• danni danni
    July 24, 2010
    I have "Complex Migraines" and Partial Complex Epilepsy (Left temporal lobe).
    danni danni
    July 24, 2010

    I cannot take the newest type (triptans, etc...)of medications available due to personal and maternal family history of heart disease.  (I was hospitalized specifically for the migraines and treatment - a 3 day program).  I was given Topamax and it initally stopped the migraines, but about a month after starting I had 2 episodes of "status" Partial Complex seizures (I have temporal lobe PCS and am taking Dilantin with full control).  I also have heart problems with ergotamines, nixing taking those as a preventative.  I am allergic to all NSAIDS except "Tylenol" (anaphylaxis).  Other seizure medications that were tried also caused seizures though not "status".  Some had severe side effects (liver) causing me to stop them.  The effects I am experiencing are similar to a stroke at times, but short lived. The headaches are there constantly. Any ideas? danni

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FROM OUR EXPERTS

  • Nancy Harris Bonk
    Health Guide
    July 26, 2010
    Nancy Harris Bonk
    Health Guide
    July 26, 2010

    Hi danni,

     

    It sounds like you are really struggling and I  know how easy it is to feel as if you've tried everything out there, but there are so many medications that can be used for Migraine and headache prevention that it's literally impossible. You can find a list of potential Migraine and headache preventives in Migraine preventive medications - too many options to give up!

     

    One of the most important and helpful things is to get an accurate diagnosis. To simplify matters and make it easier for people to get information and treatment, doctors usually go by the gold standard for diagnosis, the International Headache Society's International Classification of Headache Disorders, 2nd Edition (ICHD-II). "Complex Migraine" is not a standard diagnosis per the ICHD-II, and when it is used by doctors, it's used differently by different doctors. That makes it hard for me to know what kind of information to offer you about your Migraines. That's why it is so important to have the right diagnosis. Take a look at this article: Ocular, Optical, and Ophthalmic Migraines. Then you can read more about the different Migraines in: The Type of Migraine Does Matter.

     

    See here's the thing if your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists. 

     

    I hope this helps

    Nancy

     

      

    • danni
      July 26, 2010
      danni
      July 26, 2010

      Nancy,

       

      Thank you for your reply.  I looked at the headache specialists in my area and fortunately there is one in Dallas. I just live a suburb away.  It is time to get an accurate diagnosis as possible. The pain and symptoms have been lasting for years.  The "Complex Migraine" was diagnosed since the symptoms I had, as well as the headaches, were symptoms similar to a stroke.  Since I also have epilepsy, even though controlled, it confounded the ER and the Neurologist I  see (his specialty is epilepsy).  I can't begin to count the number of drugs we tried to include a 3 day inpatient stay.  Somewhere, somehow, something has to work.  Now that I no longer work (due to another medical condition that has me on 100% disability with the VA), I'm limited to the medical insurance that my husband has from retiring from the military.  Very few MD's will accept it and paying out of pocket unfortunately is not an option at this point.  But I'll keep on trying to find an solution. 

       

      Once again thank you so much for your help.  I will look into some of the articles you mentioned and see where I can go from there.

       

      Thank you,

      danni

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    • Nancy Harris Bonk
      July 27, 2010
      Nancy Harris Bonk
      Health Guide
      July 27, 2010

      Hi Danni,

       

      Try to see that Migraine specialist when you can, that may make all the difference. After you see him, let me know how it goes, ok?

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