On Sansert

By Eva Wednesday, July 02, 2008

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Hi everyone, it's been a long time since I posted anything. I changed everything I do, so computer was out of question except for checking emails, now I am fine with being on the net. We also had some family issues which needed to be dealt with, and everything is fine now.

I decided to drop all of my summmer courses to have time to do something about my health. Since I stopped going to school the number of my migraines decreased, I guess all the traveling and perfumes everywhere and the stress were not helping. I had to go off the Notriptyline because I had trouble passing urine, I also gained around 15 pounds.

I started swimming every morning, a kilometre or so, going to sauna, doing pilates and yoga, biking. I eat home made only, no preservatives, no aritifical anything. Well, I always ate that way but now I am even more strict about that. I have a glass of wine every evening.

My doctor put me on Sansert, ok, I know it has a bad rep, I know the side effects are horrible, but for me it was wort a try. I've been on it for 2 weeks, and no bad migraine since then. I do get my normal daily things, but even those are much milder and aren't around for the whole day.

I will make it a habbit again, to post and read everything. I hope everyone is alright and feeling wonderful.

Sleep and my Migraines

Comments (7) | Add comment

Eileen Gray

7/ 3/08 3:34pm

Oh Eva! I am so happy you posted! I have been thinking about you and hoping you are doing well!!!!

Teri and I just got back from Boston and we ran into a doctor there that says he still uses Sansert. His feeling on it was that he got a much worse rap then it really has. He said when he has patients on it, he checks blood work and things of that nature very very frequently to make sure there are no issues with anything.

Oh honey it's so good to hear from you!!!! I can't wait to see your name popping up in the forum again!!!!!

jennyc

7/ 4/08 7:23pm

Hi Eva,

I'm glad you came by! We've missed you around here!

I sure hope the Sansert helps your migraines! I'm sure you'll be very careful while taking it...extra blood work will certainly help to reassure you that your health is OK.

Please take care of yourself! Check back again when you have a moment!

jenny

flo

10/ 4/09 9:46am

hello .

i have been on sansert for fiteen years and headache free. it is now not available in canada where i live.there is no replacement for the drug . i have been weaning myself off .so far so good .but yes i am afraid.

MyHeadHurts

7/ 7/08 3:24pm

im so happy you decided to put your classes on hold and focus on your health. we've all been thinking about you and we're so happy to hear you're doing better! classes will always be there, you can always go part time! good luck with everything!!

Anonymous

2/ 4/09 9:00pm

Hi,

I just found your blog doing a search on Sansert. I live in Texas, so I was supposed to get mine from Canada, but they were out, so I'm ending up getting it from England. I have not yet received it in the mail.

My doc was a little reluctant to prescribe it to me, I had found out about it through a friend who used it many years ago for clusters (with success).

He finally wrote the prescription, and I sent it to the pharmacy in Canada who is importing it for me. However, NO ONE told me I could not use the abortive medications if I do get a migraine. That would suck!!! Does it say this in the prescribing information that comes with the med? Did your doctor tell you? What happens if you do take Imitrex or one of the triptans?

Also, how often are you supposed to get blood tested? They didn't tell me that either. I knew you were not supposed to be on it for more than 6 mos. Please keep me/us posted on your progress with this drug. This is sort of a last resort for me, as I'm sure it is for many, esp. people living in the US who have to jump thru hoops to get this medication.

Ann M Patterson

Austin Texas

Eva

2/ 8/09 12:11pm

Hi,

I am already off the Sansert. It caused a veru high heart rate in me, up to 150 bpm at rest. I was told to go off it by my doctor but nobody told me how "fun" it would be. In my opinion they should have prepared me for goiong off it, it would save me from going to the ER many times with very scary symptoms.

It took me about 3 months to feel normaln again, my heart rate is much better now. But however scary, I think it still helped me a lot.

This medication constricts blood vessels, and so do the triptans, so it is quite dangeroud to take them together. A pharmacy should not give you both prescriptions, they should not give you a triptan (or migranal I think) when they are giving you sansert. So ask your doctor as this is very important.

I do not think you need a blood tests during the treatment. I needed an echo cardiogram to check my heart before I started it, and also after I was done.

Eva

10/19/09 3:49pm

Hi,

please do talk to your doctor. Everybody told me not to use triptans, my family doctor, my specialist, my pharmacist. You also can't use Migranal or any ergotamines. I think they both constrict blood vessels and you just don't want to have too much of that :)

But do talk to your doctor, so you are both on the same page as far as the sansert goes, will all the tests and so on. He is the one that should know these things.

Good luck

On Sansert

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