Monday, May 28, 2012

Searching for Sufferers

By Marty Monday, January 28, 2008

I have been suffering with migraines for over seven years now(I'm 35) and have been looking for a place to post for awhile, so here goes.

 

My headaches began seven years ago as stabbing pains behind my right eye. This would occur 3-4 times a month for about 2-3 days each.

 

Now, every day I wake (when I can sleep that is) with horrible stabbibg pain, dizziness and aura vision. I also experience short-term memory loss in addition to a myriad of other symptoms. Most depressing though, I have seen my quality of life seemingly evaporate. My wife and two children love and support me, but the toll this has taken on them is obvious and painful to contemplate.

 

I have been unable to work for going on four years now. I had to give up an $80k job a year, a job I didn't necessarily enjoy, but one which I was very good at.

 

My first experience with a "headache specialist" five years ago prepared me for what I've faced ever since . A noted specialist in our area, a highly recommended one, frustrated after months of unsuccesful medication trials, told me he could no longer see me. When I asked why, he told me he believed a psychiatrist would be more helpful in my case. For the next five minutes, he proceeded to tell me that if he couldn't help me, it was because I wasn't "sick".

 

Since that day, I've overheard many a conversation mocking my condition or diminishing it. Worse, I've been called lazy and a loser who just doesn't want to work, in one case by a close relative.

 

I'm still looking for answers. I have seen several new doctors, been on an ungodly number of medications and have been hospitalized several times.

 

I've been told there are support groups out there, but at this point, I think I'd just love to know/hear that there are others out there suffering/praying/hoping/pulling their hair out just as I am.

 

If anyone has feedback to offer. I'd love to hear from you.

 

Thanks

 

Marty

1/28/08 10:56pm

I just want to assure you that you are not alone.  The people who use this site understand head pain and its frustrations.  It's very important not to give up, even though we all feel like giving up at times.  We will be here to support you as best we can.

 

For further information and support, I hope you will come over to the discussion forum.  To get there, hold your mouse at Manage or Connect, and a menu will come down.  Click on Migraine Forums.  Registration for the forums is separate from registration for this page, but you can use the same info to register.  You will find the forum to be a place where a lot of reliable information is shared, and a lot of support is given and received.  We'd love to have you.

1/29/08 1:14am

Marty, you are not alone. Not at all. I'm very glad that you finally found us - this website has helped me so much, it's hard to put it in words. I agree with what nutcracker said - check out the forums. There are lots of wonderful people there that understand the pain of migraines all too well.

 

That said, we also have a great list of patient-recommended headache specialists, which you can find HERE. I'm not sure how you feel about your current doc, but there are a lot of great ones on that list.

 

In the meantime, hang in there. Post here or in the forums as often as you want. We're all here for you. 

1/29/08 8:05am
Welcome to the board and glad you found it. It's great to have a place where every single person here understands, at least to some degree, what you go through. The constant pain, the frustration with doctors, the impact on our lives. I agree the forums are a great place to find support. Try to stay positive, and good luck!
1/30/08 7:32am

Marty,

I too have suffered for many years and had a loss of leisure in my life. This disease has now carried on down to my 8 yr. old daughter and sometimes I feel like life really sucks! However, I've been going to acupucture for 2 yrs. now and it has helped about 50%. If you haven't tried that avenue look into it. Some insurance companies cover it, mine does not(unfortunately). You will be in my thoughts and prayers as I am sure for you as I am for myself that God has a plan and when He is ready He will bring about a change in our health. We just be to be proactive and patient. I know that is hard to do when you're in pain but that is what has kept me living with this disease for 9 years now. If I haven't helped than atleast I hope I gave you something to think about.

In Christ,

Jess

By Marty— Last Modified: 09/17/10, First Published: 01/28/08