Let me start by saying how great it was to find this place. I can finally come and share my thoughts and pain with other people just like me. Sometime I feel so alone and nobody really understands exactly what kind of pain I am really in (especially the doctors).
I am 35 years old, I have a great wife and a 3 year old son and live in Atlanta. The great thing is my wife has really been supportive of my problem. Oh let me get to that. I suffer from migraines and TMJ. I have had this problem for 5 years now and they seem to be getting worse as time goes on. At first they were only about once a week to twice a week, now they are once a day to twice a day.
Back to my life, My wife has bee great through all this she is an RN. She has been my rock through all this. I have even gone through a spell of depression because of all the pain I have been going through. People just don't seem to realize how much pain really affects the whole family and not just the one individual.
I have been through three neurologists, tmj sprecialists and have been admitted to the hospital to try to break my headach cycle. Nothing has worked so far. I have been tested for everything from brain tumors to heart defects and NOTHING. I have been through all the preventative drugs and they won't stop the pain. I am now on the last triptain they have and this one is touch and go about working. I don't really know what to do about the pain if this drug stops working. The pain is so intense I really want to poke out my eye sometimes. I tell ya, I am tired of the doctors throwing drugs at me that don't work or have suck severe side effects I'm afraid I won't see my kid grow up. I have also posted this on the chronicpain website. I found it before I knew there was a migraine support group.
Hello, and welcome to MyMigraineConnection.com!
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
First let me say that I am sorry to hear you are in so much pain, but happy to hear your wife is so supportive. That is important. You mentioned you "have been through all the preventative drugs," it may feel like you have tried them all but in reality there are over 100 medications that are used to treat Migraine disease. Really, I know how discouraging it is but try not to give up hope. We can help. Check out this link for more info on preventives:
http://www.helpforheadaches.com/articles/prev-meds.htm
The next thing I would think about is getting to a headache specialist. In this list of recommended doctors and clinics there are two in GA.
http://www.helpforheadaches.com/doctors/migraine-headache-specialists.htm
Something to keep in mind is that there are patients who travel well over 8 hours to see their specialist.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy Bonk
MyMigraineConnection.com Expert
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!