Hemiplegic Migraine Out of Control

I was diagnosed this summer with Hemiplegic Migraine but can find very little information on this very frightening form of migraine. 

The hemiplegic migraines are out of control, happening several times a week and paralysis is lasting 2-3 days.  I have been put on topamax and verapamil, however, we are either not at the correct dose or need to try something else.

I am looking for a specialist (mid atlantic area) who has some experience with hemiplegic migraine but I am having trouble locating anyone with any expertise in this specific type of migraine.  Can anyone help?