all!!

5/15/10 1:45pm

Thanks,

 

This column has given me some courage.  

I have been suffering from constant strange head sensations with the occasional migraine headache / tension head for the past 6 months. Along with depression. Unfortunately the cause of my issue was drug related. I was unlucky. I had never done it before and didn't know what I was doing (I wont ever do it again).

 

I hope I am not rude, but my own problems seem minor in comparison to some people on here. The courage they show is admirable.

 

Thank you,

 

Jack

7/21/10 4:33pm

Like so many of you tears were rolling down my cheeks as I read this article and even now as I am typing, I'm crying. When some people hear the word “Migraine” they just brush it off as a bad headache but for most of us it's just not so. I suffer from hemiplegic migraines a very rare form of migraines and it is so hard every day. I don't have much of a support system my family and friends are not supportive at all. There is only one person I can lean on and like another poster mentioned the guilt of being a burden on that one caregiver can be so overwhelming it just adds on to the depressed feelings I am already having.

 

I'm still young in my late 20s and I feel like all the dreams I had for myself are gone now my career, my plans for a family, children everything all because of this. I feel cursed. I feel like my life is over and I hardly started living it. Everyday I'm in pain not to mention the endless scary stroke-like symptoms that weaken or paralyze half of my body. I could be having a stroke one day a not even be able to tell the difference.

 

I have contemplated just ending it all so many times  because the medications aren't working. Doctors spend half their time trying to disprove what I'm  saying rather than listening to what I have to say. There seems to be no light at the end of my tunnel. I don't know what's keeping me going right now. Maybe there's still a little part of me that has some hope that things will get better some how someway.

7/21/10 11:40pm

I've had hormonal migraines for over 20 years, 6 or 7 a month until menopause. Now I have 12 - 14 a month, a problem since insurance only allows 9 pills. Soy or other products to stabilize the hormones affect my IBS so not an option. My family never considered my 'little headaches' a problem until my mom spent christmas night holding my hair while I vomited and writhed in pain. She gets it now. Luckily my husband is supportive because without him, I'm not sure I would still be here. When the drugs aren't working I sometimes slam my head into the wall because for just a precious moment the pain would be gone. He keeps me from knocking myself out. (Try talking someone into that) It's not just the pain, but the anticipation of pain keeps my life within strict parameters that have driven off all but a few friends. Can't do this or that because it is a trigger. My outgoing personality has become withdrawn & quiet. It is the hand I've been dealt.

 

I understand life on hold but don't live without hope. Your life may not be on the path you thought it would be on, but maybe this path will lead you somewhere interesting. True friends may think we're somtimes a burden but they care enough to help us along just the same. Perhaps without realizing it you are helping someone else along their path.  

7/22/10 2:34pm

To everyone who commented - thank you.  Your burdens and struggles do not go unnoticed and I hope that by reading this sharepost you've found a glimmer of hope somewhere that all will be OK.  It may not be today, and maybe not tomorrow, but the best thing you can do for yourself even if you feel run down, worn out, and oh so tired...is to keep pushing on.  By keeping on you give yourself time and the reassurance that battling this is courageous, and that can be a tremendous confidence boost in the midst of all of your misery.

 

I hope the best for each and every one of you, my heart goes out to all of you and I hope for a better tomorrow for all of us.

Anonymous
Me
7/22/10 3:29pm

Leeloo

I thank you for sharing this post. It took some courage to do so and I agree it is a topic that should be discussed more. I attempted suicide just a few months ago after many many failed attempts to relieve the relentless pain. I have found in my journey that this is a far more common topic with chronic pain than people think. Chronic or even severe pain really takes its toll on the body as well as the mind. Maybe if there wasn't a stigma attached to needing help or being "weak", we could feel free to discuss this topic more. With understanding, I think that we could help each other through rather than hiding our struggles and pushing through. Depression really doesn't have to be a "dirty little secret" Anyway, thanks for your honesty and for bringing attention to this issue. God bless...

8/21/10 3:40pm

I just had another appointment with my neurologist today and I was told that I have tried and failed all of the migraine medications that he knows to use, and he is a headache specilist.  My life consist of one migraine after another and as far as I can see no help in sight.  My life is a living HELL!!  This is not living it is existing.  I don't know how much more of this I can take.  I am tired of the constant pain without any relief, missing out on everything in life and the doctors that treat me as an annoiance than a patient.  The only thing I can thing of to get any relief is to just end it so once and for all I will be pain free.

