Hi out there! Well its offical. I have VKH syndrom. It attacks the eyes and the autoamun system. It is treated with heavy steriods, antibotics, and bone desity meds. I went to an appt with a Rumatologist yesterday to get more information and treatment. She was very knowlegable in the syndrom. I had a chest x ray and bone densty tesst ( because of the high dosage of steriods Im on). I have to take Fosamax once a week, Bactrine three times a week, and the 60mg steriods. The doc said that I will be on them for at least 6 months. 6 months, WOW! My mouth just dropped on the floor. The full treatment is 2 years if things dont get it together. Go to this web site for more information on the symtoms http://rarediseases.about.com/od/rarediseasesv/a/vkh.htm. Go to symtoms and that is what I went through three months ago and about a week ago with my right eye, but we caught it fast enough to head it off. I tell you it scares me to know that I have this and one of my children could have it. But there is no pre test to give them to see if they carry the gene. I have been wearing glasses since I was 2 and life has been rough every since for me. I get yearly check ups and had had one a month before the symtoms even started. I do have to say that since we caught it so fast with the second eye, I was able to get enough steriods in me to pass the eye test for my driver's lic. Shocking. But I need my state id and driver lic. Can you imangin not being able to function with sight or being able to drive. Im doing ok now. I can read things off the tv now, I do puzzles, needle point, and read magazines. But what a scary thing to go through right now. Three months of waiting to get a diagonis and now its going to be a long road to recovery. Read the symtoms. They do enclude headaces and for those of you who did not read where did my eye sight go, I had a migrain for 5 weeks before my eye sight went black. I have since regain light and some eye sight in the left eye, yepi! The right eye is doing great. Thanks for reading!