I was diagnosed this summer with Hemiplegic Migraine but can find very little information on this very frightening form of migraine.
The hemiplegic migraines are out of control, happening several times a week and paralysis is lasting 2-3 days. I have been put on topamax and verapamil, however, we are either not at the correct dose or need to try something else.
I am looking for a specialist (mid atlantic area) who has some experience with hemiplegic migraine but I am having trouble locating anyone with any expertise in this specific type of migraine. Can anyone help?


Hello Half Alice,
I also have Hemiplegic Migraine and have just been taken off of Verapamil due to my blood pressure dropping too low and having to go to the hospital and have to stay for a week 2 months in Row. It seemed to work OK for me for a about a year and then the Hypotension started. I am starting back on Topomax. I am seeing a specialist in San Antonio TX which is a long way from mid Atlantic but know you are not alone.
I started having episodes a week after I turned 49 and will turn 51 next month. It seems to be rare to adult onset. How old were you when this started for you.
Moody Mom
Thanks for the reply, Moody Mom. I had my first episode of paralysis this spring at age 40. I've been through every diagnosis from MS to a psychiatric conversion disorder. Now I'm on a combination of verapamil and topamax. The episodes are getting shorter however, I am at the max dose of topamax (75mg) without side effects. I also have problems with low blood pressure but so far have been lucky with no side effects from the Verapamil. The higher doses of the Topamax did have an effect on raising my blood pressure and also my blood sugar levels. Now it's back to the drawing board.
It's good to meet you and hopefully will be talking to you again!
Moody Mom, who is your doctor in San Antonio? I have the same thing and I need to find a doctor in SA. Right now I'm traveling to Houston.