OMG...you're not alone. I was put in a nursing facility because no one could help me. I became so confused, don't remember being in the hospital, etc. I was so lost. Now, I'm controlling these issues and confronting them head on. It's not going to take over my life. My problem is overmedication. The pain is awful i get seizures, TIA's, twitching over my right or left eye with severe tearing and nasal problems, slurred speech, hearing things, sleep paralysis which is the scariest!!! And ofcourse, the horrific pain which requires hospitalization. I became so violent and combative because I've been suffering for over 35 years. Misdiagnosed like you won't believe! I hope you don't live in Tampa, Florida, the WORST doctors except for Dr. Maria Carmen Wilson and Dr. Gipson(Emeritus) who are experts in this field, wrote an abstract about my condition which is connected to my heart. I have autonomic neurocardiogenic syndrome. It means "shut down of everything" in a nutshell. I also had cancer and was told I didnt have it. I have non-hodgkins lymphoma and they found a lump in my left breast. I've probably had this for years and doctors, to me, I've just dont trust them anymore and I tell them like it is. I have new docs in Miami Beach at Mt. Sinai Med Ctr and they rock. Very sweet, understanding and they understand and angry that I was abused and neglected by the medical community in Tampa.   I suggest a headache/migraine specialist. Like Terri stated, they are some neurologist who are not specialized in this field and they like to overmedicate. See Dr. Wilson in Tampa, she rocks.   Good luck, Gabby PS: it took me 15 mintues to reply to this email.