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Winter Holiday GuideEnjoying the Holidays Despite Migraines and Headaches --> Info for you...

Why do some doctors treat you like you're crazy?

Laurelin

Laurelin

Wednesday, January 09, 2008
View All of Laurelin's Posts
Right now I'm waiting to get in to see a specialist...so all I've got is a new GP.  My last GP closed her practice recently and unfortunately I don't even have a copy of my records from her office yet. My last GP and I had been struggling for months to find a preventat...
  1. Do you
    Nancy Harris Bonk
    Wednesday, January 09, 2008 at 03:06 PM

    mean a neuro-opthamalogist? I was wondering when the last time you had your eyes checked. This doctor should be able to tell you about your double vision.

     

    Maybe another search is in order for a different GP. I know how trying it is to find the right doctor, but when you do it is well worth it.

     

    Hang in there and let us know how the eye doctor goes.

    Reply
    re: Do you
    Laurelin
    Wednesday, January 09, 2008 at 03:42 PM

    yeah, I think that is it.

     

    Actually, I had my eyes checked last week and was fine, at even a change in my perscription.  But that was before the double vision problem started.

     

    I saw the person I normally see who gives me my glasses (optomitrist) yesterday and he couldn't find anything wrong with me, dilation and fancy machines included, but hopefully this other dude will figure it out.

     

    not sure that he will be able to figure out the ear ringing and other symptoms (in last post), but I am willing to try anything and see whatever specialists as long as they don't treat me like the current gp - migraines are invisible, I accept invisible diseases, it frustrates me that some doctors don't... but all I can do is move on.

     

    At least through her I got the referal to the specialists (insurance won't let me see one without the refereral).. so I guess it was not a total loss.

     

    I don't have the appt. until monday so I guess that I get to spend more quality time with my screen reader.

    Reply
    re: re: Do you
    Laurelin
    Wednesday, January 09, 2008 at 03:44 PM
    I meant to say not even a change in my perscription.
    Reply
    re: re: Do you
    Nancy Harris Bonk
    Wednesday, January 09, 2008 at 04:18 PM

    I didn't pick up on the ringing in your ears in your earlier posts. Is your head pain more pressure like or Migraine like? A condition called Idiopathic Intracranial Hypertension (fomerly called Pseudotumor Cerebri or PTC,) has tinnitus (ear ringing), pressure band like head pain, and possible vision issues. The only way to diagnose this condition is with a lumbar puncture. Not all patients with IIH have papilledema, swelling of the optic nerve, which can be seen through an eye exam. Teri and I have IHH but do NOT have papilledema.  Click HERE for more information on this condition and let me know what you think.

    Reply
    re: re: re: Do you
    Laurelin
    Wednesday, January 09, 2008 at 05:40 PM

     I haven't heard of that before.

     

    Sometimes when my head hurts it is the migraine standard type pain with which I am fairly familiar.

     

    Sometimes it is across my forehead and behind my eyes and feels pressury just like a sinus infection feels.  But my old dr. realized that wasn't what it was after 3 rounds of antibiotics didn' work and my sinus ct scan was clear.  Those started a couple of months ago. 

     

    Sometimes I get one where it just feels like my whole head is going to explode - and the imitrex which was oh so effective before doesn't touch those at all. 

     

    I am not sure that any of those are the right kind of headache but a lot of the other symptoms sound really familiar. 

     

    I also noticed that one of the references was to an article about nasal fluticasone propionate which, now that I think abot i, I started taking intermittently about the end of Sept. and more regularly in the last two months.  It was last month that I started to get crazy unexplained headaches everyday.  I think the first thing I will do is go without  it for a while and see if that helps me at all. 

    Reply
    re: re: re: Do you
    Laurelin
    Friday, January 11, 2008 at 10:24 AM

    Nancy -

    As far as IIH goes I've got the headache (pain killers can mask it a little but don't make it go away, tripans won't kill it either)

    double vision

    nausea

    tinnitus

    migraine attacks with unexplained triggers

     

    and since my last post I will add pain behind the eyes and neck pain.  (I had the neck pain for a while but I was thinking that I was just sleeping wrong or something and didn't even think to list it as a symptom.  Sometimes I guesss I get in my own way...)

     

    In your experience with this does the intensity of the symptoms kind of wax and wane?  Like sometimes the ringing in my ears is so loud I can't hear anything else and other times I barely notice it.  The info I read doesn't really say if the level of symptoms is contstant all the time or not. 

