Sunday, May 27, 2012

May I share my migraine success with you?

By Sage Thursday, February 09, 2012

I've had migraines since I was six - I learned all my triggers and got pretty good at managing them.  I did lose some days when I was lost to world with migraine and wanted to kill myself a few times from the pain but I coped.  When I hit my mid 40's the migraines morphed a bit.  Where they had been hitting above both eyes now they were almost exclusively on my left side.  I got into the "abortives" and for a spell felt like I had them managed extremely well - almost no breakthroughs and I was able to work through most the headaches.  But then they started comeing like big waves after a storm day in and day out.  I was upping my intake of abortives and I think you know where this is going.  So I sought out a migraine specialist (she herself a sufferer) at Scripps Clinis La Jolla.  She listened hard to me - and picked up a few things I hadn't connected: an old neck injury, deviated septum, sleep apnea to name the most significant.  She suggested I had a lot going on and we'd need to chip away at this.  That made a lot of sense.

 

So to make al ong story shorter, I started getting nerve blocks in my neck.  I got some Botox.  I opted to not get the surgery for the deviated symptom - too many horror stories from others that have.  Most imprtant, I drastically reduced my reliance on the abortives like Amerge and other triptans.  I even stopped taking advil.  I found that if I could take some time and get some sleep I could get out in front of most migraines.  It took about six months but finally I started noticing that the migraines were getting less frequent.  I think the Botox was the turning point for me.  It wasn't an instantaneous fix but a gradual one.  All along the way I reduced my intake of BFIL (Bad Food I Love) - ice cream, donuts, high carbo foods like pasta and worked to make sure I was getting a bit of protein all day.  As a kid I ended up with a migraine every Halloween and most holidays and realized it was the food ... namely sugars and starches that were my primary trigger.  Some storng smell too - so I asked my wife to quit frying onions...forever.  I avoided (and still do) perfume and cologne heads.

 

The upshot - my migraines are better.  Way better.  I might use a Triptan once or twice a month and then plan on likely having a small rebound the next day by planning ahead and making some time to sleep through it with no drugs.  A folk cure helps me a lot: Hot Cider Vinegar fumes -- look it up if you're interested.

 

So after having several bad migrane years I have it under control.  At it's worst I felt like I might need to start thinking about drastic measure like disability and I must confess at times, as I mentioned above, I wanted to end it all permanently.  Really what I had to do was to get out of my own way and stop over-medicating and exacerbating the situation and then deal with some old injuries and some blood sugar issues.  I learned my neck was the source of many of my migaines and by buying an expensive "Swedish Foam" pillow with curves that I can wake up without a sore neck most days.  The nerve blocks and botox got it started and I took it from there.  Now I use a plethors of "folksy" aids to help and it's working.  And I don't know what it is about napping but it's the best cure for me overall.

Anonymous
Susan d'Hont
2/10/12 10:44am

I totally agree with the "systems approach" to managing your individual migraine problem.  I've had migraines for 60 years.  I've seen the choice of meds explode, but guess what, I don't remember doctors directing me to a strict migraine diet that eliminates: tannins, nitrates, tyramines, and sulfites.  Everyone needs to do this as a first step.  Get off processed foods and eat clean.   There are a couple of good websites: www.widowmaker.com for info on tannins.  Do you know that tea with all its tannin can be a strong trigger?  Also, the site for Valley Neurological Headache & Research Center has good lists on "avoid" and "allow" nutrition.  If you read people's histories, often the meds have made them worse in the long run because the drugs can literally further damage brain transmit/receive cells.  I think most doctors jump right to the meds solutions because what else does the pharm industry want to do but make money.  Guess who the pharm industry has a strong bond with--doctors.  I am not against trying medications, but I say that first you must try a natural path and take responsibility for your body.  Regular exercise is also important.   And, keep researching the natural aids that are successful for others.

2/11/12 2:15am

Susan - well said!  It took a while but I've become very jaded about pharmas in general...they have to be thinking about customer retention and what's good for business is bad for you and me.  At this advanced stage of my life (I'm told we never synthsize information better that we we pass the 50 year milestone) I have but one conclusion ... simple is better, always and forever.  By managing my diet and using my grandmother's "cure" for sick headaches (that's what she called migraines) of huffing barely boiling cider vinegar fumes has really made a difference.  I'm sure massage would have fixed my neck as well as nerve blocks ... but I wanted the quick fix.  If only my insurance covered massage!

 

Thanks for the info on the "bad" foodstuffs!

 

Randy

2/10/12 12:23pm

I enjoyed reading your post a great deal--you give very sage advice. Smile I'm another one with 40+ years of migraine life experience, yet I've had to remind myself lately to get "back to the basics" and keep a better watch on my sleep and eating habits, remember to take more breaks for excercise throughout the day, readjust my computer set-up to improve my posture and simply get more rigorous about mealtimes and taking my meds and supplements when I am supposed to.