Nancy Harris Bonk, Health Guide
8/21/10 8:43pm

Hello, and welcome to MyMigraineConnection.com!

Thank you for creating a very sensitive SharePost. As you can see, SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

 

I'd like to tell you that I understand the agongy one goes through on a daily basis. I understand when it hurts to get out of bed in the morning, when it hurts after taking a shower and you can hardly do anything for the rest of the day because you are so exhausted. Then have to do it all over again, and for what? Will the pain ever go away? Will I have any kind of life, at all, ever?

 

The only way I can get up in the morning is by telling myself that today, just today, will be a different day. Maybe not a better day than yesterday, but different. I don't do it for my kids, my family, my friends or anyone else, just me. Maybe my pain won't be a six all day - just a two. Maybe I will be able to actually fold the laundry that has been sitting in the basket for two days and then have my son carry it up the stairs for me, and that will be that for the day.

 

But the thing that may be helpful to know is your doctor couldn't possibly have used all the available medications to treat Migraines. He may not be aware of this because there are over 100 different drugs  used to treat Migraine and headache disorders, and when you add up the different combinations, the number goes way, way up! Check out this article when you get a chance; Migraine Preventive Medications - Too Many Options To Give Up! 

 

It's important to note that neurologists aren't necessarily Migraine and headache specialists. They may say they are headache specialists, but really aren't. They can't dedicate their practice to treating patients like us - Migraineurs and headache disorder patients - because they treat so many different conditions like MS, stroke, epilepsy.  Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.  If this doctor isn't able to help you, and clearly he isn't, then it is time to consult a "true" Migraine specialist.

 

The rest of this post is mostly business, but I am truly worried about you. It sounds like you are really down. Could you use some resources to help out? Here are immediate resources for you. If You're Having a Crisis. Please let me know how you are doing, ok?

                                       

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs at the top of each page, you'll find a wealth of information - educational articles, tips, quizzes, workbooks, support and advocacy information, and more.

Do you have questions about Migraine? There are three ways to get answers - through our Ask the Clinician column, in our community Question and Answer Section, or through our forum.  Just go to our Migraine Answers page HERE.

 

Our email newsletter will help you stay up-to-date on Migraine and headache news and new information published on MyMigraineConnection. To receive our newsletter, click the "Sign up now!" link in the navigation bar across the top of our site pages or simply click HERE.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Community Manager

Teri Robert, Health Guide
8/22/10 12:14pm

lustrated,

 

Welcome. I'm sorry you need to be here, but SO glad you found us. Lots of us can at least come close to understanding how you feel because we've been there ourselves. There was a time when I was in bed all day five or six days a week with the Migraine from hell. That wasn't life, it was merely existing. Then I got angry, and that was probably the best thing that could have happened. I discovered what Nancy told you, that neurologists aren't necessarily Migraine specialists, and made an appointment with a real specialist. I won't tell you it was quick or easy, but now I only get six to 12 Migraines a YEAR a tmost.

 

I'd like to give you a couple more links to check out:

Migraines and Feeling Hopeless - Hang On!

Migraines, Suffering, Suicide, and Hope

 

I hope some of the information and links we've given you are helpful. Please let us know if we can help you with anything.

 

Welcome again,

Teri

8/23/10 10:53pm

I guess from all these posts I realize we've all been in those frightening places, wondering when the drill bit feeling will stop, will that acid-like pain spread across your scalp, or retreat back, will it be an ER migraine, or, will you be able to go back to sleep. I have been able to pound a couple of them back a little bit by listening to this, but, it still reminds me of some of the worst headaches I have ever had, as I listened to it over and over, visualizing the headache growing smaller and smaller, and floating out of my head. And if I had a super power, it would be that I could throw my migraines at people at will, so any person I picked could suffer the full pain, nausea, and other weird neurological symptoms of the migraine for me, so I could stand at the fax machine and press the beeping buttons and torture them for a change!

http://www.youtube.com/watch?v=2N-WAhwvx08

9/ 2/10 7:29pm

Hello Leeloo!,

 

I am very glad to have read your post, it is a very lucid and sensitive rendering of the feelings that so many of us experience, when suffering and feeling so isolated and wretched.

 

As you say, I am in an altered state of mind when suffering a severe attack, and when the rate of episodes was 3 days aweek for 10 years I tried the suicide route many times. Now I believe God's love and that of my late mother kept me here [ also the fact I am incompetent at suicide ], though things weren't helped by very deep depression I still get from time to time.

