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Botox injections for migraines? Anyone tried it, any bad reactions?

MigraineMom
05/06/09
MigraineMom
Topics:MigraineBotoxFDA warnings

Has anyone had any bad luck with the botox injections for migraines?  I was thinking of it for my son but now am worried after seeing the new FDA warnings.

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Answers (11)
PeaBrain
PeaBrain
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PeaBrain is high on life. . .oh, woops, those were narcs
Haven't got time for the pain. . .but it shows up daily anyway.

I've had migraine or tension headache since I was about 19. I'm in...

Wednesday, May 06, 2009

I personally haven't tried it (insurance doesn't take care of it), but my sister has.  She likes it because she was able to stop Topamax which she absolutely hated.  The only thing I ever saw wrong with her was her eyebrows sagging after her first injection because of the way her face was.  It gave meaning to the expression our mothers would say "your face will stay that way!".  Anyway, she has to go every three months for injections and if she waits too long, the headaches get worse.  I think I would definitely be more cautious though if using it on a child.

Christina Harris
Christina Harris
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Migraine sufferer for 25 years and counting...

I live in Antigo, WI. I have a wonderful husband and two beautiful...

Thursday, May 07, 2009

I haven't tried this procedure myself, but I have been doing research on it and it is supposed to be helpful.  I am considering giving it a try but am aftraid of bad reactions.  So far as I have researched, more people have had positive results than negative.  It also stated over and over to research the clinic and the doctor extensively before going ahead with it.  Many unfortunately don't have proper credentials...how scary. 

 

25 Year Migrain Sufferer

Antigo, Wi

Cole
Thursday, May 07, 2009

I have tried botox injections with no success for reducing migraine pain.  It does however have an effect on your forehead and the look of your face - so this is a big consideration especially for your son.

PinkPatty
PinkPatty
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PinkPatty is Had my LP last week and it was normal. I still have a headache from the LP and have been on bed rest for almost a week now. Hoping this will be gone soon and I'll be back to normal which is CDH and migraines.
Living with chronic daily headaches and migraines for 7 years +

Thursday, May 07, 2009

I have not tried it yet but discussed it with my headache doctor yesterday and have an appointment for a consultation in a few weeks with their Botox doctor.  My headache doctor is a specialist who I found from this site, just happened she was in my area, southern NJ.  She said that botox injections don't help as much with severe migraines as it does with chronic headaches.  I suffer from severe migraines, which I can control pretty well with Topamax.  I also have had a chronic daily headache 24/7 for the past 7 years.

 

I am very hopeful that this will help because I've not gotten relief from anything else I've tried for the daily headaches.

 

Hope this info helps.  I'll let you know if Botox helps me but it won't be for about a month or so.

 

Patty

vfnaomi
Thursday, May 07, 2009

yes i tried it several years ago had no reactions but no relief either, still almost dailiy migranesCry

stavsmom55
Thursday, May 07, 2009

hi~~ sorry to hear of your son having migraines.... poor kid!! 

 

i have taken botox for my chronic migraines for 2 years now....about every 4 months.  the 22 shots of pinching in 5 minutes have been a blessing for stress and weather pressure induced migraines.  they didn't help horror-moan-al migraines, but i've heard time will... *insert prayer here* ... 

 

i went to a dermatologist, and yes, insurance will NOT cover it from a derm...it's "cosmetic" .... oy yoy yoy...    however, i was told by my dermatologist that there are now neurologists that give botox shots for migraine patients and that there's a chance insurance  m i g h t  cover it from them.  check out your doctors....

 

depending on how old your son is... yes, caution for children!!  i had to switch dermatologists because my first one quit giving botox shots after the incident of a child dying up in canada. 

 

do your research, ask questions! 

 

they gave me back 95% of my life and they were totally worth every penny!   anyway, i would have had to spend about $450 on 10 pills of frova and you can only take up to 2 of them a week.  not so great when you get them daily~~ time thieves! 

 

take care and God's blessings and hope you can find relief for your son's~~

 

sincerely,

deb

bri83
bri83
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bri83 is not having a migraine, so thats good.

I am a 26-year-old female and have been living with...

Thursday, May 07, 2009

Hello,

 

I had given Botox a chance for migraines. I recieved shots over a period of 2-2.5 years. The first time I did it I was given 40 some odd shots all over my head and face. The results were a miracle. My migraines cleared up for 4 months straight. I thought I found a cure and my family was ecsatic. I went back for my follow up appointment and had the shots again. This time there was only 30 some odd shots. My migraines krept up in some, but still reasonable relief.

 

I had follow up appointments every 4 months and had to receive the shots. They started working less and less. I asked my doctor to take a break and reluctantly she agreed. She was convinced I needed more where I was convinced my body adjusted and needed a break. So after a 6 month hiatus I tried the shots again and nada. My migraines just were not responding. This time, however, I had a reaction to it. The right side of my face was droopy. My eye lid drooped so badly I couldn't see out of it. I even got an infection in my eye. It swelled, became red and had lots of soreness. It remained this way for 4-5 months until the Botox wore off.  My doctor was not concerned at all. In fact she wanted to continue the regimen!

