I'd like to hear about anyone's experience with Spinal Fusions especially the type in which they fuse your cervical spine to your skull to prevent hindbrain herniation or Aquired Chiari Malformation. (Especially, especially if you also have a connective tissue disorder)
On the same wave length, I'm interested in any of you who have had surgery for Occult Tethered Cord which also affects the brainstem- and therefore, head pain.
Interested in -
the good, the bad and the ugly bare bone facts!
Thanks,
zoe