 

Weeks in poisons wards, drinking bleach and solvents, opening veins, always I was found and dragged to great hospitals, with brilliant staff. It is a miracle  to be here still, but to anyone who wants to die, and I so often still do wish so, it is no answer.

 

It hurts your body so bad, you burn inside and out with drugs, my stomach and oesophagus are still scarred, the bleach burnt my eyes and lungs when I vomited it up,I have the guilt and pain of hiding and lying to my family and doctors, and even when you think you are leaving the migraine sears your mind.For years I was 7 stone due to the damage, a minutes madness can wreck you for life.

 

I will never try again, and now cling to life as hard as I tried to leave it. I have only 2-3 days a month, thanks to wonderful doctors and chance meetings that I guess are God's way of helping me struggle through this.

 

Migraines  can deepen peoples depression, or even cause whole episodes for some non-depressives, and for anyone to take their life in such tragic and despairing circumstances is a tragedy, that can so often be avoided with the right treatments or drugs.

 

I have helped counsel people who have had similar experiences as myself, and so many suffer in misery and silence! Talk to people ,your family ,friends, doctors and if they don't listen and care then find someone who will! I now laugh at some of the insane things that happened, o.d.ing and sleeping four days, Mum thinking thinking yet another accident," but at least Jer had a nice sleep"!

 

Now I am getting on well, but reading your posts, and all the caring and concerned comments has made think again of all those poor souls in pain as this is being written. Please, please keep fighting on, and things can get better!

I wish I had found the Church when I was really ill, it would have helped me for sure, it is so hard alone.

 

God bless you, and all who suffer any pain,

                                                           Jeremy x

Anonymous
anon
10/17/10 10:58pm

My migraines are so brutal, I've seriously considered killing myself during them.  I would do anything to get rid of the pain. 

10/24/10 1:26pm

I am currently seeing a Prolotherapy doctor for migraine treatment.  I have suffered with migraines for 23 years.  My quality of life has been morbidly depleted because of this horrid condition.  While in the grips of a migraine, while writhing in pain in my bed, I have often thought “I would be perfectly fine with an 18 wheeler truck running me over and killing me, because I would never again have to go through this pain”.  People who have never had a migraine have NO clue!!!!  They think it is comparable to some 'really bad headache' they've had.  Only one who's been through it will ever truly understand that a migraine is NOT ‘a really bad headache’.

I had been seeing a Prolotherapy doctor for the treatment of my ankle and asked him recently about treatment for migraines.  Prolotherapy involves shooting a 3 part solution into a part of the body in order to get that area to heal itself.  This is the page of the doctor I went to:  http://www.prolotherapynashville.com/  It explains what Prolotherapy is, how it works, etc.  While I waited to see the Dr. this past week, I spoke to a woman who was also waiting to be treated.  I asked her what part of her body she was there to treat.  She told me that she had suffered from migraines since she was a child.  She was treated a year and a half prior and had recently started getting them again, but much milder in severity than before and not as often.  To go a year and a half without migraines - ??!!!!  Are you kidding me?!  I cannot even imagine such a life!

I am very hopeful because I know someone who has had 5 different areas of the body treated with Prolotherapy for old injuries that never healed properly and 3 of those areas are 85 to 95% better and the other 2 about 50 to 65% better, he says.  As far as treating old injuries with Prolotherapy, it depends on how old the injury is, how severe it was, etc., in regards to the level of healing that will be achieved.  Even though he wasn’t treated for migraines, the results that my friend had are a very positive testimonial for Prolotherapy.  I've had my ankle treated twice by this Dr. and it is at least 80% better.

So, this past Tuesday, I received the treatment for migraines, which for me was 6 or 7 needles of solution in the neck, and at base of skull and one above my eyebrow.  It brought on a strange type of migraine that I had not experienced before and it lasted 2 and a half days.  The Dr. told me beforehand that the treatment could bring on a migraine and has done so with other patients, but I assumed the feeling would go away in an hour or maybe even a few hours.  Nope, not for me.  I was angry, disappointed and panicking by Wednesday afternoon and called their office.  They said that everyone reacts differently, to take my Rx and to give it time.  Thursday am, I woke with no migraine, but after lunch, it started creeping back and stayed the rest of the day and night.  By Friday morning I was fine and have not had a migraine since, but only a few days have passed.  Today is Sunday.  I still have my period and feel a little headachey, but a regular headache that often comes with a period, not a migraine.  I can totally deal with that.  We shall see what happens.  The true test will be next month when I have my period again, which never ever fails to be the catalyst for an unending migraine for days, or a batch of migraines.  I am hoping and praying that this is the solution to this horrible suffering that SO SO many of us go through on a regular basis.  I will update next month.  Light and Love to all fellow migraine sufferers.

