Botox Injection Pain

MomZor Community Member December 22, 2012
  • I had my first botox injections 3 days ago. I had over 30+ injections I lost count. Most of the injections were not bad, but both my eyebrows and the back right side only of my head felt like he was injecting hot burning ACID onto the nerves, at one point I jerked my head away from him. I have been puking from the onset of a level 10 migraine since the injections. Things have been so much worse not better. I have been in bed with Ice packs on my head and a heating pad on my neck and shoulders. Is this normal? Will it get better? My eye brows feel like they have implants in them now, and the back right side of my head feels like it has been beaten with a sledge hammer, on top of the migraine. Anyone else have this type of experience?

17 Comments
  • Med O
    Jan. 13, 2013
    O My Word...Getting Ready To Start Botox Injections..Thank You Good Info! I'm Epileptic With Cervical/Spinal Injuries...Been Having Miagraines Since Age 2..I am now 50 Now !! Use To Work Special Need Peds..I'm Not A Good Patient...One Month I'm In Myofascial/Nueromuscular Miagraimes...Plus, Having Seizures..Trying To Stay Focused/Positive..Bless Your Heart!...
    RHMLucky777
    Read More
    O My Word...Getting Ready To Start Botox Injections..Thank You Good Info! I'm Epileptic With Cervical/Spinal Injuries...Been Having Miagraines Since Age 2..I am now 50 Now !! Use To Work Special Need Peds..I'm Not A Good Patient...One Month I'm In Myofascial/Nueromuscular Miagraimes...Plus, Having Seizures..Trying To Stay Focused/Positive..Bless Your Heart!
    • Teri Robert
      Health Guide
      Jan. 13, 2013

      Hello, Med O,

       

      Is your diagnosis actually "Myofascial/Neuromuscular Migraines?" Do you have a diagnosis of Migraine with aura, Migraine without aura, or another form of Migraine?

       

      On the Botox, please don't let one person's expereince with Botox injection pain affect you and your treatment. I'm not saying that it's not a valid experence, but it's...

      RHMLucky777

      Read More

      Hello, Med O,

       

      Is your diagnosis actually "Myofascial/Neuromuscular Migraines?" Do you have a diagnosis of Migraine with aura, Migraine without aura, or another form of Migraine?

       

      On the Botox, please don't let one person's expereince with Botox injection pain affect you and your treatment. I'm not saying that it's not a valid experence, but it's definitely not one that most patients experience. In the major clinical trials of Botox for Migraine prevention, injection site pain occurred in just 3% of the patients in the studies.

       

      Teri

    • MomZor
      Jan. 13, 2013

      I don't have a true diagnosis? The doctor keeps asking me "are you sure you did not injure your head?" Unless I was injured in surgery while I was unconcious then NOPE I have not injured my head.

       

      I am going to try the botox 1 more time, but with the advice of locations for shots. I think my doctor may have placed the shots wrong, after some research....

      RHMLucky777

      Read More

      I don't have a true diagnosis? The doctor keeps asking me "are you sure you did not injure your head?" Unless I was injured in surgery while I was unconcious then NOPE I have not injured my head.

       

      I am going to try the botox 1 more time, but with the advice of locations for shots. I think my doctor may have placed the shots wrong, after some research.

    • Teri Robert
      Health Guide
      Jan. 13, 2013

      MomZor,

       

      You don't have a diagnosis? This doesn't quite make sense to me. If you don't have a diganosis, what did your doctor say the Botox was for? From your description of 30+ injections and the placement, it sounds like the patterm for chronic Migraine. If you have insurance that paid for this, it's most likely that's the diagnosis he gave them, or...

      RHMLucky777

      Read More

      MomZor,

       

      You don't have a diagnosis? This doesn't quite make sense to me. If you don't have a diganosis, what did your doctor say the Botox was for? From your description of 30+ injections and the placement, it sounds like the patterm for chronic Migraine. If you have insurance that paid for this, it's most likely that's the diagnosis he gave them, or they probably wouldn't have covered it.

       

      Nancy gave you the link for Botox info including a diagram of the injection sites for chronic Migraine.

       

      This just sounds very strange to me. As I told Med O, in the huge clinical trials of Botox for chronic Migraine, injection site pain occurred in just 3% of the patients.

