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Taking Topomax for Seizures..hair thinning. Anyone experiencing this side effect! please let me know

DiStReSSeD
10/28/09
DiStReSSeD
Topics:Topamax

Please tell me that the side effects of Topomax is reversible..I have been on this medication for 7 + years for seizures. I recently noticed that my hair is thinning terribly, and the numbness/tingling has increased. As of yesterday my neurologist has decreased the medication from 400mg/day to 300mg/day. Has anyone out there experienced hair thinning or hair loss from the medication. I am devastated because the confusion, unable to concentrate, or understand are coming from the medication. I am about to discontinue the medication without the approval of the Doctor. So please someone out there tell me what I should do. I am 39 years old, and very depressed because my hair is my pride & joy. Are these side effects reversible @ all.

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Teri Robert
Teri Robert
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Author of "Living Well with Migraine Disease and Headaches"

Patient advocate and writer Teri Robert's career moved in this...

Thursday, October 29, 2009

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Most of the potential side effects are indeed reversible. The only one I know of that isn't is the rare cases where it's caused glaucoma. When I tried it for Migraine prevention, I had horrid cognitive side effects too. A few weeks after I took my last dose, those side effects were completely gone.

 

Please DON'T stop taking Topamax on your own. Stopping it suddenly can cause your seizures to be worse. You need to discontinue it slowly, under a doctor's supervision, and you probably need a medication to take its place for your seizures. OK?

 

Please keep us posted?

 

Welcome again,

Teri

re: Taking Topomax for Seizures..hair thinning. Anyone experiencing this side effect! please let me know
DiStReSSeD
Thursday, October 29, 2009 at 02:55 PM

Thank you for answering my question, and my vision also changed!!! I was diagnosed with nearsightedness. I was tested for cataracts & glaucoma, but tested negative. I'm just deathly afraid of the changes my body is going through. I went to my primary doctor today to confirm that my hair has thinned, but she also stated that I am not on any hormone therapy, and this is a big factor. I had a total abdominal hysterectomy at the age of 28 and was taking premarin 0.625 orally, and then taken off at the age of 35 due to smoking. Now i dont take anything at all, but today i was given another form of premarin (premarin cream). This still isnt going to be enough to help my hair. This issue along with the Topamax...I dont stand a chance with my hair :(  I'm just sitting here losing it, and feeling very depressed!!!

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