Sunday, May 27, 2012
Tuesday, July 19, 2011 grace99 asks

Q: I've been largely avoiding using painkillers & triptans based on neurologists advice...

for chronic daily migraine, avoiding rebound. 

 

Will that jinx disability claim?  Am in bad pain, full symptoms.

 

I feel like so many people take the chemical cop-outs and so many doctors prescribe them that claims examiners are going to find my history suspicious. I have tried just about every other type of migraine treatment -- biofeedback, preventatives, surgery, etc. But I've refused to worsen my migraines with painkillers and triptans -- the pain and debilitation that I suffer now is bad enough, and I cannot stand the idea of making it much worse with such drugs. (I cannot even drink a can of cola without a bad rebound migraine.)

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Answers (1)
Nancy Harris Bonk, Health Guide
7/20/11 10:36pm

Hi Grace99,

 

I can understand your feelings on opioids, because they are not the first line of treatment (even rescue) for Migraines. But I am confused on your thoughts on using triptans. Is there a reason you "avoid" using them?

 

As far as your questions  regarding a "jinx" with disability, the only thing we can tell you is to document everything and have your doctor work with your. Here are some links you may find helpful:

Work & Disability: Don't Fall Through the Cracks  and 

Disability Benefits - SSI and SSDI

 

 

 

 

Nancy

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7/20/11 11:59pm

I was told by neurologist/headache specialist to avoid taking triptans as much as possible because they cause rebound in those who have chronic daily migraine.  I've read material from other neurologists (e.g. Heal Your Headache) stating the same thing.

 

Surprised you are unfamiliar with that.

 

I started using triptans not long after they were introduced, using Imitrex injections, which worked great at the time.  (Had used Cafergot before Imitrex hit the market.) 

 

At the height of my triptan use (encouraged by primary care doctor), I was taking 2-4 doses every day and still had migraine despite that.

 

It was pretty obvious that I'd acquired considerable tolerance to the stuff.  And rebounding seemed about right too.  (I can rebound off the caffeine in a single can of Coke and if I drink one every day, the impact is bad.)

 

It was painful to accept that I couldn't use bail-outs (remember prolonged sobbing and a lot of self-pity), but after detoxing off triptan, I don't think I was worse off at all.  They'd pretty much stopped working for me.  Now I take one once in a while, but it doesn't help much.  (Yes, I've tried them all.)

 

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Nancy Harris Bonk, Health Guide
7/27/11 11:06pm

Hi Grace,

 

I guess I didn't quite answer your first question well enough - I have no idea what may or may not have a bearing on a disability claim or  "jinx disability claim."

 

What I do know is if we have more than three Migraine attacks a month it is time for Migraine prevention medication. If while on said Migraine prevention medication we are still getting more than three attacks a month, it is time for a dose or medication change, or monitoring our triggers again or even time to see a "true" Migraine specialist. If your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

 

I know how easy it is to feel as if you've tried everything out there, but there are so many medications that can be used for Migraine and headache prevention that it's literally impossible. You can find a list of potential Migraine and headache preventives in Migraine preventive medications - too many options to give up!

  

Taking Migraine abortive meds such as triptans or ergotamines or any kind of pain medication -- prescription or over-the-counte, even for other conditions -- more than two or three days a week can make matters worse by causing medication overuse headache (MOH), aka rebound. See Medication Overuse Headache - When the Remedy Backfires for more information on this. So let's be clear, if we take certain medications, even if we are not taking them for Migraine, more than two to three days a week, we can have problems with MOH, which I'm pretty familiar with.Smile  

 

We probably wouldn't call insulin for diabetes a "bail-out" medication, or antiseizure medications for epielpsy that either. Why would we call medications, when used correctly, prescribed by our doctors to help live a better life without Migraines,  "bail-outs?" Such comments, even in jest, don't help Migraine stigma one bit. We owe it to ourselves to do better.    

 

 

 

 

 

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By grace99— Last Modified: 07/27/11, First Published: 07/19/11