       

      I don't know enough about your situation to question your doctor, BUT if I were in your place, nobody would be injecting me with Botox without a diagnosis and explaining why there was so much pain during and after this set. What kind of doctor do you see? Is he a Migraine and headache specialist? With Botox, it is critical that the doctor administering it be properly trained to administer it for whatever condition it is being used for.

       

      Teri

    • MomZor
      Jan. 13, 2013

      Teri,

       

      He is saying I have Chronic Migraines, but he thinks it is caused from a head injury. I have not had an injury. I woke up from surgery and 2 weeks later this mirgraine started and it has not left me one day since. 

       

      I have Kaiser insurance. I have been seen by 2 different Neurologists and they both agreed it was not MS. I have huge chunks...

      RHMLucky777

      Read More

      Teri,

       

      He is saying I have Chronic Migraines, but he thinks it is caused from a head injury. I have not had an injury. I woke up from surgery and 2 weeks later this mirgraine started and it has not left me one day since. 

       

      I have Kaiser insurance. I have been seen by 2 different Neurologists and they both agreed it was not MS. I have huge chunks of brain damage in all four quadrants of my brain, from these migraines? My MRI looks like a bad case of MS. It has been over 18 months now and no relief in site. I am not sure how much more I can take. I have spent a lot of money on CoPays and Meds, and I don't feel I am getting anywhere. 

       

      My doctors only suggestion is for me to go on permante disablity. That is not an option. I can't afford to. I am fortunate that I work for myself so I can manipulate my work schedule around the 6 to 10 level periods of migraine. Most of the days are just 3 to 6, so I guess that makes me lucky?

  • Spud
    Jan. 04, 2013

    I have had three rounds of botox injections so far and have not experienced anything like you have.  This last time I had more pain than usual on the right side of my head above the ear during the injection but nothing else.  Even getting the injection underneath my bottom lashes is not that bad.  It does not make me nausous.  The worst...

    RHMLucky777

    Read More

    I have had three rounds of botox injections so far and have not experienced anything like you have.  This last time I had more pain than usual on the right side of my head above the ear during the injection but nothing else.  Even getting the injection underneath my bottom lashes is not that bad.  It does not make me nausous.  The worst thing is that my eyebrows don't move up and my eyelids drooped.  This last round has been pretty good in reducing the number of migraines.  I took myself off the Topamax and that really made a difference.  So sorry you have bad results with the botox.  Oh, my frown lines have been significantly reduced.  I love that!  Good luck. 

    • Teri Robert
      Health Guide
      Jan. 04, 2013

      Spud,

       

      Botox injections beneath your lower lashes for Migraine? The protocol for Migraine has 31 injection sites, but none of them are below the lower lashes. The only ones that are even on the facial area are on the forehead. What kind of doctor do you see?

       

      Teri

    • Spud
      Jan. 06, 2013

      Yes, I see a bona fide neurologist.  Couldn't tell you why she gives me injections at the bottom of my eye socket area but she has the last three times.  Hurt the first time but has been fine since.  I will ask her next time and let you know.

       

      But getting off the Topamax has been great for me.  I did it immediately without cutting...

      RHMLucky777

      Read More

      Yes, I see a bona fide neurologist.  Couldn't tell you why she gives me injections at the bottom of my eye socket area but she has the last three times.  Hurt the first time but has been fine since.  I will ask her next time and let you know.

       

      But getting off the Topamax has been great for me.  I did it immediately without cutting the dosage.  Just stopped it one night.  Still on Cymbalta and Bupropion.  I would prefer to get off everything and see how I do.  Menopause just started and may bring about an entirely different round of hurt.  I was told I would grow out of these migraines but at what age?  I have suffered for 31 years now. 

    • Teri Robert
      Health Guide
      Jan. 06, 2013

      You might want to know this, something many of us have learned the hard way - Neurologists aren't necessarily Migraine specialists. They have so many conditions to treat that, unless they limit their practice to specific conditions, it's difficult to be a true specialist in any of them. If you want to see where Botox is typically injected for Migraine, you...

      RHMLucky777

      Read More

      You might want to know this, something many of us have learned the hard way - Neurologists aren't necessarily Migraine specialists. They have so many conditions to treat that, unless they limit their practice to specific conditions, it's difficult to be a true specialist in any of them. If you want to see where Botox is typically injected for Migraine, you can see a diagram at http://www.allergan.com/assets/pdf/botox_pi.pdf

       

      Wow! You stopped Topamax cold turkey? I'm so glad it didn't cause you any problems.

