36 yr old mother of three beautiful children and have been happily married for almost 17 years and this stupid disease is controlling my life! I can not work and had to medically withdraw from school where I was trying to go back and obtain my BS in Nursing and then my Masters. I had a 4.0 and had to withdraw because I have had 10 "seizures" from my hemiplegic migraines in the past two months and my short term memory is crap! My husband and children are total nervous wrecks because they are always worried another one will hit! the neurologists in our town say they can't help me because my condition is too complicated, and my primary doctor wants to send me to the Mayo Clinic in Jacksonville, Fl, but our stupid insurance has denied and says the BCBS dr. thinks we should be able to find someone here in Georgia to help! Well where the heck are they!???!!??? You get treated horribly if you end up having a seizure in public and and end up in an emergency room , because they don't understand the condition and God forbid they take the 5 seconds it would take to look it up on a computer!!! I want and need help sooooo badly not just for me but also for my family so we can get our lives back!! Anybody with advice?
Hello, and welcome to MyMigraineConnection.com!
I have a few pointers for you that may be helpful. First, your health insurance through your employer? If so, you may want to talk with the human resource department and find out what the policy is on seeing a doctor that is out of area when the doctors IN YOUR AREA say you are "too complicated" for them!
Second, we are updating our patient recommended Migraine specialist list on this site, but you can see a current one on Helpforheadaches.com. There may be a doctor who you can access in a bordering state.
Third, what about an appeal with BCBS? Certainly there is an appeal process, and again, if your primary wants you to go see a Migraine specialist (best to pick the doctor, not the clinic) he should be able to help you with an appeal.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs at the top of each page, you'll find a wealth of information - educational articles, tips, quizzes, workbooks, support and advocacy information, and more.
Do you have questions about Migraine? There are three ways to get answers - through our Ask the Clinician column, in our community Question and Answer Section, or through our forum. Just go to our Migraine Answers page HERE.
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Welcome again,
Nancy Bonk
MyMigraineConnection.com Community Manager
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!