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Sunday, November, 29, 2009
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What would one do if they recieved an ons and didn't know it till a few years latter.

toboe25
05/26/09
toboe25
Topics:occipital nerve stimulatorNeuralLink

Back in 2006 i recieved an ONS unknowingly, it was only mentioned to me by and MRI tech in 2008 and again recently shown to me between pictures during a head x-ray. How would i go about getting the doctor to recognize me and help me. I am suffering quite a bit of abuse through it and cannot get the doctor to help me or even call me in to explain things. It has helped me a great deal since being turned on in 08, i am acctually able to function again. But there are so many other draw backs due to other circumstances that it kind of negates it.

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Nancy Harris Bonk
Nancy Harris Bonk
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Community Manager


My first real experience with chronic head pain...

Sunday, May 31, 2009

Hi toboe25,

 

Were you in a clinical trial? How did you "unknowingly" get the ONS? Do you mean the doctor who implanted it isn't calling you back? That is totally unacceptable. If you were in a trial, weren't there follow up proceedures to do?

 

I would go right to the doctors office since they haven't been returning your calls. Or you could call and speak with the office manager, telling him/her what is going on. If none of those options work, you may have to try another doctor.

 

Let us know what happens ok?

Nancy

 

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