I just had another stroke from a vascualar migraine - this one on the right side. What do you recommend? First - at 25 - cva infarct left hemisphere, now on the right. My migraines are odd - very little pain in the head - like you haven't eaten in a while. Sounds confusing, photophobia, flashing lights are my symtoms. The migraines always happen while I'm sleeping, and I wake to stroke symtoms - confusion (not knowing my name or address) and serious aphasia. My neurologist can't figure it out. Unfortunately, migraines are eating away at my brain, bit by bit. ER doctors treat me as a psych patient, and don't understand that I don't understand spoken language. I avoid red wine, prepared meat (salami) etc., anything that seems to cause migraines.
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Kari,
-:¦:-•:*'""*:•.-:¦:-•*Welcome to MyMigraineConnection!*•-:¦:-•:*'""*:•.-:¦:-
I'm SO sorry to read what you're going through. There are a couple of suggestions I'd like to offer you...
1) Start learning all you can about Migraine disease. Migraines aren't vascular. Some of the symptoms are vascular, but Migraine is a genetic neurological disease, and the beginning of a Migraine attack is neurological. If you go to the home page of this site, there are many articles linked to from the index pages in the Find and Manage boxes. The more you know about Migraine, the better prepared you'll be to work as a treatment partner with your doctor to manage the disease.
2) Get yourself to a Migraine specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
Especially with the Migraines beginning while you're sleeping, it's vital that you determine what's triggering them so that if any of your your triggers are avoidable, you can work to have fewer Migraines by avoiding those triggers. When working to identify triggers one of the best tools is a good Migraine diary. You can read more about this and download a free diary workbook in our article Your Migraine and Headache Diary.
A Migraine specialist can work with you on identifying your triggers, finding effective preventive medications if needed, and finding the best treatments to use when you do get a Migraine. He or she will also try to help you stay out of the ER and might be able to send a letter to your ER and smooth the way for thse times when you must go there.
I know you're going through a rough time. If you'd like some additional support, come join our discussion forum. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.
Please keep us posted?
Teri
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