She has been seen by 2 different pedi. neurologest. Twice we have had her put in the hospital for DHE treatment. The first time it was not successful. When we took her to see a doctor out of town she had the treatment a differant way and it worked. Within 24hrs. of being pain free the migrain came back. she is on enderal & topamax. She has had botox & no beter! Blurred vission has also been one of the affect of the migraine. when the migrain went away her vision was still blurry.We just want help! As a mother just watching your child suffer day after day i am pleading for help! Please! someone help my baby. she is no longer a care free child who gets to be silly and carefree. She is a sick, tired, weak little girl. My little girl is a great kid. She makes good grades &loved to be at school with her friends. Basketball is her passion! PLEASE HELP!
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Q: my daughter is 13 she has had the same migraine since 1-20-09. We need help! .
j l c paul,
Is your daughter's vision still blurry? Was it blurry before she started taking Topamax? If vision problems arise as a possible side effect of Topamax, it is extremely important to talk to the doctor who prescribed it. Topamax has some potentially serious and permanent visual side effects. You can read more about this in Potential Vision Issues with Topamax.
A single Migraine that lasts 72 hours or longer with less than a solid four-hour pain-free period, while awake, is termed status Migrainous. You should see your doctor or go to the emergency room if a Migraine lasts that long. See Status Migrainous - The Basics for more information.
At this point, as you know, stopping this Migraine needs to be a priority. When oral medications have failed, IV infusions will often break the cycle. For more information about this, see IV Treatment of Refractory Migraines.
Do you know what any of her triggers are? When working to identify triggers one of the best tools is a good Migraine diary. You can read more about this and download a free diary workbook in our article Your Migraine and Headache Diary.
Above all, don't lose hope! There are now over 100 medications and supplements that can be used for Migraine and headache prevention. The frustration of trying to find what works for us can make it seem as if we've tried it all, but with so many possible preventives, it's literally impossible to have tried them all. See Migraine preventive medications - too many options to give up! for more information.
If your daughter's doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
I know you and your daughter are going through a rough time. If you'd like some additional support, come join our discussion forum. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.
I really feel for you. My Migraines started when I was six. One of our granddaughters had her first one at two and a half. It's hell to watch our little angels go through this.
Hope this helps,
Teri
You just wrote our story, we have been to 2 neurologist, 1 neurosurgeon, allergists, dentist (TMJ), eye doctor, chiropractor, physical therapist, family doctor. Three ER visits with med in IV. Migrain was gone for a while but came back. She was on amitryptalin but had bad dreams and thoughts. Now Topamx with a slow build up to 100 mg. daily. She has had this migrain for 7 weeks. Started with head aches after she feel and hit her head. She has a mild Chiara "google chiara" to find out. You are not alone. We are wondering if the weather, Ohio Valley, isn't having something to do with this. Several kids in her school are struggling with headaches/migraines. Keep us posted if your daughter has any relief. By the way, my daughter is 14, good student, cheerleader, loved by her classmates and teachers. We are so sad!!
Have you considered taking her to see a Naturopathic doctor? You can google this type of doctor to find one in your area. Did any of the doctors run a blood hormone panel?
I've suffered from migraines for years, the longest lasting 18 days with 3 hospitalizations. Nothing worked, and never once during that time did anyone ask me what I was EATING. Turns out (after 2 years of trial and error) that I react to onions with severe, long-lasting migraines.
Your daughter should immediately stop eating whatever she's been eating. Put her on a bland diet (I used boiled chicken and rice) for 3 days and I bet her migraine goes away. Then, begin adding in ONE food item at a time and see how she reacts. It will take some time, but I bet it will work for her.
Your comment about pain returning after 24-hours really hit home with me. Migraine medications work well...for about 24-hours. Migraines will always come back if you are still ingesting the same triggers. If you avoid those triggers, the migraine will diminish within 3 days, and sometimes you just have to go medicine-free on the 3rd day and let it play out. Over-medicating and actually cause a headache, especially if you're using over-the-counter meds like Ibuprofen.
I'd be interested in hearing how your daughter does.
Nina
Not to alarm you but my nephew went through the samething with the same symptons and no doctor could figure out why he kept having these on a daily bases. Finally an ER doctor tested him for mangiast and that is what he had.
My nephew almost died because it went on detected for so long. Please google signs of mangiast and compare them with the symptons your daughters have.
Good luck to you
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