 

I finally stopped the Botox all together and found a new doctor who agreed that Botox was just not the way for me. A few months later I heard about the FDA warnings and was really glad I was not with my previous doctor any longer. She never discussed the warnings and would still have me getting useless shots.

 

I believe Botox may be useful to some people and it is worth a chance. Sometimes the benefits outweigh the risks, but it may depend on how bad the pain is and how often. My migraines are weekly and leave me incapacitated. You might want to think about how bad your son's migraines are, his age, and do a little more research.

stavsmom55
Thursday, May 07, 2009

p.s.  my first dermatologist got migraines and used botox for herself! knowing the stress points, she would always give me 2 extra shots, 1 on each side of the bridge of the nose, just above where the bone ends.  that relieved the sinus area.  just fyi~~

Lori
Thursday, May 07, 2009

I get botox injections every 3 months down the back of my neck from my skull to the base of my neck and part of my shoulder. I have been getting these for about 10 years and have had no problems at all.

re: Botox injections for migraines? Anyone tried it, any bad reactions?
Jonee'
Thursday, May 07, 2009 at 05:40 PM

  I took Botox injections for over a year from a neurologist at a Headache center.  I had no relief from migraines, but it did help with TMJ pain.  My ins. would not cover the medication unless I picked up the Botox myself with prescription from Dr.  It is very expensive, not painful, but not for needle phobic people for sure or those w/ bleeding issues.  I did occasionally have a couple small bruises, and I would feel like my eyebrows would furrow while having migraine, but looking in mirror muscles would not look like it.  I looked great, people asked what kind of stuff I was using on my face, tightens up skin.  However, I have heard one must use Dr. very experienced in use of Botox or end up looking like Bell's palsy or stroke victim.  I did experience relief in neck and shoulder muscles where pain occurs.  Lasted about 2-3 mos at a time.

  In the long run, it was not worth it to help migraines; I still needed my back-up medication.  It is very expensive without insurance, must use experienced neurologist who uses Botox regularly.  I never had any bad reactions, but not helpful either.

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re: Botox injections for migraines? Anyone tried it, any bad reactions?
eliz
Monday, May 11, 2009 at 01:14 PM

May I ask if your injections are covered by insurance?

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eliz
eliz
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eliz is How are you doing?

Monday, May 11, 2009

I used Botox for migraines several years ago. I had the injections approximately 16 weeks apart. The miraculous effects lasted the full sixteen weeks the first time, but shorter each subsequent time. We had to increase dose and talked about changing type of bocculism. I did not personally have any other side effects that I noitced. In any case, the insurance company stopped covering it. Good luck

Jersey Mom
Wednesday, November 18, 2009

Hi,

My 15 YO son just had them last week.  He has been suffering from Chronic migraine after a mild head injury 3 1/2 years ago. Tried several medications and nothing has worked.  I did contact Allergan the makers of Botox to find someone in my area who is approved to use it for this purpose.  He is not a Neuologist but pain management. The day he had the injections he did not have a migraine.  He did come down with one the next day and still has it now at day 5 after injections.  His migraines run for 5 days. We were told that it does take a few weeks to work.  I am praying this is it for him as he has missed a lot of school since they are so debilitating. 

 

If your son is suffering  terribly I think it is worth it providing you have the right Doc-Preferable Ped Neurology.

 

My Dr worked with Insurance and it was approved for this treament.

 

Good Luck

re: Botox injections for migraines? Anyone tried it, any bad reactions?
Hope44
Wednesday, November 18, 2009 at 06:19 PM

Hi There,

I got botox injenctions 1.5 weeks ago for the first time.

It took 5days to see any relief.  At this point I would say my CDH intensity has improved about 30% and the intensity of migraines which I get on top of the CDH has decreased in frequency and intensity by about 40%.

 

I go back in 3 weeks for a review.  I am going to a pain management doctor who works in the same clinic as my neurologist.


I can only imagine how heart breaking it is for a mother to watch her son suffer so much.

I hope he gets great improvement, and don't give up until 3 rounds of botox.

 

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re: re: Botox injections for migraines? Anyone tried it, any bad reactions?
Jersey Mom
Saturday, November 28, 2009 at 11:57 AM

Thanks for your reply-  Do you know how many units you received? My son got 100units and was given 2 injections above the ears in the skull and 2 injections in the back of the neck area?  I am curious as to what other Dr's do.  It has been 2 weeks since the treatment and has had had 2 attacks of migraine each lasting 4-5days which is typical for him.

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This animation shows one of the key causes of pain during a migraine--changes to the blood flow within the brain.

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