Diagnosed with MS, still having head pain. Now what?

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    I given diagnosis of MS but still having head pain- put on Topamax- side affects like MS- what now?


    Started with facial numbness on left side with right side arm and leg numbness. Major migraine occurred and symptoms got more pronounced. MRI indicated multiple lesions. Spinal tap normal- no IgG antibodies- but given diagnosis of MS. My head still hurts. Was given Topamax after spinal tap to help with pain of head (by pain specialist-not neuro). Made face less numb but other side effects worse. Extreme sensitivity to cool/cold temperature. Can not have cold air blow on top of head or pain is intense - almost paralyzing (which is opposite of MS). Any ideas on what I should discuss with my doctor? Any recommendation on a doctor at UNC- CH, Duke? Current neuro too busy to see patients. FYI: Biological father was paralyzed for 2 years on left side due to migraine (they said). Thanks- KRS.

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    Dear KRS;


    It's time for a second opinion. Obviously, we can't tell you if you have MS, but you would not be the first person with Migraine disease to be mistakenly diagnosed with MS. Migraine can also cause lesions. Take a look at Is Migraine a Progressive Brain Disease? for more information on this.


    As for doctor recommendations, take a look at our listing of Patient Recommended Migraine and Headache Specialists. A Migraine specialist may well be your best option for a second opinion too.


    Good luck,
    John Claude Krusz and Teri Robert



    About Ask the Clinician:

    Dr. Krusz is a recognized expert in the fields of headache and Migraine treatment and pain treatment. Each week, he and Lead Expert Teri Robert, team up to answer your questions about headaches and Migraines. You can read more about Dr. Krusz or more about Teri Robert.


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    © Teri Robert and J.C. Krusz, 2008.
    Last updated August 6, 2008.

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Published On: August 06, 2008