I am only on 25 mg topamax for 2 months and I have lost half my hair. I have had all kinds of blood work. Everything normal. I am tapering down every other night and then will stop topamax. I wish you luck. I wish someone would tell us if getting off will help or if our body will ever get use to it. My doctor said to take Biotin 2000 mcg, I am taking 5000 mcg for a week now I hope it will help.