Monday, May 28, 2012
Sunday, June 01, 2008 LEE asks

Q: Does anyone else get burning in the head and face while on Topamax

Hi

Since I started Topamax I noticed a warm sensation in my head and face.It has been 3 weeks not and it has gotten worse ,it is now a burning sensation that is starting to really bother me.Has anyone else experienced this?If so does it go away?If not should I stop the pills? I spoke to my Dr and it appears its not a side effect.

Any info would be appreciated

LEE

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Answers (7)
Teri Robert, Health Guide
6/ 1/08 9:35am

Lee,

 

You're not the only person to ask this question. It was also asked HERE.

 

How much Topamax are you taking. According to the prescribing information, you should have started at 25 mg per day. At the end of three weeks, you would be at 75mg per week. Side effects may or may not stop over time.

 

Do NOT stop taking Topamax without doctor's supervision. You must taper down and off. Stoppit it cold can actually cause seizures.

 

Teri

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6/ 1/08 10:53pm

In my experience, NO, it does NOT go away.  When I told my doctor about the burning he insisted I wasn't taking enough.  The stronger the dose, the worse the burning got. I finally weened myself off of it since he wouldn't listen.  Burning is finally pretty much gone, but it took about 6 weeks for it to get to this point and an acupuncture session. That has done me more good than anything and I'm going to continue with it. They believe it will totally get rid of my migraines after some sessions.  Which is better than just treating the pain. I want the root of them taken care of.  Please try to find something else before you end up living with nightly icepacks. Good luck and God bless!Innocent

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Teri Robert, Health Guide
6/ 2/08 11:00pm

Dear Browneyedkygurl,

 

You mentioned acupuncture, believing it will "totally get rid of" your Migraines, and wanting to get "the root of them care of." I'm really glad teh acupuncture is helping you. Still, I want to be sure that you realize what you're dealing with here. Migraine is a genetic neurological disease. Neither acupuncture nor anything else can totallly get rid of them because we don't have a cure for the disease at this time. It's possible to find treatments that will prevent most of them, but not to totally get rid of them forever. The "root" of the Migraines is genetics, which predisposes us to Migraines when we encounter our triggers.

 

Hope this helps and that the acupuncture continues to help you.

 

Teri

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6/ 6/08 10:22pm

My doctor did not inform me about any side effects of Topamax besides weight loss. I am getting off of it because of how negative the side effects have been for me, but I think it is different with everyone. I noticed a tingling in my hands and especially my feet. I think it is from the Topamax. It felt like my feet were falling asleep.

 

I don't know what dosage you are on but just watch for mental changes. I felt like I became a different person on Topamax. It made me extremely anxious and paranoid. Please don't let me scare you, it may be the perfect medication for you.

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10/28/10 5:30pm

Hi, my name is theresa and i take topamax as well and yes it makes my hands and feet tingle and fall asleep and i take 400mg. a day, i hope to be off it soon cause i don't like the way it makes me feel, i'm going to see a migraine specialist in tampa ,florida and i hope she can help me and put me on something else.

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1/10/12 2:18am

My name is Casey I take 200 mg of topamax a day so far and it is helping but my hands tingle and my feet fall asleep all the time sometimes I wake in the night in so much pain from my feet this I do not like I wish it would stop

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1/10/12 5:28am

Hi, my name is Bev. I'm sorry to see all the negative things about Topamax. I have hemiplegic migraines. I used to have 2,3,4 episodes a day. I had no life. I started taking 600mg of Topamax a day and now I'n down to about 2 episodes a week. Still not much of a life but a heck of lot better. I agree I do have some tingling in my hands but I hardly notice it anymore. I've been on Topamax for about 6 years now and I guess I'm on one of the highest doses. Now if I could just find something for the horrid,horrid pain. Well just wanted to give my thoughts on Topamax and I hope you all find something to help you as well. Good Luck.

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By LEE— Last Modified: 01/10/12, First Published: 06/01/08