Well, not sure if anyone is still reading this thread but...
I really hoped the Botox would help mjy head. Instead, it worsened my pain for weeks. It was something I am glad I tried but will never, ever do so again for my H/A. Botox did however finally help my right-sided neck pain, though...I have torticollis or wry neck from cervical spasms. I wish he had injected both sides of my neck so may have to get Botox in my left side, too.
I started Physical Therapy (PT) & acupuncture with a real Oriental Medicine Doctor (OMD). Too much to handle going to both due to my fatigue so I am sticking with PT & started some yoga at home. I only did acupuncture twice so cannot judge it on that basis.
Even PT with therapist trained in Myofascial Release has made my neck pain worse at times & she has had to back off until I can tolerate more. I am just so stiff & sore everywhere that it is just going to take time & pain to get better. They cannot even work on much since I have problems in every joint...I joked that I need an admission to inpatient PT. But, I really do!
The new pain doc was willing to try Fioricet which by taking 2/day has, with Ibuprofen & Lortab decreased the pain at times to level 3. Unfortunately, another problem is I am getting more than just itching from the Lortab...think it is becoming full blown allergy. Lortab is why I am still able to function the little I can so am in serious trouble. At least my H/A is now no worse than pre-Botox.
Also, just learned about Hemicrania Continua (HC) & I believe this is what I have & am trying to get RX for indomethacin. It is supposed to completely relieve the pain, if it is. I have symptoms of a cluster H/A but nowhere near as bad. That is part of HC...HC is considered rare but probably just because it is so hard to diagnose. I always have right side head pain that never goes away, it waxes & wanes with occasional watery right eye, stuffy nose, stabbing jolts in my head lasting seconds, eye pain that feels like sand in my eyes with rarely a stabbing sensation like a little needle in my eye & I have never had a good response to migraine meds. Since I have additional pain I must have a mixed-type H/A which the Neuro said 3 yrs ago, but she didn't mention HC, at all.