multiple diseases

Hi, I am very curious as to what made you go in and how did they come to that conclusion?  You sound very much like myself.  But I have not been dx with a title yet...just tried a lot of meds..some work and some don't touch it.  Wanna chat?  msg me...

Hey, I have always had pain throughout my body. I can't remember not being ill. I hated that. Especially, when I was in High School. I could not graduate on time because, I missed so much of school. Crazy, eventhough I had a C avg.

Doctors could not give me a diagnosis because they could not find anything, they even tried bloodwork! I continued on through life then started having knee problems. I was diagnosed having a birth defect in both knees. My knee caps were not aligned properly. The kneecaps hung off to the side instead of in the middle of the knee. I since have found out that children have this problem If a parent has Lupus. My mother was not diagnosed with lupus until I was about 16 years old. My Mother,Aunt,Uncle and a Great Aunt have lupus. My mother and uncle also have Fibro. I have also found out that it is very common for a child to get fibro if a parent has lupus. Anyway, after my first knee surgery and 4 people in my family passed (all of these occurances happened consectively). I was very depressed and virtually had a nervous breakdown, I even lost my job. (I had a very good job with great benefits) I also got divorced. So all this trauma made the fibro worse. My orthopedic doctor told me to see a Rhematoligist. Because, of all the unexplained pain I was having. The rehmatologist diagnosed me with fibro because I basically had pain from head to toe. The pain would appear and disappear for no reason. I had pain in 9 out of 11 pressure points. These pressure points were a general fibro checklist for doctor's to diagnose. I had had pain for over a minimum of 3 months. I also had lupus in my family. (that symptom does not nessecialy have to exsist for a fibro diagnosis) My sed rate was elevated. (sed rate is a test given with bloodwork) I continued to have pain and fatige. It just kept getting worse. My migraines were occuring almost daily. (People with fibro usually develop migraines. I have also had those since birth)I am the only person in my family who have migraines. I seeked out an Attorney who could help me get disability benefits because I was missing so much work. I stayed in the bed literally everyday because I could not function. I could not concentrate. I started losing my memory and could not take a shower by myself. I was too weak.I recieved the disability about 1 1/2 years after my diagnosis. I was considered disabled because of the daily migraines and fibromyalgia. I had 2 other Fibro diagnosises from my MD and my ortho doc. My MD doctor told me I have the worst case of FM in the entire practice and they have 3 locations. I know take life one day at a time. I pray very often. I cannot be a dependiable person due to the fact I never know how I am gonna feel. It's very depreesing having a disease that is so unpredictable.

I know this msg. was long. But, I wanted to answer your question as if I were curious.

Any other questions, I am here to help you any way I can. I still have questions about this disease.

Wes

I sure hope this message has spell check! LOL

Has youd doc ever mentioned Lupus to you? Lupus is also a autoimmune disease.

I have migraines as well. I would never wish that pain on any enemies I might have.

Wes

Because TM can also be a symptom of Lupus I have been tested for it and a host of other autoimmune nasties. All were normal except my ANA titer 1:32. My Rheumatolgist doesnt put much faith in ANA tests. Both he and my neurologist believe the ANA is because of the TM. My last Rheumy visit he retested everything all over agin and all is well. He said I have osteoarthritis. He thought I was a bit young to be having trouble with OA ,I'm only 35yrs. But the TM can cause fatigue,joint issues and all the normal crap that comes with autoimmune diesease.Pophyria runs in my family and it also can cause TM. I was tested for that in the beginning too and it came back normal. It is extremely rare and there are only 6 labs in the country that tests for it correctly. My neuro is concerned that my samples were sent to a proper lab. He wants me to be re-tested.