After the iv infusion I was feeling better, but I could tell the migraine was not totally gone. By Tuesday I was feeling worse, by Wednesday, I was full blown migraine. I call my nero's office and I got the assistant/nurse whatever she is. I explain to her the whole situation and she tell's me "Dr. Wilson is gone until Tuesday" then a pause nothing, silence. So I say, okay, who is filling in for him, I mean its a big office, someone has to be taking his patients. Afterall, I have had this migraine for eight days now, iv infusion once for it and a Er trip once with me passing out. She says "yes, someone is filling in for some cases" clearly I was not one of those cases. So, then she tells me I can forward any of my questions to this doctor filling in and he will get back to me in two or three days. 2 or 3 days! I hung up feeling very let down, very frustrated and very much in pain. Hubby was at work, and he happens to work at the hospital so he talked with the nurses and doc and they said I should come in so off to the ER yet again. This was all last Wednesday night. I arrived and they found a bed for me within 25 minutes and they took excellent care of me. I left with my migraine back to a 3 on the pain level scale with instructions to come back to the ER if it gets any worse.
I still feel that it was handled all wrong with my Nerologist office, don't you think the assistant/nurse should have let the doctor filling in for my doctor know that I was having trouble? What troubles me too is that my doctor put me on IV infusion on Friday, Saturday, and Sunday, and never bothers to even phone on Monday to check and see if it works, nope he's gone until the following week.
Anyhow, I made an appointment with another doctor, a migraine specialist out of USF, but can't get in until December. I did manage to get my MRI done on Friday. Not sure why they order MRI's for migraine patients, do they actually show anything or are they just ruling out tumors and seizures?
Thanks for listening.....
Lori
I hope you are feeling better this week! Sorry you had to go through all of that! You are right though. Your doctors office should have called you back sooner - or if it was the nurse/office you were speaking with they should have gotten the covering dr on the phone ASAP!
Don't they realize what risk you are at having a Migraine for that long period of time? I would definatly make your regular Neuro aware of this. Again I hope you are feeling better today! Fingers crossed for a long pain free stretch!!!!!
Eileen
Thanks Eileen. I agree with you. I don't think this nurse cares or thinks migraines are a threat. At least thats the attitude she puts off. I was certanily not a priority when I called last week. I will let my regular nero know when I see him the first of October. I have seen him for about 3 to four years now and I would hate to switch but if I can't get the support I need I will have to. When you are in crisis like that support from your doctor/and his staff is critical I think. Thankfully the ER visits went smoothly and I am better.
Thanks again
Lori