My Pain in the Brain

By Guido Monday, March 12, 2007

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I suffer with chronic status migraineous. I am now disabled from migraine disease. About 4 and 1/2 yrs ago my episodic migraines turned chronic. My medicine list of preventatives and triptans and others is still ongoing. My motto.... It is what it is and be positive.

Daily mental note: Ok! so I may not be able to do this today but celebrate in what I can do....

Yoga, meditation, visualization, Tai chi, accupressure points, attempting to manage controllable triggers/pain management is exhausting. I know there is hope. I'm in a clinical research study and pray, pray, pray this works.... I do not explain my disease to people at this point, takes to much precious energy. Ignorance of a disease does not mean it does not exist..... Insurance!!!! What's that? OH! yeah, a person pays premiums for medical health so your coverage can deny your much needed healthcare needs... Even if both your neurologist who sub-specialize in migraines recommend certain medical needs. Ok! Ok! be positive.....

Prescription drug care

Comments (2) | Add comment

Rocky

3/13/07 12:09am

You say you are now disabled with the migraines now, how hard was that for you to do? I seem to have a migraine pretty much all the time and have been diagnosed with status migrainous almost 4 years ago now. Just when I think my Doc and I hit on something that will work, I get another doggone migraine that lasts forever. My employer is getting a little fed up, I love my job, but sometimes I think if I didn't have the stress of worrying about that, I might be able to save the energy for handling the migraines....

Guido

3/13/07 11:56am

I have suffered w/ migraines most of my life. I believe since I was about 8 yrs. old.

When I started working if I was absent from work for migraines I used the

the Family Medical Leave Act to have my absence documented and not used against me. Mind you, who knew this would mean anything after 18 years of working for the same company. My employer was extremely strict and unsympathetic to any illness absence.

The last year I was working for them which was horrible I was basically loosing my vision, (unable to drive myself home), fainting in the bathroom, regurgitatiing violently and I my employer did not care.

How? By the grace of God and I paid for disability insurance that finally approved my disability. Both my neurologist and I completed medical forms, sent medical documentation, followed process until I was advised I was approved. However, my doctor, did not let me return to work from the moment he said, I could not return to work as I was disabled w/ a neurological disease - chronic status migraineous and if the human resources department had any further ?'s to contact him.

I have not worked for almost a year in a half, thinking/praying/hoping this would relent and I would start controllng them.

Alas, no luck.

Hope this helps......

My Pain in the Brain

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