11/17/10 6:18pm

Thank you so much for writing this, Leeloo. I did an internet search today on migraine and suicide in the hopes that I could find something that would convince me not to swallow every pill in the house. I found it here.

 

I get severe depressive spikes with my migraines too, and it's almost universally missed by doctors as a neurological migraine symptom. This is especially dangerous for those of us who suffer from this condition and live alone. Fortunately I have a wonderful support network. Unfortunately I tend to focus too much on protecting them from my pain.

 

I'm adjusting to a new dose of Topamax as a preventative, and it seems to be backfiring. I've had a migraine for the last nine days straight, ranging from overridable to crushing. The last several days, it's been stunningly bad. Last night in the emergency room I wrote a suicide note during the 6-hour wait for a bed, wondering if I had the strength and the wiles to grab a security guard's gun and blow my brains out. This was not the first visit to the ER for this particularly vicious attack. The symptoms seemed to mostly resolve after a hard-hitting cocktail and several blasts of dilaudid, but it came thundering back again this morning. At the moment it's only slightly tamed.

 

When you're in the grip of a monster like this and the depression kicks in, you cannot even remember what it was like not to be consumed with pain, and you cannot dare to hope you will ever experience life without pain again. This is especially true when the pain is protracted. Another commenter mentioned a physician's comment that migraine pain is akin to terminal pain, except that terminal pain eventually ends. As an intelligent and clinically-minded person, I realize that the suicidal ideation is part of the symptom profile of my migraines, but that's just the problem. It takes away your rationality and upends your emotional state - as if things weren't bad enough already with your head caving in like a rotten pumpkin and every sound, light and smell exaggerated to the Nth degree.

 

Having unsympathetic doctors makes the depression factor far worse. I can't even tell you the number of times I've had to submit myself as a science experiment for doctors who thought I was a drug-seeker and insisted on giving me the medications I have adverse reactions to, such as triptans or Compazine. The migraines may not always have measurable clinical features, but they can't escape the fact that my heartbeat and breathing get erratic when given triptans, or that I have a full-on dystonic reaction to Compazine that takes at least two other medications to counteract, and even then the migraine doesn't go away. In the end, they're always forced to acknowlege that I wasn't lying and still end up giving me opioids. These encounters end up with the doctors making things more difficult for themselves and with me vastly over-medicated and sore all over. Forcing someone who is already depressed and in agony to also thrash and twist around uncontrollably for an hour or so until you figure out the Benadryl and Cogentin balance is NOT good medicine.

 

Fortunately I have a lot of people in my life who do understand and support me. I know it wears on them sometimes, but most of them are also good at keeping perspective. As hard as it is for them to watch me suffer, they know that the actual suffering is immeasurably worse.

 

Again, thank you for sharing your story. It's given me the courage to share mine.

Anonymous
poldermeisje
4/20/11 1:16pm

A bit late but I also would like to share my story here, amongst people who understand. I have had migraines since I was a child. They used to be stress related, since I got sick during the school holidays. Later on they became hormonal since I got them during my periods (I now constantly take the contraception pil and dont get my periods thank god). But everything can be a trigger really, and also sometimes those triggers are not triggers at all. What can you do? 

Even though my friends are nice about it, I am not sure they really understand what I am going through. One of my closest friends said to me when I had to cancel a date because of a migraine: "you seem to get those a lot whenever the two of us arrange to do something". This hurt me, what do you think? That I do it on purpose? That I like having migraines? 

One of my colleagues, a guy I am also friends with actually said "men get headaches, when women get one they call it a migraine". 

It is bad, but sometimes I wish upon those people to have one of the worst attacks. When you dont know what to do with yourself and you have to vomit because of the pain in your head and you feel that everything you planned for yourself is not going to happen only because of these attacks. That all our potential seems worthless because you hardly ever have the energy to really do something with them.

Sometimes the attacks stay away for a long time. I am very grateful for that. I always get this hope I know I should not have, that they wont come back.

