Hi out there!  Well its offical.  I have VKH syndrom.  It attacks the eyes and the autoamun system.  It is treated with heavy steriods, antibotics, and bone desity meds.  I went to an appt with a Rumatologist yesterday to get more information and treatment.  She was very knowlegable in the syndrom.  I had a chest x ray and bone densty tesst ( because of the high dosage of steriods Im on).  I have to take Fosamax once a week, Bactrine three times a week, and the 60mg steriods.  The doc said that I will be on them for at least 6 months.  6 months, WOW!  My mouth just dropped on the floor.  The full treatment is 2 years if things dont get it together.  Go to this web site for more information on the symtoms http://rarediseases.about.com/od/rarediseasesv/a/vkh.htm.  Go to symtoms and that is what I went through three months ago and about a week ago with my right eye, but we caught it fast enough to head it off.  I tell you it scares me to know that I have this and one of my children could have it.  But there is no pre test to give them to see if they carry the gene.  I have been wearing glasses since I was 2 and life has been rough every since for me.  I get yearly check ups and had had one a month before the symtoms even started.  I do have to say that since we caught it so fast with the second eye, I was able to get enough steriods in me to pass the eye test for my driver's lic.  Shocking.  But I need my state id and driver lic.  Can you imangin not being able to function with sight or being able to drive.  Im doing ok now.  I can read things off the tv now, I do puzzles, needle point, and read magazines.  But what a scary thing to go through right now.  Three  months of waiting to get a diagonis and now its going to be a long road to recovery.  Read the symtoms.  They do enclude headaces and for those of you who did not read where did my eye sight go, I had a migrain for 5 weeks before my eye sight went black.  I have since regain light and some eye sight in the left eye, yepi!  The right eye is doing great.  Thanks for reading!