Well,I had my appt with the high-risk OB. He took a few minutes to "warm-up" and then he was very nice. I took my husband with me so that I could be sure and be at the appointment, even if I didn't feel well that day, and it was good for Chris to hear what the doctor had to say about the possibility of us having kids soon.
The Dr. looked at each of my meds (and there are about 7 dailies and about 10 more possibilities on an as needed basis) and he looked everyone of them up in his book--don't know what it was, it wasn't the PDR because he used that some too, but this was the biggest book I have ever seen and the smallest print I have ever seen. But, he looked up every single one of them, even the ones he had used before in pregnant women, just to read the pertinent info to us and see what we thought about it. I just thought it was so nice for a doctor to want us to have that much information about every single thing! You know how some docs want to be the only one who knows anything so that they can never be questioned? This guy wasn't like that!
The basics of the whole story are that everything I am taking daily, except for one med that helps me sleep, is relatively safe. He suggested that I not change anything about my treatment right now, and then if I get pregnant, we can see how the hormone changes affect me then, and come off meds if it makes sense from a migraine and pain standpoint. He also said he thinks it is fine for my regular OB to treat me, unless she is uncomfortable with me taking that amount of medicine or of course, unless I or the baby develop problems after conception.
I have an appointment with Dr. H, who is my regular OB, next month, to discuss all this with her and then hopefully have my IUD removed. I am SO HAPPY to have the IUD removed. It has caused extremely heavy, painful periods (on top of the migraines I always get around then) and I will be very happy to go back to life without it. It's a testament to how much I haven't wanted kids until now that I have had the IUD this long! I do worry a little about the removal process, because it hurt more than I expected when she put it in, but I figure, if I can't handle that little IUD coming out, then I sure shouldn't be thinking about childbirth! 
LOL!
I will keep you posted as to what happens next. I think I will definitely want to come off some meds when I get pregnant, but at least I don't have to worry about that right now, and then, if I do struggle with my migraines during a pregnancy, at least I know I can keep this treatment plan that has worked fairly well without hugely increasing any risk to the baby. It's just good to have all the info, you know?
Hope you are well!
Julie
Julie,
I was so excited when I started reading your post. I am 27 and healthy except for approx 12 migraines per month. My husband and I would love to have a baby, but my ob gyn stated the only safe drug to be on during the pregnancy was tylenol w/ codeine. I tried taking it for a couple of migraines. It was like eating candy...not effective at all. So, right now we're just at a standstill. I know I can't go 9 months without taking my medication when I get a migraine. I wouldn't be able to function. Maybe I need to go to high risk ob gyn like you did. I was taking about 7 pills a day, but am down to only one preventative right now which is inderal la. Otherwise I'm just on supplements. Co Q 10 enzyme, vitamin b, and magnesium. I also have imitrex, relpax and a shot of DHE when needed to get rid of the migraine. My normal neurologist actually screwed me over royally. I went off of my birth control pill to see if it had any effects on my migraines. Before I was on birth control, I had really irregular menstrual cycles. Well anyway, I went off of the pill and skipped a cycle. So my dr. thought I was pregnant....guilty until proven inncoent I guess....He didn't care that I had a history of irregular cycles, he was convinced that I was pregnant and made me quit 4 medications cold turkey. No tapering off, which was what should have happened. I was so incredibly sick for a whole month. Dizzy, lightheaded, crying, nausious etc. I missed 2 weeks of work. Turns out I wasn't pregnant...like I told him. My husband and I decided that we did want a baby and when I told the neurologist he wouldn't even see me anymore. He wanted my ob gyn to take over my case. So I was left hanging with no migraine meds for a while. What a nice guy!! I am now going to Mayo clinic and hope to get some answers there. But they pretty much told me the same thing. That I could only take tylenol w/ codeine. Sorry this is so long. It's so nice to meet someone who is going through the same dilema. I'm glad you have doctors that are willing to let you stay on the class c drugs. Mine won't condiser it. Good luck to you. Please keep me posted on any new developments....like I said it's so nice to have someone else going through the same thing. Thanks
Sarah
Sarah,
I think I would scrap all your doctor's and start from scratch! I don't know what city you are in, but there is surely another neurologist or headache specialist closeby that you could try. And I would definitely try a high-risk OB. Like I said earlier, I was scared at the thought of a high risk pregnancy at first, but then it seemed like the most natural, most protective way to go about it. With the meds I am on, and the possibility of pregnancy increasing my migraines, I feel better having made contact at least with a high risk dr. I think they also just have more knowledge of medications and what they have really seen and heard in actual practice. I feel safer knowing that this specific doc has used whatever specific med and had no problems with it, you know? I do think I am going to taper off some of my meds when I become pregnant, because most of their warnings are about 3rd trimester use anyway, but I feel better knowing that there is an expert OB who thinks the risk/benefit analysis says stay on the meds for now, and knowing that he will treat me if I encounter other OB's who are too freaked by my long list of medications. I think you are ahead of the curve already by only being on one preventive. I am not sure how the supplements are looked at during pregnancy, and your dr.'s definitely need to be informed about them, but my guess would be that they are better than the alternatives of multiple prescribed medications.
Seriously though, it can be a long and frustrating search, but find a neuro who is willing to treat you and understands the pregnancy thing. Also find a new OB, maybe start with a high risk OB and if he/she doesn't want to treat you until you become and pregnant and during your entire pregnancy, unless they really need to, of course, then maybe they can refer you to another OB who has worked with someone on multiple meds and has other conditions before. My advice, and it may not be worth all that much, is to find the right doc's first, and then develop a strategy for getting pregnant.
I feel very lucky to have found the doctor's I have. Bear in mind, however, that I won't see my regular OB to find out if she will still treat me during my pregnancy till next month, so that could be a hurdle in my path! I'll just have to wait and see.
Best of luck to you, and please keep in touch and let me know how things go.
Julie