Tuesday, May 29, 2012
Thursday, July 23, 2009 Astronomer asks

Q: Does anyone have experience with an occipital nerve block for migraine prevention?

Has anyone had any experience with an occipital nerve block for migraine prevention? It's relatively new (insurance company calls the procedure "unpoven") and I've had mixed success, was curious as to the experience of the rest of the community.

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Answers (13)
Nancy Harris Bonk, Health Guide
7/28/09 9:21pm

Hi Astronomer,

 

Occiptial nerve blocks aren't really a new treatment for Migraine prevention. Occipital nerve blocks, an injection near the occipital nerve, uses lidocaine (and other medications) to block the pain. The benefits from these blocks are temporary. Some people get relief lasting for weeks, months, others only a few days. 

 

Sometimes it is worth the relief though. A another thought may be to see a Migraine specialist.

We maintain a list of Migraine specialists who are recommended by patients or by Migraine specialist I know and trust. Hopefully, you'll find one there. Take a look at Patient Recommended Migraine and Headache Specialists.

 

I hope this helps,

Nancy

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7/31/09 2:47pm

You are so right. Nerve block in my experience has been no more than temporary solution

to  life long migraine problems (average 18 a month). No matter how much occipital therapy, pillows and neck strecther have given relief. Seeing a migraine specialist means following; Drug treatment  - usually triptan . Then if that does not work, how about Topamax (anti seizure medication)? The latter has side effects. For myself - memory loss - a detriment in my work as a teaching artist.  Then years of Triptan drugs accompanied by Fiorinol, controlled substance, a cocktail that works, but then for how long? Nearly 45 years of pain and never a soluton, I just don't think the best Migraine Specialist is able to find answer for the hardcor Migraineur.

Kari-Unn

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Nancy Harris Bonk, Health Guide
8/ 7/09 11:42pm

See here's the thing -  we usuall assume that neurologist are headache specialists, and some will say they are, when in fact they are not a "true" headache/Migraine specialist. Migraine specialists devote their entire practice to treating one condition - ours- Migraines and headache disorders. Neurologists treat so many different conditions like MS, epilepsy, stroke and Parkinsons, it is hard for them to be experts in one area.  So if your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist.  Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.


Does that make sense?

Nancy

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7/23/09 10:25pm
Lifelong sufferer here (age 65) who went through that experience. Same as you, mixed results - none of it worthwhile. This was back in the late '80s so it's not new. The procedure consisted of two injections on each side, plus acupuncture needles up the nose (now that was a unique experience). Can't remember what they used at all for a drug. The buzz-word they were using back then was 'nerve blocks'. Reply
7/30/09 11:12am

Yes, I have had it done three times.  My Pain Management provider does not like to do them often, because it is basically injecting steriods into your body.  But due to my chronic daily headaches we were going to do them every 6-8 weeks.  Fortunately, around the time of the appointment I can manage my headaches with a good massage and my midrin.

But I have to say those three times I have needed them and they have helped a lot!  I have not had it to Prevent a migraine exactly, more to get ride of one.  And the relief is almost instant.

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7/30/09 11:17am

Yes, I had one in Jan.09. Yes, had the same problem with my med ins. As of now, it's not been taken care of.

As soon as they started it, hot flashes started, finally after months of dealing with it, my GYN doubled my hormone.

Also since the procedure, my ears feel like bugs crawling in them.

Talked to Pain doctor about both, hot flashes and ears, said it had nothing to do woth the procedure.

I keep my doctors puzzled all of the time!

This month, I'm getting a new headache pain. Runs from bottom left side back of my head and shoots to top of my head.

But headaches have been alot better since the procedure.

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7/30/09 12:32pm

I don't know if this is applicable, but my 13 year old son son has been receiving botox injections for the last 9 months.  They're the only thing that stops his severe chronic pain.  The botox lasts @ 3 months.  Last week he had over 20 shots into his neck, head, temples, forehead & brows.  His pain originates in his neck and comes up and stabs him in the left eye.  Prior to the botox, he was totally disabled, missed 7 months of school. (The pain had started at age 4, progressed to every day.  He would freqeuntly vomit & pass out w/ the pain.)   Nothing was working and the constant pain led to depression & suicidal thoughts.  He's at a teaching hospital and is the first child they've used this on.  He's totally pain free for the 3 months the botox is in effect , back to school, off all meds now that we've found the botox.  He has his life back!  Note, however, that it is not being paid for by insurance because it is considered experimental.  We had not tried nerve blocks prior to the botox, but had tried lidocaine patches that did not help.  When the botox wears off, he's non-functioning until we get the botox again.  The doctor will only use the botox when the pain returns vs. preventive.  The advantange with the shots is that he's off all of the meds he was on vs. having the meds go into his organs.  Hope this helps.

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7/30/09 1:34pm

I've tried several occipital nerve block injections, each tweaking the exact location of the injections.  Each time, I've had no relief.  Hope you have more success than I did.

