Nancy,   Thanks so much for the continued reply.  I totally agree with you that some "specialists" are not really specialists.  Right now we are trying to figure out if there is some cardiac issue that is causing the orthostatic hypotension that has been present all along.  He has tried a little exercise with a VNA Physical Therapist, but got too lightheaded to continue and this resulted in extreme fatigue for two days and more symptoms.  He has had a murmur in infancy that we were told closed, but now he has a murmur again.  I got copies of the EKG done when he was an infant and it has words like supraventricular tachydardia, atrial flutter, left posterior block, acute pericarditis, inflected t-wave, st and t wave abnormality, possible anterclateral ischemia, abnormal ECG.  But the doctors told us he was fine and no heart problem.  Is the artial flutter causing some atrial insufficiency that is causing these symptoms?  All questions I have for the cardiologist.  Hopefully she can answer them or refer us to someone who can.   I will keep you posted.