I was diagnosed in april but cant find any doctors know anything about it. im waiting to get into the mayo in arizona, if my work will give me a leave of absence. i have no septum, no turbites, and have it in my lungs, throat and sores on my skin. my immune system has been in overdrive for a long time. its getting better since i have been on voriconazole for 4 1/2 months but just wondering if anyone out there will read this that has had it or knows someone that has. Also if they can give me any type of information. i have spent hundreds of hours on the internet but i cant find some information at all plus i cant find anyone that has had it .. and lived. scary. i also posted the question below this one about maxalt. my mom really thinks that it is causing or helping to destruct my septum etc.. by constricting and blocking off blood to parts that have really small vessels.