I have been suffering from migraines for over 20 years and I have been to at least 3 different neurologists I was told that I have brain seizures ( thousands a day ) and was put on topamax and vimpat. But I keep telling him none of this is working and none of the pain medications are working either. I've been on, just about everything you can imagine. So he said meditate. I am at my wits end. I feel like my head is going to explode. I get at least 20 migraines a month and I honestly don't know what more to do. My triggers are scented products and petroleum based products. Can you give me some advice please? Theresa.
The best advice we can offer is for you to find two specialists - a seizure disorder specialist and a Migraine and Headache specialist. It's important to note that neurologists aren't necessarily specialists in any particular neurological disease or disorder. Once you've found these specialists, you need to make sure they're consulting and working together - preferably three-party consultations that include you.
You need an accurate diagnosis of whatever seizure disorder is causing your seizures and an accurate diagnosis of what type or types of Migraines you have. Without proper diagnoses, selecting the right treatments is difficult at best. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists. You can also find Migraine and Headache doctors through www.achenet.org.
Pain medications are not the first choice for treating Migraines. Any use of opioids or barbiturates has been shown to increase the risk of episodic Migraine progressing to chronic Migraine and to reduce the likelihood of getting chronic Migraine to revert to episodic Migraine. Unless there's a reason a patient cannot take them, triptans -- Imitrex, Maxalt, Zomig, Amerge, Relpax, Axert, or Frova -- are generally accepted as first-line treatment for Migraine.
John Claude Krusz and Teri Robert
If you need help finding a Migraine and headache specialist,
visit our listing of Patient Recommended Specialists.
About Ask the Clinician:
Dr. Krusz is a recognized expert in the fields of headache and Migraine treatment and pain treatment. Each week, he and Lead Expert Teri Robert, team up to answer your questions about headaches and Migraines. You can read more about Dr. Krusz or more about Teri Robert.
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Published On: August 08, 2013