Tuesday, May 29, 2012
Saturday, November 20, 2010 justpatti99 asks

Q: I could really use some help in the battle against my daughter's headache (3+ YEARS).

On September 7, 2007, my daughter was hit in the face, specifically on the jawline, while playing in a soccer game.  Her opponent attempted to kick a goal and miscalculated my daughter's height, hitting her in an upward motion at the jaw.  She has had a headache every moment since then. 

 

She is 16 and a Junior in high school.  She used to be an honor student and a standout athlete.  Basketball is/was her sport, she used to play yearround with only one season of soccer to keep up her speed during a break from basketball. That one soccer game has robbed her of so much.  Last year she was absent from school 42 days and tardy/dismissed 18 additional days.  She missed honor roll by 2 points, which was quite an accomplishment since her headache level hovers around a 7-8 out of 10.  She has learned to work through the pain. 

 

This school year she has already missed a dozen or more days and is barely passing. Most days her head feels like it's going to explode.  She's decided not to play basketball this year, because she needs to focus on her headache/migraine getting better.  She is unable to make it through a full day of school most days and is becoming more anxious and depressed by the day.  Last year, she had a reaction to a medication and started having suicidal thoughts.  I have her in therapy weekly and was recently switched to Zoloft by her Psychiatrist.  I am researching botox for her and would like to know if there are any other treatment options for her to try. 

 

She saw a Pediatric Neurologist in the beginning, who released her from services when she didn't do well on Topomax.  His words were that she is neurologically sound and needs to accept that she will have a headache everyday for the rest of her life.  Can you imagine telling a 13 year old that?  She has had CT scans, MRI, OMM, and accupuncture.  She had to have her braces removed early because of the headache, and couldn't wear her retainer anymore.  She wears a bite guard to bed so she doesn't clench or grind while sleeping.  The OMM (2 years) and accupuncture (1 year) showed limited improvement.  She is prone to panic attacks, which actually started prior to her injury.  She was diagnosed with a Concussion, then Post-Concussive Syndrome, then Chronic Daily Migraines.Can anyone offer any suggestions in managing her pain level, treatments options or doctor referrals?  I really could use some guidance.

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Answers (1)
Nancy Harris Bonk, Health Guide
11/20/10 11:07pm

Hi justpatti,

 

 

Oh you poor things!! Not a very responsible thing for a medical professional to say to a child. Now, let's see what info I can give you to help the two of you out.

 

It is now time to see a "true" Migraine/headache specialist, the expert. Here's the thing, neurologists (whether they are pediatric or adult) may be fine doctors, but have a difficult time being experts in one area because they treat so many different conditions like MS, epilepsy and stroke. Migraine specialists are just that, experts in one area - ours - Migraine and headache disorders. Now that she is 16, she probably won't need to see a pediatric Migraine specialist, an adult Migraine specialist will be fine.  Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists .

 

We have information on Post Traumatic Headache you may find useful, Post-Traumatic Headache - The Basics.  I too have PTH from a fall almost 16 years ago. It hasn't been easy, you may want to read more about that here, My Migraine and Post-concussion story.

 

Let me know what you think,ok?

Nancy

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11/21/10 9:00am

The article on PTH was interesting, Katie has many of the 'symptoms' commonly experienced:  memory loss, cognitive impairment, inability to multi-task.

 

There aren't any specialists listed for the state I live in, but there are a couple listed in the next state over ( a 2-3 hour drive).  Well worth the drive if they can help.

 

Have you heard any feedback on Botox for migraines; good, bad, or indifferent?  I am willing to try anything and everything.  I have heard that it is quite expensive, but I am determined to help her.  I will figure out how to cover the expenses somehow.

 

I welcome any suggestions you can make.  We have felt alone in our quest to find a treatment solution.  When you say you've had a headache for 3 years, most people look at you like you're crazy.  It's nice to not be so alone with this.

 

Thanks, Patti

Reply
Nancy Harris Bonk, Health Guide
11/21/10 5:09pm

Absolutely, and so sorry I didn't give you the information in the first answer. The FDA just approved Botox for chronic Migraine. You can read more about this in Teri's new article, FDA Approves Botox for Migraine.

 

It may be well worth your travel to see a Migraine specialist. Many times a specialist will work with a local neurologist to continue a treatment plan once and accurate diagnosis and regime is in place.

 

Keep me posted, ok?

Nancy

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By justpatti99— Last Modified: 12/27/10, First Published: 11/20/10