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7/30/09 2:52pm

I have the nerve blocks done every 90 days....sometimes they work for 2 mths and sometimes it only works for a couple weeks, but to be honest it's well worth it to get relief from migrains for a few days, because of the severity of mine....i would highly recommend them...and no my bcbs will not pay for them.  i have to pay out of pocket 90 dollars every time i get them.Smile  Hope this help you!

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7/30/09 5:08pm

Reply re: occipital nerve block

 

I just had a nerve block on Tuesday, July 28th, two days ago.  This time it was in the area close to the occipital nerve and also had facet joint injections.  I've had this procedure done twice before, this time being my third.  The first time, the relieve was moderate to mild, lasting 3-4 months.  The second time I hardly got any relief.  Both times I followed up with physical therapy/soft tissue therapy to neck/head/shoulders.

 

Since it's only been two days, it's hard to say what's going to happen this time.  But I am hopeful; here's why.  There have been t-storms yesterday and today in our area, usually I get some kind of headache or migraine from this type of weather.  None so far!!!!

 

My insurance has paid for them each time.  One time they tried to deny it, but my providers are very good and came back and told insurance that Medicare pays for this procedure so they should too, so insurance ended up paying. 

 

Good luck.

 

Also, talk to your doctors about RFA - that is one step further and may help too.  I've had that done too.

 

S

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7/30/09 11:17pm

I had occipital nerve blocks -- I think twice -- but without success. My insurance did cover them. I tried trigger point injection, too, after that. I haven't wanted to do the one where a needle is guided into my neck by X-ray (can't remember the name). I have fibromyalgia and each time the pain from the injections was worse than the headache.

 

I give this experience, but I'm a "sensitive" when it comes to treatment, medication especially. I've heard it's done wonders for other people, so I still suggest it to people with chronic neck pain and headaches. What doesn't work for me might work for someone else.

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7/31/09 1:12pm

I get triggerpoints and occiptal nerve blocks --  approximately eight shots into the scalp, neck and shoulder-upper back areas-- every four to six weeks. Sometimes the shots are just lidocaine, sometimes lidocaine and prednisone. Doc limits the prednisone because of the effects it can have on autoimmune system. The nerve blocks and triggerpoints are among the few things that I can really say really help what was ruled as chronic intractable common migraine. They usually wipe me out for a day, as they leave me dizzy, "stupid" and nauseous, and I need to ice the injection sites. Also they don't get rid of the migraine episodes but they do significantly lessen or eliminate the actual headache pain. it's very odd. I'll get the other symptoms -- speech issues, nausea and gastrointestinal distress, sensitivity to light, noise and odors, the "stupids" and fatigue -- that I would ordinarily get with a migraine. But I don't get as much pain and so can treat the migaine symptoms without using as many painkillers, triptans or DHE. I also see a chiropractor for spinal issues, a hypnotherapist for stress assistance, and take several preventive meds (cymbalta, depakote, klonopin) and vitamins/minerals (mag-ox, B2 and CoQ10). And of course my rescue kit includes sunglasses, earplugs and icepacks. The nerve blocks create a bizarre sensation for the first couple hours. My whole head goes numb. I lie on a pillow and feel the sensation of puffiness from a pillow but not feel the pillow. But that passes. They have broken migraines in progress that were bad enough to have me in tears.  As you might guess, musculo-skeletal issues have a lot to do with my headaches.

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7/31/09 2:21pm

I have had a combo of numbing medication and steroids. I have not personally found the steroid medication to have a lasting effect, however the numbing medication can be helpful. I did find that just the occipital block did not relieve the head pain in and of itself and when the doc came back he tracked down other areas where the pain was and I found that I had further nerves involved with the migraine. When he got each one the head pain stopped for a while no pain then it came back on in a few days.. worked for the acute situation or to get me out of the the several days of pain and that particular episode and not unfortunately long term so I tried radiofrequency ablation and that did not work at all on the occipital nerve despite the migraine headache clinic neurologists swearing it would because the "acute situation" was relieved after several days of an attack being better....  and it was very painful (the ablation).

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8/ 2/09 10:47pm

I did have the occipital nerve block in the ER, when other treatments weren't working. I didn't find that it helped at all and my neck was quite stiff a couple days after the treatment. I also found out afterward that my insurance didn't cover it. The ER doctor that gave it to me, did say that he has had good luck with other patients.

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8/11/09 9:14pm

Following a third (!) auto accident in 10 years I was daignosed w post-traumatic migraine after experiencing head pain for 14 days straight!  (Plus nausea, fatigue, weakness. )The doctor hooked me up to heart and blood pressure monitors and, with a nurse present, injected my skull muscles in the back of my head (suboccipital areas) with "Marvacaine."  I had partial relief 1-2 days later.  A second injection was done, again with partial relief 1-2 days later. These injections are difficult: the patient must be brave and the doctor must be sure of his skills.  A third injection was done (2002) and I have never -repeat never- had another migraine. (7 years)

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By Astronomer— Last Modified: 12/27/10, First Published: 07/23/09