Here are my thoughts on my first full week on Amitriptyline. The back story is, I've been on Topamax for over a year and a half now, it's not working. Finally found a neurologist who is listening to me and working with me....it only took me 5 previous doctors to find this one!
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Good to hear from you!
Winnie
Monday, February 04, 2008 at 11:22 AM -
Sleep
Cindy
Tuesday, February 05, 2008 at 09:23 AMEileen,
Changing medications is so tough. I am in the process now. I'm was having side effects from Topamax the neuro didn't like so that is being decreased and another anti-seizure medication is being added. So I'm getting mild migraines frequently. The upside is my brain is less fruzzy.
I am also working on my sleep. It's been a problem for a very long time and my neurologist has me working on it or will put me on drugs for it. I really don't want another drug so..... I have been amazed that the "sleep hygiene instructions" given to me by her and the hypotherapist while not rocket science, have made such a difference, if I will follow them. The better quality rest does help my focus greatly. So maybe it wasn't all due to the Topamax. I would be happy to share with you the detailed information if you would like. Nancy could probably direct me on how to put the inforamtion on the site for all to use.
Good luck Eileen.
Cindy
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I'm keeping my fingers crossed for you!
jennyc
Tuesday, February 05, 2008 at 01:27 PMHi Eileen!
Maybe as the Amitriptyline increases, your migraines will get much, much better! Let's hope you just haven't reached the perfect level yet.
I think about the side effect thing, too. In fact, I've stopped reading the patient information that comes with my new meds. (Eek--I'm not sure if this is a good idea or a bad one...) If I feel generally strange or see my behavior changing, I'll pull it out and take a look at it. But I figure things are going OK if I don't notice anything too dramatic. Also, I've noticed that my specialist and pharmacist are both very good at telling me about what side effects I ABSOLUTELY should watch for. That makes those patient info pages less important to me, I guess...
Here's hoping things will get LOTS better for you very soon!!

jenny
replyre: I'm keeping my fingers crossed for you!
Eileen Gray
Tuesday, February 05, 2008 at 01:52 PMMaybe the not reading the side effects till something comes up would be a way to go - then I can't blame the excessive eating on anything by myself.
Thank God for suger free pudding - that's all I got to say!

replyre: re: I'm keeping my fingers crossed for you!
Laurelin
Tuesday, February 05, 2008 at 05:41 PMI always read all the side effects but I've wondered if I am messing myself up by anticipating them. Sometimes I think I should let my DH read them and have him monitor my behavior instead. In fact, I have starting having him monitor me since he was the one who had to say "hey, you have to stop taking this Topamax stuff because you just stared at the way for 30 minutes."
But I also think that just by putting yourself under close observation that you will report more effects than you would if you weren't paying attention at all. Like if I'd had a better metabolism like my brother who eats a bunch of junk and never gains weight, I wouldn't have noticed that the drugs make me hungry all the time.
Back when I didn't think about what I ate at all, it was a nightmare for me if I didn't read the insert. A couple of years ago I was on prenisone and I didn't realize that it made me hungry all of the time. And so I was eating and snacking all the time and not even realizing it. (In college food would randomly disappear out of my fridge from friends so didn't notice the food was dwendling faster either). It was nearly 30 pounds later when none of my clothes fit that I noticed I was eating way too much. And no one even said anything to me about it - everyone thought that I was pregnant! It was partly my fault for being unobservant and having no food will power to speak of (esp. with chocolate). But when I had to have it again last year I knew to tell everyone and myself not to let me eat all the time and just ignore my tummy and I only gained a couple of pounds.
I just think to myself in a trial month anything can happen. After a couple of weeks, some side effects wear off. Maybe those are in my mind and maybe they weren't, but if they've worn off or I know how to keep control of them then it doesn't really matter either way.
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arg side effects
MaxJerz
Wednesday, February 06, 2008 at 01:37 AMThe craving sweets thing was/is definitely a problem for me on nortriptyline. I've tried twice to increase my dose to 50 mg but just can't get there. I'm back down to 40 again. I've posted about this a bit over in the forum, but the main issues I've had are constipation and increased appetite/craving sweets. The constipation I've had since I started the nortrip at 10 mg, but is tolerable with the magnesium supplement I also take.
The increased appetite/sweets issue came on suddenly and with a vengeance. For most of the past year and a half I've had moderate/severe nausea and vertigo, even when my migraine pain isn't too bad. So some increased appetite was fine. But I felt like I would eat myself out of house and home before I could get things under control. The one thing that does help me is to try to eat sweet fruit instead of junk food. (I've tried to severely limit my sugar intake as sweeteners of any kind are a stackable trigger for me - diet or sugar-free anything is out because of the chemical sweeteners.
This comment is much longer than I intended it to be. Oops! Hopefully the side effects will calm down for you soon. Increased appetite doesn't sound like a bad side effect until you actually experience it.

Let us know how it goes. I'll be crossing my fingers for you!
replyre: arg side effects
Eileen Gray
Wednesday, February 06, 2008 at 08:00 AMWell, from what I understood from the doctor, I won't be on it all that long. I guess I'm just on it to get the transformed migraines under control, then we are switching to a different preventive all together.
I hope that's the case...I could be wrong. I'll know in March when I go back.
Thanks for the comment!

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Effects of Amitriptyline
domestictech
Saturday, February 09, 2008 at 08:32 AMEileen,
I have been on Amitriptyline for about a year now. Unfortunatley for me I did not see any improvements in my Migraines untill I was taking it for about 2 months. I was also perscribed Inderal along with it so I don`t know if it is really the combonation of meds that helped so much. I have to say the cravings for sweets is out of control at times. I have always liked sweets so it is hard to say how relevant it is. My neuro says that the low amount of Amitriptyline I am on (10 mgs) is not enough of a dosage to chalk it up to my weight increase. I did not gain a ton but enough to change clothes size. I was so happy to not have a Migraine every 3 days or so that I dealt with the side effects regaurdless. I do know if I exersise more I can control the weight and cravings somewhat more. You could be on to something when you talk about not reading the side effects pamplet that comes with the drug. My neuro also said he would consider putting me on Topamax. I heard of all of the side effects but It may be worth a try just to stop the sugar cravings and drop some weight.
Best of luck to you and hang in there,
Khrystaa
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Heather
Sunday, February 10, 2008 at 12:02 PMI used amitriptyline for migraines for only a short time at a low dose. I was a walking zombie!
It was awful I took the amitriptyline at bed and it took almost 20 hours to clear my system and feel half way human again. The only good thing was I slept like a rock. I went off this medication very quickly. Can't work being a zombie! H
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Eileen,
It's good to hear from you. I started a new daily drug, Aciphex, for acid reflex and my mail pharmacy changed my birth control to a generic at about the same time. I suffered two migraines almost immediately, but have gone back to the one or two a month at the end of my period. I don't know how long you have been on the Amitriptyline, but my feeling is to give it a chance for a month or two. Unless someone who knows more about all this thinks otherwise, of course!
We began renovating our kitchen, which has caused me many sleepless nights for many reasons. That is usually a trigger for me, but I haven't had a migraine because of it. I am continuing with Bikram's Yoga, upper and lower body strength training, and massage therapy. I think those things, along with a reasonable diet, have helped. I allow myself one chocolate item a day - a small bag of Famous Amos choco chip cookies or a candy bar. Nothing wrong with a little sweet now and again - enjoy!
Winnie
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