I was told that I have intractable migranies in May of this year. In July, my doctor told me that there is nothing else he can do and took me off all my medicine for migraines. I have a referral to a headache clinic, but that isn't until Jan. 2009. Currently I am on Zofan for nausea and nothing else. I've had a painful migraine now since the end of June. I pretty much can't do anything which is horrible for my kids. What else can I do? What are the chances of my daughters having migraines?
"Intractable Migraine" isn't a diagnosis, rather Migraines that haven't responded to treatment. But being off all medications is not the answer either. If you look at your other question, I've given you some information that may be helpful.
I completely agree.
I suffer from Chronic Acute Daily Migraine. The pain never ends. I suffer from exacerbations which is when a railroad spike is being hammered into my skull. I have now gotten to the point that I have to file for disability. I have tried to work but can't be dependable and the chronic pain is affecting focus, concentration, memory and cognitive thinking. I can't keep my train of thought. When people are speaking to me I have a delayed reaction and don't respond for a couple minutes but it's like I only just heard it. I get laughed at for it but it's not funny. I used to have perfectly good typing skills and was in spelling bees as a kid now I forget where keys on the keyboard are, I misspell words and sometimes I just stop typing and space out.
But my neurologist has gone thru hell and back trying to help me. Unfortunately we have found no cause and almost every med that we've tried has caused severe hyperglycemia (high blood sugar) so I can't take them. I even had this reaction to a cortizone shot to the back of my head. I have been relegated to Ibuprophen, aspirin (I have bad reactions to other NSAIDS), and some Triptans like Frova and Imitriex.
I feel that this doctor simply gave up on you. By taking you off of everything you were on he took away any, however small, benefit you were getting from those meds. I would get away from that doctor and find a neurologist. If this doctor is a neurologist, find a different one. Get a copy of you medical records so the new doctor has the information possible to help you.
Bobbi, Cedar Rapids, IA.
My daughter's (14) migraines, still undiagnosed, turned chronic in May after a viral infection. I have an appointment with a specialist for her in February 2009. They can't get her in sooner and couldn't refer me to anyone else that specializes in migraine. Hang in there. I was diagnosed with fibromyalgia in 1999 as well as having migraines. I had a 6 year old and a 10 year old. I was also taking care of a mother with alzheimers. I understand not being able to do anything with my kids. It was very, very hard.
That is just way to much suffering for anyone . Jan 2009 I bet he could do better than that. Maybe someone can help advocate for you to get you in sooner.
Best wishes. kja