Monday, May 28, 2012
Wednesday, September 02, 2009 southernmom asks

Q: I was just diagnosed with hemiplegic migraine.Is it possible to get disability after only just being

I was having stroke like symptoms when I went to the ER. i would like to know with the severity of this disease is it possible to get disability after only being diagnosed or is it too soon. Everything I have read on this is very serious and could cause complications with my everyday routine in taking care of my children and my household.

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Answers (4)
Megan Oltman, Health Guide
9/ 2/09 7:28pm

Hi Southern Mom -

 

I have never seen a disability case for Migraine approved that didn't have lots of doctors notes about the level of impairment, frequency of Migraines, etc. I think it would be hard to make a case like that based on one attack and a diagnosis. I am not questioning the severity of the disease, I just dont' think there is a precedent for what you're tlaking about. I may be wrong - maybe there are other Hemiplegic Migraine sufferers out there who have had a different experience and can jump in here and contribute their experience, but in general getting a disability case approved tends to be a long process.

 

Here's some general information about the disability process:


1. Get Help from Your Doctor: The first thing you will need is a doctor who will support your claim to being medically disabled. You need a doctor to document that your Migraines make you unable to work. Whether or not your claim is successful, and whether you have to go through a long appeals process, will often depend on how good your medical documentation is. I wrote a sharepost on this topic which you can read here Need to Apply for Disability? Help Your Doctor Help You.

The key is for you to make sure your medical records contain evidence of your disability - ask your doctor to include the fact that you cannot work, and details of that, such as triggers in the workplace, exact details of the frequency and length of your attacks, regular activities of life and work that you cannot do, etc. It will help if you also keep records - a headache diary is useful for your doctor to treat you; it is also useful as evidence of your condition and how it is affecting your life and ability to work. Include details of your level of disability on a given day.

2. Types of Disability Benefits:

a. Private Insurance: Do you have private disability insurance, through your employer, or privately purchased? If so, get hold of a copy of the benefits plan and look carefully at what they cover and what they require to start a claim. Plans will vary, you want to follow their procedures carefully and keep copies of everything you submit to them.

b. Social Security Disability (SSI & SSDI): If you are looking to apply for government disability benefits, from the Social Security Administration, we have a number of members of this site who have succeeded in getting Social Security disability for Migraines or other headache disorders. There is already a very good article on this site on the two forms of Social Security disability, and the requirements for each. You can read that here: Disability Benefits: SSI and SSDI.

Basically, you will need to show that you are unable to perform the work you have done previously, that you are unable to train for other work, that you are not working in the current year, that your condition is severe and that you are totally and permanently disabled. Whether you receive SSI or SSDI is based on whether you have been working and contributing social security taxes (in which case you would apply for SSDI); otherwise the same eligibility requirements apply to both programs.

The difficulties are that for both programs you must not have been working in the current year, and for SSDI you cannot receive benefits until 6 months after your disability is determined to have begun. The government assumes you have some other resources to live on in these waiting periods!

You can appoint a representative (either an attorney or someone else) to handle the process for you. Some attorneys will handle these applications on a contingent fee basis - where their fee is based on a percentage of your initial benefits, and they don't collect a fee unless your claim is successful.

 

Good luck to you!

 

- Megan

 

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Teri Robert, Health Guide
9/ 6/09 1:36pm

Hello, southernmom,

 

It really is way to early to be considering disability.

 

It's also way too early to be thinking that your life is going to be dramatically changed. The majority of people with Migraines only have them occasionally. Most of the people you see here are in the minority, so if you read posts here, please keep that in mind.

 

Since hemiplegic Migraine isn't very common, your current doctor may or may not really know how to treat you. If your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

 

If you have three or more Migraines a month, you and your doctor should discuss preventive treatment.

 

Overall, try not to panic, and absolutely try NOT to expect the worst. We're right here whenever you need information or support.

 

Please keep us posted?

Teri

 

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11/ 2/09 3:14pm

My neighbour was diagnosed as having a Hemiplegic Migraine attack at the ER after a severe attack but he hasn't had another one and it's been over two years since the original one, so if you've only had the one attack I wouldn't worry too much about it.

 

I have Hemiplegic Migraines and am only recently on disability due to daily hemiplegic migraine attacks. Prior to that I was able to work even though I was getting the symptoms although less frequently.

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5/17/10 4:58pm

How were you able to get diability? How long had you been getting the hemiplegic attacks? Because over the last four or so months I have been hospitalized twice, in the ER twice and have daily attacks myself even though I too am able to work. Any advice?

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10/ 9/10 5:37pm

Hello

 

In United kingdom, its now classed has a disability. Its against our law to discriminate anyone with this disease. I am not sure what the laws are like In the states, but its best if you do some research. I hope you manage to find correct medication and help..I know from past experience, this disease is not nice to deal with.

 

 

Good luck

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By southernmom— Last Modified: 12/25/10, First Published: 09/02/09