       

      It's largely a myth that we'll grow out of our Migraines. Some people do, but most don't. If your cycle is a problem with hormonally triggered Migraines, they might get better after menopause, but there's certainly no guarantee of that. I know what you mean about having them for so long though. Mine started over 50 years ago.

       

      Teri

    • MomZor
      Jan. 07, 2013

      I had to stop the Topomax too, and I too did it cold turkey and I was on 300mg a day. It through off my pH balance, my tears burned, my salivia and urine. The Doctor said that it was damaging my organs with the pH balance in my system completely gone wrong. He wanted me to wean off, but I just quit taking it 4 weeks ago. I am starting back on the Nortriptaline...

      RHMLucky777

      Read More

      I had to stop the Topomax too, and I too did it cold turkey and I was on 300mg a day. It through off my pH balance, my tears burned, my salivia and urine. The Doctor said that it was damaging my organs with the pH balance in my system completely gone wrong. He wanted me to wean off, but I just quit taking it 4 weeks ago. I am starting back on the Nortriptaline for sleep, as I have not been sleeping very well, the migraine wakes me vomiting.

       

      I have had this migraine since August 2011, Not one day without it. I am so sick of it. I feel such a sense of relief when I can get it down to a 2-4 from the constant 6+. Sometimes I just want to chop off my head. My migraine started after I had surgery for my stomach. I had migraines before for 10 years but not often after my hysterectomy. Maybe 1 to 3 every 3 months. But this is different it is constant no relief. 

       

      The doctor did an MRI MRA spinal blah, blah, blah... I have lots of brain damage from this migraine, at first they thought due to the brain damage that I had MS. That has been ruled out. The doctor keeps insisting that I had a head injury, unless I was dropped off the operating table when I was under general, I have not had a head injury that I know of. 

       

      This has been so frustrating.

    • cherie
      Jan. 11, 2013

      I understand your wish to be able to stop taking medications.  However, please do not go cold turkey with the Cymbalta .. this is a dangerous drug.  I was on it for awhile.  When I decided to get off because of side effects it was like a heroin addict kicking their addiction.  For months I suffered all different reactions. My body temperature...

      RHMLucky777

      Read More

      I understand your wish to be able to stop taking medications.  However, please do not go cold turkey with the Cymbalta .. this is a dangerous drug.  I was on it for awhile.  When I decided to get off because of side effects it was like a heroin addict kicking their addiction.  For months I suffered all different reactions. My body temperature was thrown off, I had anxiety attacks (I never had them before), I would sweat one minute and get totally chilled the next (teeth chattering chills), I couldn't eat anything, my blood pressure soared (I had always had low blood pressure before), pulse rate was off,

      Cymbalta affects the neurotransmitters that control those areas of the central nervous system - so everything was completely haywire for quite a while.  I didn't feel like I felt before the cymbalta for a year and half after stopping it.

      So please be very careful with it.

    • MomZor
      Jan. 05, 2013

      Well, things are getting back to normal not better yet, but better then the first few weeks after the injections. I am not sold on the injections, I hope that it changes as I am desperate to get rid of this mirgraine.

       

      Today I have been fighting a level 6-7 migraine all day and I am so tired of being in pain.Frown

    • 1026laurie
      Jan. 07, 2013

      I received my injections from a neurologist that speacilizes in migraines and the first round was 31 injections and I had a very similar reaction.  The 9-10 migraine, nausea, vomitting, flu like symptoms, no fever but did have bouts of chills.  This went on and off for about 2 weeks.  During this period I did make calls to my Neuro and he assured...

      RHMLucky777

      Read More

      I received my injections from a neurologist that speacilizes in migraines and the first round was 31 injections and I had a very similar reaction.  The 9-10 migraine, nausea, vomitting, flu like symptoms, no fever but did have bouts of chills.  This went on and off for about 2 weeks.  During this period I did make calls to my Neuro and he assured me that these were all possible side effects.  He did recommend a second round of in injections according to the recommended Botox schedule, but he did decrease the number of injections to 12.  By the time I got home it started all over again, but to a lesser degree.  After these 2 experiences we mutually decided to not try the Botox again.  I was so hopeful and now I had failed another treatment.  I felt really blue for awhile but have since gotten over it.  I have failed sooo many types of treatments and med changes and combination of meds.  My Migraine specialist and Neuro both had recommended seeing a Pain Rehab MD and she has really helped.  Right now am having some positive stuff going on with Toradol, more from the injection than the pills.  I will take any help I can get.  I hope you can find some comfort in knowing your reaction was isolated, miserable, but not isolated.