    Reply
    re: re: re: re: Do you
    Nancy Harris Bonk
    Friday, January 11, 2008 at 10:46 AM

    "They" say that the symptoms and their intensity can wax and wane. Neck pain is also common with IHH. Have you seen this article on  Pseudotumor Cerebri (IIH) - The Basics? If it is a repeat, please forgive me.

     

    Another good spot for information on IIH, is the Intracranial Hypertension Research Foundation.

     

    Let us know if you'd like more info, or have more questions, we are here to help!

    Reply
  2. How AWFUL!!!
    Kathleen
    Thursday, January 31, 2008 at 04:02 PM

    I get so ANGRY when I hear about Dr.s who dismiss migraine sufferers as exaggerating, or drug seekers. I am in fact the OPPOSITE! I HATE taking drugs! My husband used to have to BEG me to take my migraine medication (not preventative, but treatment type), I hated taking it because it made me too groggy to function. BUT I got to the point where like you my headaches became almost daily (about once a week, if I'm lucky I do NOT have a headache). I am like you searching for the perfect preventative, a balance between the migraines and the side effects (which I agree lots of them are too much to ignore). I am also a mom (of two) who after a (short) career in the military, a few years as a stay at home mom, has decided to go back to college to get my degree. I am a 4.0 student, between classwork and being a mom (my husband is in the military and is currently deployed, so my children have only ONE parent, and I do not live close to family) I don't have time to deal with the headaches OR the side effects of the meds.

    To your situation, you NEED to get a different GP (again), you should also write your current GP a NASTY note about how you have been treated for migraines before by a respectable practioner, so you are NOT exaggerating. You need to tell this GP how you have felt disrespected and ignored by her, and be as nasty to her as she was to you. Tell her if she was well informed as a doctor she would KNOW that migraines are disabling, they PREVENT you from living a normal life, they can ruin your career and disrupt your family life, and HER job as a doctor is to IMPROVE your quality of life. You need to stand up for yourself!!! I would also send a copy of your letter to the head of her practice (her boss) if she doesn't have one ask her secretary (who had obvious sympathy for your situation) who to report her to, lack of treatment is just as serious as treating a patient with the wrong medicines, or a misdiagnosis, and IF you were to lose your job because you did not have the proper documentation to support your diagnosis as a migraine sufferer your GP would be RESPONSIBLE for that! I'm not saying sue her, (because I think Americans are a bit too lawyer crazy and "sue-happy") BUT I DO think you need to consult your employer about what would happen if you weren't able to work (after you use  up your sick days), get documentation to take to your GP (if she's smart she will be able to put the connection together that if you are not properly diagnosed by her that you could lose your job, and that would be HER fault). Personally I would look for a new GP, even after you have made your case to the current GP, having her treat you (under hostile conditions, whether SHE continues to be hostile, or she feels threatened by you) would not be the most beneficial to YOU! You need someone who is willing to work with you and understands (and sympathizes) your needs. Telling your GP that you are interested in a PREVENATIVE, so that you do NOT have to miss work, and so you do not have to take drugs (during an attack) that leave you feeling unable to function is important to you. It makes them realize you are not in it for the attention or the strong drugs. You need to make the GP realize HOW the headaches affect your daily life. Doctors KNOW what the classic symptoms of migraines are, but in order to relate the disease to you they need to know what your experience does to you. For me even though my daily migraines are not severe (I DO experience severe ones on occassion), they affect my life severely! I am more likely to snap at my children and husband (usually for making noise that under normal conditions wouldn't bother me). It makes it hard to concentrate, and being a student concentration is important, a drop in my grades could mean I lose my scholarship! Relating your symptoms to your life make it harder to dismiss them as insignificant! I LOVE mentioning my 4.0 gpa, it shows my doctor that I am a dedicated and hardworking student, and that school is important to me! If you CANNOT get another GP (which I HIGHLY recommend) try having your husband go into the office with you during your next visit (maybe he is more assertive than you are?) having a witness to your headaches/migraines and the effect they have on your life will make you harder to dismiss. Another tactic (which I HAVE done) is if you feel you have not been "heard" as you walk out the door make another appointment, the doctor will get tired of seeing you for the SAME thing, if she expresses that she saw you before for this problem, say "Yes, but apparently you didn't hear me the last time I was here so I felt the need to repeat myself, I don't mind repeating myself until I'm heard!" Hopefully you CAN get another GP and don't have to resort to wasting your time with multiple visits, or leaving without answers or treatment. Best of luck in getting compassion and treatment!

    Reply
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This animation shows one of the key causes of pain during a migraine--changes to the blood flow within the brain.

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