Sunday, May 27, 2012

not what I wanted to hear

By Michelle Wednesday, October 24, 2007

Well...went to the neurologist today (nuerosurgeon had to reschedule) and I didn't get the best of news.  He said my migraines may be as good as they are going to get.  He wants to try adding Verapamil to med regimine as there has been some success with that in hemiplegic migraines. (thanks Nancy, I didn't get to read your post but it is nice to know you had heard this somewhere else also).

 

He also told me he also is afraid I may never be able to work as a nurse in the patient care arena again.  This hit me like a ton of bricks.  I was not ready for that one.  Being a pediatric ICU nurse is part of who I am.  I miss it so much, I just can't imagine never being able to do it again.  I really want to cry but the tears just won't come.  I know there are other areas of nursing to work in, but it's the interaction with the patients and families that I enjoy.  I adrenaline rush of the trauma admit, the postop cardiac patient that has to be re-explored in the room, the code in the middle of the night, using those assessment skills that prevent that middle of the night code that I love.  It's what I have trained all these years for.  I am overwhelemed with sadness.

 

Thanks again you stupid drunk.  I hope you enjoyed your drinks! Furious

 

hemiplegic migraine with aphasia and inability to understand others
Nancy Harris Bonk, Health Guide
10/24/07 10:12pm

a Headache specialist. They are the experts and can better assit in treating Migraine disease and headache disorders.

 

Have you been over to the discussion forum? It is very supportive.

10/25/07 4:20pm

Dear Michelle:

I read your post and then your "story," and is very sad.  I do hope you are able to return to ER nursing someday.  Are you seeing a migraine SPECIALIST, not just a neurologist?  I ask because I have a very rate type of headache (in addition to menstrual migraines) that ONLY a headache specialist would ever know about.

 

We have moved three times (different states) and I have seen four different MIGRAINE SPECIALISTS, and learned that none of the neurologists I visited before them understood enough to properly assess my symptoms, diagnose them, or treat them well.  And not all SPECIALISTS are equally good listeners.  You've probalby read Teri's posts about "firing" doctors who do not help.  Well, sometimes the Specialists are not great, either, and it is worth the time and the long drive or airplane flight to see one who is highly recommended.  I wish for you freedom from headaches (or at least less intensity, duration and occurance) and the ability to return to your passion.

Clemmie

By Michelle— Last Modified: 09/04/10, First Published: 10/24/07