• Btmarsh Btmarsh
    October 11, 2012
    VCFS and Headaches, Stomachaches, and Muscle Pain
    Btmarsh Btmarsh
    October 11, 2012

    My 15 year-old daughter has Velocardiofacial Syndrome and frequently complains about headaches, stomachaches, and back and muscle pain.  I have taken her to her pediatrician and our family doctor about this.  Her pediatrician seemed more concerned that she was a victim of bullying than that this could be a health issue.  Her dad and I both teach at her school, so I think we'd know if there was bullying.  She seems to get along fine with everyone.  She has battled with anemia, and even passed out one day this summer.  The ER doctor thought it was a combination of the heat and the anemia. (She's taking iron supplements.)  I'm just wondering if these symptoms have anything to do with her VCFS.  Although the genetic team that diagnosed her said this syndrome occurrs in 1 in 2000-5000 births, most doctors we've seen seem unfamiliar with it.  She is taking PE and doing yoga, so I tend to think the "back pain" and overall "muscle soreness" is just a part of that, but I always worry that I'm not taking her seriously enough because it seems she is always saying that her head hurts, stomach hurts, or muscles hurt.   HELP!

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FROM OUR EXPERTS

  • Nancy Harris Bonk
    Health Guide
    October 11, 2012
    Nancy Harris Bonk
    Health Guide
    October 11, 2012

    Hi Btmarsh,

     

    This really is outside our area of expertise. Has she been also diagnosed with Migraine?

     

    I wonder why her doctor is concerned about her being bullied? Did she meet with the doctor privately? I know when my teens turned 15-years-old, they met with the doctor alone. They talked and were examined alone, then I came in for any questions and concerns. 

     

    Even though you work in the same school, she may not feel comfortable talking to her parents about being bullied,  like most teens, but was able to discuss it with her doctor. You may want to look into that a bit more.  

     

    Good luck

    Nancy

    • Btmarsh
      October 12, 2012
      Btmarsh
      October 12, 2012

      Thanks.  I'm pretty positive it's not a bullying issue.  No, he didn't talk to her alone. I think he just thought that because bullying is such an issue these days and maybe he thought she was using the "headache, stomache" thing to avoid going to school.  She had complained of both all summer as well.   I didn't realize when I posted that this forum was for "migraines."  It just popped up when I searched "headache and stomache."  Thanks for your help. 

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    • Nancy Harris Bonk
      October 12, 2012
      Nancy Harris Bonk
      Health Guide
      October 12, 2012

      If that's the case, she needs a doctor who will listen to her issues and concerns, not ignore them. 

       

      I totally understand the bullying issue, teen life is so very difficult today. I hope you find the help for her she needs, you sound like a wonderful mom and are on the right path, I just wish I could be more helpful.

       

      Good luck

      Nancy 

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    • Btmarsh
      October 12, 2012
      Btmarsh
      October 12, 2012

      Thanks!

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    • Nancy Harris Bonk
      October 12, 2012
      Nancy Harris Bonk
      Health Guide
      October 12, 2012

      My pleasure!

       

      Smile

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