    • MomZor
      Jan. 07, 2013

      Unfortunately I can not take NSAIDS. I am completely exhausted by all of this. I am not sure I should try the Botox again based on your experience I am nervous to have that again, it did fade after 2 weeks as well, however, my migraines are not better then before the shots. I currently take DHE 45 shots they do help but they do not get rid of them. 

    • cherie
      Jan. 11, 2013

      I just had to add my two cents - I have done a lot of research on botox injections.  There is an adjustment to the locations of injections that they used to follow.  Drooping was a possible side effect.  Now, according to my specialist and my research I have found that the new protocol should not include any drooping as a side effect.  If...

      RHMLucky777

      Read More

      I just had to add my two cents - I have done a lot of research on botox injections.  There is an adjustment to the locations of injections that they used to follow.  Drooping was a possible side effect.  Now, according to my specialist and my research I have found that the new protocol should not include any drooping as a side effect.  If there is then the shot was misplaced.

      I would definitely question the doctor about why the injections are causing drooping - the location should be adjusted.

      Good luck and good health.

  • Nancy Harris Bonk
    Dec. 27, 2012

    Hello, and welcome to HealthCentral's Migraine Community!

     

    I'm so sorry you are suffering from your Botox injections. The pain you are describing can be some of the potential side effects from getting Botox. We have some experiences from other members you may find interesting which you can read about in this link, members Botox experiences. Teri had...

    RHMLucky777

    Read More

    Hello, and welcome to HealthCentral's Migraine Community!

     

    I'm so sorry you are suffering from your Botox injections. The pain you are describing can be some of the potential side effects from getting Botox. We have some experiences from other members you may find interesting which you can read about in this link, members Botox experiences. Teri had her first series of injections last week and did not experience and residule neck pain. As the Botox wears off, so will the pain.

     

    Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

    We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get there, go to the Migraine home page and look on the left hand side where you'll see a row of boxes. The Forum box is at the very bottom. Click on it and scroll down to the bottom of that page, and you will see the log-in spot. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

     

    Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs on the left side each page, you’ll find a wealth of information – educational articles, tips, quizzes, workbooks, support and advocacy information, and more.

    Do you have questions about Migraine? There are three ways to get answers – through our Ask the Clinician column, in our community Question and Answer Section, or through our forum. Just go to our Migraine Answers page HERE

     

    Our email newsletter will help you stay up-to-date on Migraine and headache news and new information published on HealthCentral's MigraineCommunity. To receive our newsletter, click the “Sign up now!” link in the navigation bar across the top of our site pages or simply click HERE.

    Welcome again,

    Nancy Bonk

    Health Guide
    HealthCentral's Migraine Community

    PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

     

     

    • mom-of2&grad-student
      Jan. 06, 2013

      I'm sorry you've had discomfort with the botox.  I've had four rounds of Botox and it's been an absolute God-send.  My question is whether or not a Neurologist did your injections? I would not have anyone else do them unless they are a Neurologist who treats this condition.  I did have some pain after one injection on an occasion but it was stopped...

      RHMLucky777

      Read More

      I'm sorry you've had discomfort with the botox.  I've had four rounds of Botox and it's been an absolute God-send.  My question is whether or not a Neurologist did your injections? I would not have anyone else do them unless they are a Neurologist who treats this condition.  I did have some pain after one injection on an occasion but it was stopped with a anti-inflamm. patch that the doctor placed on it.  I hope the botox will work for you and this discomfort was short-lived.  It basically stops my migraines in their tracks (along with the help of other medications that I take).  I can eat something that triggers one, feel a migraine coming on, and within 30 minutes it just goes away without any treatment of any type on its own thanks to the botox.  During my period it is different.  It might not go away but migraines are much less severe with the botox.  Hang in there and I hope you get some good results.  

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