HELP!! I can't take it anymore!

By aabdanan Wednesday, January 23, 2008

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Hi-

I am a 41year old female with Migraines since I was 14, have been to more IM/Neuro's than I can count, and also have a large venous angioma on my left frontal lobe. I have been on many beta-blockers and am currently on one now, take Topamax, and all anyone wants to do is throw narcotics down my throat to get me to shut up.

I take or have taken Fioricet, Norco, Darvocet, Phenergan, Zofran, Stadol Nose Spray, Imitrex (which made me have chest pain and palpitations), Lidocaine Nose Spray (which works very well, but only for a short time and also your nose and throat are numb and you can't swallow), Ergostat, 2 different beta-blockers, Topamax, and God knows what else!!

I am a Registered Nurse and a department head in a large Dallas hospital, so I have a very high stress, demanding job. I HAVE to be there...literally. I cannot take any pain medications before or while I am at work otherwise I could not function. So I have been going with headaches, nausea/vomiting, sensitivity to light, high blood pressure (from pain probably) and visual disturbances. I have had many MRI's/MRA's, the only thing found was the angioma, I had paralysis in my right hand,arm and leg for almost 4 months and fell all the time or dropped everything. I even passed out at work once. I had an EMG at that time, was told it was O.K. (It was totally humiliating, I had to be naked and they put needles down my entire right side and then did little mini shocks...not fun)! Was also told that the angioma may make my headaches worse, but they have a venous function, so it was something I would have to get through.

I am at my MAX, or past........

Suggestions? Please! Does anyone know of a good, reliable MD in or around Dallas who will actually listen to me!

Thanks-

Ali (Pronounced Allie)

Anodyne Clinic!!

Comments (5) | Add comment

Cindy

1/23/08 12:42pm

Ali,

One of the sites experts Dr. John Krusz is a migraine specialist in Dallas. I would start there.

I am so sorry you have to go through so much and work through it. I am an medical records professional who no longer works in hospitals, but I don't see how you could do it. Go through this site more, I am sure, especially as a medical professional yourself, you will find very useful informaiton. The forums also are very helpful.

Good luck and stay in touch. The people here are wonderful and very supportive.

Cindy

aabdanan

1/23/08 6:50pm

Thank you so much for your response, I will check it out!

Ali

Cindy

1/23/08 2:02pm

http://www.healthcentral.com/migraine/c/123/17570/pain-hope/

Here is a link to the doctor in my last post.

Eileen Gray

1/23/08 3:02pm

Yes, definatly! He is our "ask the clinician" and just all around nice guy! Teri got to spend a week or so out there seeing him work with patients. She said it was one of the best experiences ever.

He is one of the best. Especially seeing that you are already in Texas, might as well go to him!!!

Good luck!

I know what it's like to be at the end of your rope! We are all here to help you find the light at the end of that tunnel again, because we are all in the same boat!

-Eileen

Nancy Harris Bonk, Health Guide

1/23/08 8:21pm

Hello, and welcome to MyMigraineConnection.com!

It may feel like you have tried everything medication out there for Migraine prevention, but that really isn't possible! There are more than 100 medications used for Migraine prevention, so don't lose hope. Click HERE for that information.

Dr. Krusz is a world class Migraine specialist. I hope you see him, he seems to do wonders for people. IF for some reason you are unable to see him, we do have a few other Migraine specialists listed on our patient recommended list, HERE.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

One of the best ways to stay current with Migraine and headache disorders is to sign up for our free newsletter. Click on the green Free Newsletter button on the home page.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

HELP!! I can't take it anymore!

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