Monday, May 28, 2012

Having a bad spell, seeing a new doctor

By jazmc Sunday, March 09, 2008

I have been in a bad cycle lately with my migraines.  I have been really, really frustrated.  My sleep is messed up, even more than usual.  I am awake for awhile until my head gets so bad I have to try to sleep, and then I sleep for a few hours and am up again until my head gets bad again, and then the whole process starts over.  I am fortunate, in some ways, that I don't have a job, even though being able to have an actual career is one of my main goals in life. 

 

I called Dr. Krusz, and am planning on seeing him for the first time soon.  I actually have an appointment there in about a week, but I don't know if I can get scheduled with my local neurologist by then, and I really want him involved in this process.  I want him to know I don't want to replace him, because I really do like him and he has had as much success treating my migraines as anyone.  I think he will be receptive to the idea of a "second opinion" because he knows I just need help. 

 

My husband and I have been wanting to have a baby.  I have sort of neglected that part of the share post for awhile!  Anyway, having a bad cycle here hasn't helped my fears about being able to parent a child while having severe migraines.  I have sort of stopped the serious trying part.  Not the practice, mind you, LOL, but the counting days and trying to make sure things happen at just the right time.  So, I guess if it happens right now it happens.  When my migraines flare up so bad, I just can't imagine what it would be like to have a child.  I know there are so many mothers out there that do it, but I guess knowing on the front end what things could be like, it just makes it seem like something I shouldn't do.  And that is so unfair to my husband.  He has patiently waited so long.  I think we will still try to get pregnant, and like I said we aren't taking the most precautions now, but at the moment, I don't have the energy or will to put effort into it. 

 

I was impressed with how quickly Dr. Krusz's office could see me.  It's refreshing to have someone realize you wouldn't be calling unless you need help now!  I do worry, a little, that the main thrust of his practice seems to be disrupting a current migraine and keeping a person out of the ER.  I am not sure that is true, but from reading the material on his web-site, it sort of seems that way.  I don't need just one headache treated.  I need the cycle that I am currently in broken, so maybe his IV treatments in office can do that.  The office told me to plan to be there three days, maybe even five, and that they would really like me to have a migraine while I am there, which is interesting because so many of the docs I have seen here don't actually see me with a fired up monster of a migraine.  I assured them if I was there for 3-5 days, I would have a migraine! LOL.  They said I would be surprised at how many people say that and then come there and it may be the first week in 3 months they don't have a migraine.  Isn't that just our luck as migraineurs, the one time it might be of benefit to have a migraine, we don't, and then all the other times we can't help from getting one.  The clinic will be about a 6 hour drive for me.  The whole event will likely be pretty pricey.  I am so thankful that my parents want to help me with the costs.  I am lucky to have such a great support system.  It was their idea that I go someplace new and see if we can get any improvement.  I hate taking the money, but if I want to see Dr. K, I don't have a choice.  I haven't met my large deductible yet, and he's an out of network provider, so it's just going to cost a lot, and my husband and I can't handle it by ourselves.

3/ 9/08 7:34am
 Luckily I did not have migraines when I had my kids. I did not get them until I got older. Now I have  grandkids. I dearly love them, but when I have a migraine and they start screaming or crying (they are now 2 & 3 yrs old) they hit that certain pitch in their voices that just shrills through your brain. It is like a train running over your head. The best thing to do is to have someone who can watch them for a while so you can rest until they are quiet. You will be able to get through it with some caring friends or relatives to help out and enjoy the  precious gift of a child. Unfortunatelly, I am the relative that is supposed to be helping the mother..LOL
3/ 9/08 1:00pm

I have a niece and nephews that I spend as much time with as I can.  There have been days when I have them by myself and I collapse into a puddle of tears and pain as soon as my husband comes home to help or their parents pick them up.  I guess the positive thing is that no matter how bad the pain is, I have been able to take care of their needs when I have to. 

 

I am sure you are able to help with your grandkids more than you realize.  All the parents of young children I know are thrilled with any help they can get! 

 

Thanks for posting!

 

Julie

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By jazmc— Last Modified: 09/04/10, First Published: 03/09/08