Monday, May 28, 2012

Migraine Prevention: Mission Impossible?

By Nicole Tuesday, January 09, 2007


All I can say at this point is be aware. I avoid shopping in big box stores, one in particular always triggers a headache for me. If you need to, order on-line. Keep a rescue pack with you at all times, in a desk at work, the car, purse or wallet, you name it. Leave one at a friend's house so if you need one, they have it. I hope these tips help.





  • How have you dealt with migraines in social situations? Share your story by leaving a comment below or posting it on the Migraine Message Boards.





Anonymous
Ellen in Missouri
1/12/07 10:15am
I rarely have a migraine-free day anymore. They come with severe, often stroke-like symptoms that so far remain beyond my control, so I find myself becoming more and more hermit-like as I deal with the pain which is rarely understood by anyone not suffering from migraines, and the other symptoms associated with my headaches. Although I have often had migraines in public situations, I have become a pretty good actor, and usually look for a quiet, dark, out of the way place wherever I am, or simply retreat to the car. Sometimes there simply is nowhere to go and I am trapped. My latest episode was terribly humiliating, and as a result has really changed my life and much of who I am. In a way, it broke me down like the last straw on a camel's back. One of the symptoms attributed to migraine for me is Aphasia- the inability to communicate and/or understand language. In this case it happened during a simple phone conversation with someone wanting to buy some acreage from us. Everything was fine when suddenly, it hit me. No one else was home, I couldn't simply hang up on the gentleman- he is our neighbor and would have been highly offended. I could still get a few jumbled up, halting, nonsensical words out, but nothing that made any sense no matter how hard I tried. I couldn't even tell him "I'm Sorry" or that I needed to hang up the phone. He laughed and I was finally able to somehow get out I had taken some pain meds (not) and at that moment hubby came home and saw my distress. I tried to speak to him and he knew what was happening and took the phone as I began to sob uncontrollably right there on the floor. The neighbor (a prominent well respected person in the community)will still not speak with me, and I am honestly too afraid to try to speak with him. Apparently it did cause some bad feelings and therefore problems with our land deal as well. Quite simply I offended him with my actions and whatever it was that did or didn't come out of my mouth. He doesn't want to understand, nor do I want it explained in detail to him. I have asked my hubby not to say anything to anyone because in our small community, I do not want to be labeled and dis-respected as "brain damaged". The neighbor does not know about the migraines- I do not tell many people as the small community where I live, people who suffer with migraine are not taken seriously and often chided for their weakness and inability to deal with stress- a common misconception as the only cause of one of these awful headaches. The irony is, that one of my greatest joys is teaching children and adults about horses, and working as a CERT (Community Emergency Response Team) coordinator/Instructor. I love public speaking and being with and speaking with people. I had to give up my job as Dispatcher for the local Sheriff's Dept. because of the Aphasia as I was afraid it would someday endanger someone's life, and to this day remain unemployed. The migraines are so bad that I am functionally disabled nearly every day. I am now giving up my farm and my dreams because I can no longer care for the horses. Each day I pray that someone will be able to help me live a somewhat normal life again in a house whose windows aren't covered with black plastic to keep out the light, and a face constantly hidden by large dark sunglasses, and I continue my search for the "magic cure" we all hope is out there for us. Ellen
Anonymous
Nicole
1/12/07 8:15pm
Hi Ellen. I feel you on the whole problem with being out in public- I have trouble with aphasia as well, and lately I have been having more and more problems with speaking. I had another neuro appointment today, and the cause of the worsening of the whole numbness is not known, but I have a whole nother set of tests coming up. I hope that you can find something that works. I have basilar migraines which are the root cause of much aphasia- have you been evaluated for those yet? Sometimes an artery can be blocked, which can make the aphasia and associated stroke-like symptoms worse. Hugs. And if you ever need and ear, drop a note! ~nicole
Anonymous
Teri Robert
1/16/07 4:05pm
Ellen, Boy, do I feel for you! I was at the point of hardly ever having a Migraine-free day, and it was beyond horrid. What turned things around for me was getting myself to a true Migraine specialist. Don't know where in Missouri you are, but I do know a great specialist in Springfield. Please know that you're not alone. We'd love to have you stop by our forum and chat with us. http://forums.healthcentral.com/discussion/migraine/forums. Best of luck to you, Teri
Anonymous
Lois Eggers
2/ 6/07 4:35am
Nicole, I just found this site and your blog through google and maybe this has been mentioned before but... I started getting migraines on the r. side of my head, behind the eye just as I started peri-menopause. Suffered for about 10 or so years with several bad days a month until I was told to get completely off of caffeine and use it only to ward off the migraine when it FIRST starts. That has changed my life. I still sometimes wake with one already in full "bloom" and nothing will stop it then. But I use a large dose of instant coffee, I mean about 3 large tablespoons in a little water. It is awful to drink so I sweeten it and gulp it down. It takes 20-30 minutes but then I am high but pain free. A dose like this lasts about 24 hours. Usually I have a day off and then maybe get another one but same thing helps. Then I don't use anything with caffeine in it at all until the next attack comes on. Usually I try to get Kava which is more expensive but it helps keep my stomach from getting sick which often happens anyway with migraine. Now, in my 20th year of migraine attacks, I have far fewer, horribly painful days. Wonder if you've tried this. And it is worth going through a week of caffeine withdrawal in order to use this method. I think it is far safer than any of the drugs that the pharmaceutical industry is touting and much less expensive.
By Nicole— Last Modified: 09/04/10, First Published: 01/09/07