My headaches are daily and sometimes they are over 1 eye or the other. My face aches a lot of the time and my nose is either stuffy or runny. I do every so often not have 1 in a days time. I been to lots of doctors and had lots of tests but everything comes back negative. Every so often I hurt in the back of my head on the right side by my neck and then it travels up my head to the top. Usually I say my head hurts in my sinus area of my face. I've had 3 sinus surgeries too and also had jaw surgery. They developed 3 months after having a hysterogrmy (sp). I've had them since Jan. 1984. I've taken a lot of medicine for them but nothing seems to help so any help you can give me would be appreciated.
Are you sure these are headaches, not Migraines?
A ask because of what you said about your nose being stuffy or runny, pain in the sinus area, and the "headaches" developing three months after a hysterectomy.
Many, many people think thy're having snus headaches because they have pain in the sinus area. However, sinus headaches are very rare unless you have a sinus infection. You can read more in Sinuses Giving You a Headache? It's Probably a Migraine. Also, it's not uncommon for the hormonal fluctuations following a hysterectomy to make Migraines worse and mroe frequent.
If this truly chronic daily headache, there are a multitude of treatments available. Nobody can tell you via the Internet what you should take. That has be come from your own doctor. If your doctor isn't able to help, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
Keep me posted?
Since you say the chronic daily headache developed three months after having a hysterectomy, have any of your doctors ever checked your hormone levels?
Increased migraines and chronic daily headache can be triggered by low ovarian hormone levels, especially estradiol (our bodys' most potent estrogen) and progesterone. Low levels can be triggered by a hysterectomy even if you retain your ovaries.
Oh yes I had my hormone levels checked and they were ok. I really think that a nerve is twisted and they can't see that so I just suffer. I also think sometimes I might have more then one headache at a time and that is why I have the real bad ones. Thanks,
Do you wear glasses? I have daily headaches as well, they get worse when I don't wear my glasses because I have astimatism. I've been through the mill of drugs and procedures. I've found that no caffeine helps me. Drinking it frequently makes the intensity worse. Also, DHE injections work better for me than triptans when I am at my worst (max use 2 days a week). I've recently been able to lower pain levels by deep breathing and light exercise. Still no solution though, just missed three days of work bc I couldn't get out of bed. Bad on prednisone for a few days, feel a little better today.
I use to wear glasses and that made no different, but I had lavsik surgery on my eyes and that didn't help the headaches either. I've stopped different drinks and foods and I didn't see any changes in them either. I'll try the deep breathing thou because that sounds like a good idea. Thanks,
I don't have an answer for you, but I suffer from the same thing. In addition, my neck aches, temples, pretty much my entire skull. I, too, have been to SO many doctors and had a TENS unit, chiropractic, phys therapy, nerve blocking shots to my head and neck, and so many medications, I've lost track (UGH). I've suffered for about 8 years and am done for a while with doctors. I finally went to a chronic pain support group and am hoping to learn to just deal with the pain and maybe find out what triggers it so I can avoid whatever it is.
I wish you luck!
Yes I have been thru all the things you mentioned you tried. I've even went a second time on some thinking maybe something changed but it was a no go. I've been too 3 different pain units and they taught you how to live with the pain but if you don't know why you have it, it is kind of hard to live with it. I'm really sick of them thou and lately they have been worse in my face hurting. Keep me posted on how you make out ok and I'll do the same. Thanks,
Yes, I had the feeling you had been through all that I have. I too have tried some things twice. I've been diagnosed with occipital neuralgia, spinal stenosis and arthritis in my neck, as well as tmj. I think they all contribute to me feeling so awful all the time. And, like you, I think there are different types of headaches going on at different times which makes it difficult to figure out what to do and the doctors just don't have any idea what to do with me.
Good luck to you.
I think the doctors just don't really care because it isn't a quick cure so they don't want to deal with it. We can't help it that we are different can we. ha,ha,ha Where do you live? I live in Florida now but when I got the headaches I lived in Dayton area of Ohio. Sometimes I thought it was where I lived but when I would go somewheres other than that area I still had them so I figured it wasn't the answer. I think we have to diagnose ourselves if we want any answers. It is nice talking to someone who has the same thing as me and been thru the stuff I have went thru. Take care and keep in touch. Sammy
I just thought of something else does your stomach feel sick or hurt you and not from the pills you take for your head either? If I tell a doctor my stomach is nausated he thinks it is a migrine and it isn't because the pills didn't make me sick or hurt but something did. I have a notebook with all my stuff in it and all the doctors I've seen. Did you ever try Botox? I did 5 times but it didn't help but it made my forehead real smooth. Well bye this time.
I don't get on here much, but I'd love to chat with someone who has the same issues as me.
To answer your question, yes, my stomach does hurt from the pain being so bad sometimes (today, for instance). Nope never tried botox, never have thought about that. Seems like I've tried just about everything else though... ugh!
Well, I hope you'll reply to me soon. =)