 

It makes a big difference, and yet I still have to remind myself these aren't restrictions on my life, they are the very actions that enhance my health and happiness every day.

 

Continued good health to you!

 

 

2/11/12 2:31am

Hello Melanie Jane,

 

Thank you for your kind words.  As a Buddhist I've learned to suffer what there is to suffer and enjoy what there is to enjoy.  I've lso learned a degree of control over both. At the risk of soundling like I'm rationalizing I will say, the suffering I've endured from migraines has changed me.  I'm tough!  I had a massage therpist tell me he was able to work on me in ways that made Navy Seals cry.  On the other hand, I'm empathetic and compassionate and am a good person to have around when you don't feel well.  I get it I guess. (I don't love that expression but it fits here.)  Most of all, I have chosen to drink in life... all of it.  Attitude is everything ... at least for me. 

 

I've never shared this, but when I was a kid, and a migraine would hit me while I was sleeping I'd dream (oddly) that I was two people.  One was hurting badly and the other was watching curiously.  I'd wake up and the two would merge (and Mom would give me two aspirin and cup of black coffee) but that duality served to help me get some perrspective ... no, more like "distance" from and dispassion for the immense pain I was suffering.  It may be my "superpower" and it serves me almost every day.  I don't let pain drag me down and live my life with the credo, Act as if.  If I act like I'm happy, I become happy.  Simple!  Thank you William James for that!  Blessings! - Randy

2/11/12 5:43pm

Fascinating about the dream "duality." Many years ago I had an out of body experience where I could see myself sleeping in my bed while my conscioiusness floated up through the roof of my house and up amongst the stars. Up there I realized, not only was I a part of everything in the universe, but that I could feel no pain--oh that was nice. I stayed up there enjoying the view and the feeling of of wholeness for a while but then I realized it was time to go back. As I headed (no pun intended) back down into my body it struck me, "This is gonna hurt!" and it did. That event taught me many things, but one was clearly that my being and my body were not the same thing!

 

On a more mundane level, last night I dreamt I was telling someone in my dream that I had a migraine, and sure enough, when I woke up...I had a migraine. Life is certainly an interesting ride.

2/11/12 11:44am

Hi Sage,

I agree with most of what you are doing. I have been a migraineur all my life also. My "cure", however, has been Topamax. I have been almost migraine-free for more than 2 years and I only take 75mgs at night.

 

I have done everything you did except the Botox; my insurance won't pay for it and it's way expensive. I was drawn to your pic because you have Australian shepherds so we are spiritual kin.

Nancy Harris Bonk, Health Guide
2/14/12 7:11pm

It's nice to see you posting again. And even nicer to know you have a reduction in your Migraine frequency. Nice job!!

 

You are so right when you talk about Migraine being a systemic disorder. It not only affects are brains, but entire bodies.

 

Trigger identification and management is vital in Migraine  - period!!

 

I wish you continued good luck and please keep us posted on your progess, ok?

 

Nancy

3/10/12 11:29am

or I hope it will continue like this.  I was just blessed to be told that I have chronic migraine without aura, with intractable migraine without mention of status migra!!!  Prescribed Topiramate at night and Sumatriptan with aleve and norco 10 for headaches.  What can anyone tell about riboflavin?  Migra-ease?  anything short of chopping my head off?  Thanks for listening.

2/16/12 2:03pm

I have been a migraine sufferer for over 50 years. One of my first memories is having a migraine "sick headache" between 2 & 3 years of age. I told my mother the memory and she could not believe I could remember it being so young. Anyway, I  have 3 or more migraines a month my entire life. Some lasted 3 days. My mother was a sufferer and knew the symptoms. Of course I always had a migraine "that time of month for women". I later kept a food diary and discovered my triggers; Weather changes like rain, Smoked meats, MSG, Milk Chocolate (dark chocolate,baking chocolate and cocoa do not trigger for me), red wine, dark liquor, fruit cake, strong odors (gas, paint thinner, etc.) bright lights especially strobe lights and let's not forget STRESS. I found keeping to a regular sleep routine helps. Never sleep late, never go to bed late. Don't skip meals. Don't drink excessive caffeine. I was managing my migraines with Treximet, but the insurance co.now refuses to cover the cost anymore so now I am on sumatriptan which main side effect is nausea, like I am not nauseated enough by the migraine, so I have to take promethazine to help with the side effects. I also have occular migraines and experience aura's before and during the migraine. So I am very sensitive to light and noise. but all in all, I do have a better quality of life now that I am more aware of how to prevent the pain before it starts. I am now going on 62 years of age and still trying to control the pain. Hopefully, future studies will find a better treatment for us sufferers.

By Sage— Last Modified: 03/10/12, First Published: 02/09/12