They came back a week ago and everyday I get another attack. I need a new job, my current boss is going to replace me. I need to apply for jobs. It is hard sometimes to not just give up trying to achieve anything. 

Lets just hope for us all they will find a definite cure. 

The best to all of you. 

 

5/10/11 6:46pm
My brother recently committed suicide by gunshot after years of suffering from migraines and being able to do nothing but lie on the couch in the dark. He was taking enough medication to kill a normal person but it didn't alleviate the pain only deepened his depression. He refused all offers of assistance and lived his last months with no running water because he didn't want a plumber to see the mess he lived in. He refused all help from his siblings for the same reason. He believed we did not understand what he was going Through and became very angry any time we tried to talk to him about his situation. Needless to say, I am devastated and wondering what I could have done differently to help his living situation and feelings of despair. Many posts here have mentioned the frustration of not being understood. So I ask, too late in my brothers case but maybe not for others, what should a worried family member do?
5/12/11 12:02am

Good question....it is soooo very hard to watch those we love dearly suffer and not be able to help.  My son tried suicide twice, and the doctors pretty much kicked him out of the hospital both times once he was well enough to leave the trauma unit.  His 3rd attempt was thwarted when his sister figured out his "plan".  Last summer he drove head on into a semi.  He was 41, and he suffered for 12 long years with severe migraines, but suffered even more from the ignorance and incompetence of medical professionals.   He would ask them to please amputate his head.....trying to get them to understand how truly unbearable this pain is.

In the end, my son was talking frequently about his need to be out of this pain; and I knew he needed to be out of the pain. 

The pain of losing him often seems unbearable to me...then I remember what life was like for him.  I think it is best if we just offer all the love and support we can, and then understand that some things ..like unrelenting, constant pain....are too much for a human being to endure.   When all the doctors do is to tell the patient to learn to live with it, and then throw narcotics at them by the bushel, life is over for that patient.  

I thought his death would kill me, but I am learning slowly how to live a life without him here.  Do not feel guilt or regret........he did the best he could, and you did the best you could.  As my son often told me, some things just cannot be fixed.  That is hard for a Mom to accept.....it is our number one job to "fix" what is wrong with our kids.

Your story made me sad.....I am wanting to find a way to save other families from the pain we are in.......................it has to start with doctors, but how to make a change in the way they "perceive" the invisibility of migraine pain?????  

5/16/11 3:47pm

   Sister,

Unfortunately there isn't much that one can do if a family member refuses help and is an adult. It sounds like your brother had a lot of anger issues with his disease, and it's something that many of us deal with daily - not only the migraines, but the anger too, and depression. Depression is often co-morbid with migraine, and it's hard to tell sometimes which came first, though migraine certainly can impact depression and make it much worse, because as you saw with your brother, migraine changed his life drastically.

In only 5 short years I feel like I have been around the block numerous times with people who didn't understand me, including doctors, family members, employers, and sometimes with my own spouse, who is a loving, caring, supportive individual despite everything. But it sounds as if your brother could not face his own disease, and I sincerely hope that you nor your siblings are blaming yourself for what happened. If you are, may I suggest to you that before you let that notion eat you alive that you look into some help as well? Guilt is so powerful; I carried guilt with me and still carry some of it to this day after my father passed from cancer in 1997. We did not get along. Years of counseling helped, but I still struggle some days.

As a family member, you always have the option to contact a health professional for suggestions. While you may not be able to make an appointment for them or force them to go, a doctor's information might be able to aid your fight to get them treatment or bring them back from the abyss. There are always websites to go to as well where one can find support and information sharing, such as this one. Even though it's difficult during a migraine to tolerate a website, some migraineurs will choose the discomfort if it means they can connect with like individuals and feel better about their situation. Sometimes, being family, you are too close to the situation and too emotionally invested and cannot be objective. Being objective is difficult and there is no blame to be laid there, that's just how life is, but objectivity is sometimes what is needed - that doctor, that outside sufferer, who can connect better and direct to needed resources. 

I am so sorry to hear of your loss - it was needless, but keep in mind it was not your fault.

6/13/11 10:26am

Thank  you.  I just asked the question on a well known migraine research site about the relationship between migraines and suicide.  No one seemed to know - at least I didn't get an answer.  Your article lends credence to my thoughts about suicide as I suffer from chronic daily migraines without relief.  My husband tries to understand but if you have never suffered chronic pain, you just don't know what that person is going through.  Thank you, thank you, thank you!

