Alisha,
The "gold standard" for Migraine and headache diagnoses is the International Headache Society's Internation Classification of Headache Disorders, 2nd Edition (ICHD-II). One of the problms when doctors don't follow that, as yours have not, is that it's difficult to know what kind of Migraine someone is talking about. Under ICHD-II, the diagnoses Complex Migraine Syndrome and ocular Migraine do not exist.
Topamax is frequently prescribed for Migraine prevention. According to the prescribing information, the beginning dose is 25 mg once a day. You can read more about Topamax dosing in Dosage and Tapering of Topamax for Migraine Prevention.
Migraine is a genetic neurological disease. A Migraine attack can have up to four phases and many differing symptoms. I think you'd find it helpful to read Anatomy of a Migraine. Also, given your previous diagnosis of ocular Migraine, I also suggest taking a look at Ocular, Optical, and Opthalmic Migraine.
Given the severity and frightening nature of your symptoms, a Migraine specialist may well be in order. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
I know you're going through a rough time. If you'd like some additional support, come join our discussion forum. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.
Good luck,
Teri