Saturday, February 11, 2012

Going off Topamax

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Eva

Eva

Fri, November 09, 2007

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Now the Another week another Nerve block will fit, because next week I have to go again. Although my doctor said we will try six of them, now he is saying we will try 8 (will see what he says after that). I don't mind, I just really though they would work. I am still optimistic, why not?

The good news is that I can go off the Topamax, after the 45 min visit he said that I really have trouble with finding words and although funny, this is not the medication for me (he is really cool doctor, and funny).

Oh, and he really did not like the fact that I lost vision in my left eye during the migraine few weeks ago. Since it was during the migraine phase, not during the aura phase, it does scare him a bit. He talked about a few options, sending me to another specialist for a consult, MRI.

We decided on adding magnesium and B2 to the Zanaflex and Omega fatty acids that I take. Oh, and I take Strattera for ADHD, which is on the list of preventives. For now, that is it, no other preventive, but most likely prednisone in the future since what else?

I am just really glad to be off the Topamax, because to be in so much pain and this "stupid" was a little too much. Now, I would love to get back to normal, so I can get back to studying.

 

11/ 9/07 2:14pm

Eva, it sure sounds like you're making the right decision (going off the Topamax, I mean).  Geez--it's amazing how the wrong medicine can be SO wrong....

 

Won't it be nice to be able to complete a sentence again??Big Smile

 

I know it's frustrating, but keep smiling!Big Smile  And stay strong!  There is a medication combination out there that will help you!!!

Heartjenny 

11/ 9/07 3:59pm

Sure there is, and I like the idea of trying the supplements now.

Btw is it only me or is the smiley in pain?

Anonymous
want to be smart again
11/21/07 1:15am

Hi!

 

I have been on Topamax for almost a year. I have been very happy with the weight loss. Now down to a the slim size I was in high school. Also was happy with the anti-anxiety effects. I felt pretty calm all of the time. Although at times, I could get more irritable than was normal for me. I also found that I became a big mouth. That it was easier to talk than to have to listen.

 

So...now that I have found that I completely can't concentrate, forget words, and feel like i sound like an idiot. I've also lost things about me that used to make me me! I used to know every word to almost every song I ever heard. Now I have a hard time remembering all the words to my favorite songs. I used to never use spell check. I never made spelling errors. But now, when I read what I have written, I can't believe what a disaster it is.

 

My concern is...will I get my cognitive functions back when I stop this medication? I am ready to deal with the weight stuff and the anxiety, but want to be smart again! I am getting by work barely by my old reputation, but when i go to stores, i feel like people think i am an idiot.

 

Does anyone have experience with loss of cognitive ability on this medication and does it stop with cessation of the drug?

 

Thanks!!!

11/22/07 12:19am

Hi :)

Yeah, these side effects will go away after going off it. It might take some time, but the brain should get back to normal.

Anonymous
Donna
1/ 1/08 11:26pm
Wow, I was searching for someone who was having the same symptoms as myself. I really want to get off the meds also. How did you do it and can you tell me more about what you switched to. I am concerned about the longterm effect that Topamax can leave. Have you heard? I have been on it for a year and a half. For migraines.

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