6/13/11 10:29am

Thank you.  I recently asked a question of a well known migraine research site about the relationship between migraines and suicide.  Either they did not know or just didn't answer.  I suffer from chronic daily migraines and no one understands unless they have suffered from chronic pain, even though they try to understand.  Thank you, thank you, thank you.

Nancy Harris Bonk, Health Guide
6/20/11 9:21pm

Hi Rhonda,

 

I think I remember your question and where you asked it! I have found some information for you and it is sobering. This information is from Dr. Robert Shapiro and the Alliance for Headache Disorders Advocacy fact sheet; "Based on a sample of Americans, suicide attempts are three times more likely in individuals with Migraine with aura compared to those with no Migraine, whether or not major depression is also present."  I'd say there is a connection. Here is some information  you'd might like Migraines and Feeling Hopeless: Hang ON!!

 

Take good care,

Nancy

 

7/10/11 11:34pm

Hi Nancy,

 

Do you know if there is a 'decent' support group of sufferers, and medical professionals for migraine sufferers in Australia?  I have a lovely g.p. but same ol same ol - unless the doctor actually suffers from migraines themselves (are there any in the world???), they don't have true empathy.  I've done all the usual in the last 32 years since I was 19; haven't, but think of suicide; (kids keep me going, hubby helps the 'best' he can); and now just live in hope that menopause when i finally get there - helps.  My Zomig is starting to affect heart rate/ chest; and have developed in the last 3-4 years persistant sores (blistery - anyone else?).

When I was a child I had the most placid, charming personality - I am now a bitter, jealous middle-aged women, and the only thing that keeps me around are -my 17 year old twins need me, as does my 24 year; plus on rare occasions, I can still make people laugh - these are my gifts that keep me going.  My artistic talents have been shoved to the side for so long now - I'm flat out just doing the 'basic' life needs each day.  Anyway, thanks to all on this website - you are all the BRAVEST people on earth - don't ever forget that. I look forward very much to your reply - Odette D. from down under

Teri Robert, Health Guide
7/11/11 11:17am

Hi, Odette,

 

I'm not Nancy, but I saw your post and wanted to reply to you. I don't know much about support groups in Australia, but there are a couple of organizations there that you can check out:

 

Headache Australia at http://headacheaustralia.org.au/

Headache and Migraine Western Australia at http://www.headachehelp.org.au/

 

Yes, there are doctors who have Migraines. Here in the US, many of our best Migraine specialists are Migraineurs themselves. Unfortunately, I don't know any of the doctors in Australia, so I don't know anything about any of them. Have you asked your doctor if there's an actual Migraine specialist he could refer you to?

 

Some of our forum members don't often read this section of our site, so it might be worth it to come post to our forum and see if any of our members in Australia are actively posting right now and have any suggestions for you. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.

 

Teri

 

 

8/29/11 10:05am

My wife is in the third episode of status migrainosus in three years. Each episode has lasted at least six months, because it took that long for the neurologist to hospitalize her for IV infusion. In dealing with our migraines, we've discovered that we are the victims of a cold inhumane sadistic monster of a healthcare system that breeds cold inhumane sadistic monsterous healthcare "professionals" that add to the pain and suffering of the patient by 'first do harm' in accusing, belittling, and affirming hopelessness by doing nothing more than allowing the patients' increased suffering by choosing to do nothing. This leaves the patient to deal with their illness by whatever means is left available to them. On my part, I was slow to recognize the severity of my wifes' depression. Is there nothing that we can do to hold these "professionals" accoutable for their decisions? How can we protect future patients from becoming victims of these "professionals"? Is there no watchdog over those who are given the power to cure or kill?

2/ 3/12 9:49pm
My brother suffered from migraines since childhood and finally killed himself last year. Today I took a sleep apnea pre test and it hit me like a ton of bricks that he exhibited all the symptoms of sleep apnea--sleep walking and nightmares as a chid, shift work, depression irritability and on and on. I can't help but wonder if treatment for his sleep disorder would have helped. As far as i know his doctor never considered it as a possible cause. We will never know if it would have helped him but I would urge anyone with chronic migraines to research the connection to sleep apnea and go for a test. I wish I had known this when my brother was still alive.
By Leeloo— Last Modified: 02/05/12, First Published: 08/16/08