Tuesday, May 29, 2012
Saturday, January 03, 2009 MLEBEAU asks

Q: Reading info and crying my eyes out

As I sit hear and read all the question and answeres and info about migraines I find myself crying because I still am having a daily headache that turns into a migraine everyday and want answers. But everyone seems to say that Imitex and those types of meds are the best to take. What happen to the people that cannot take those? I am under my doctors care and all he says is we have to get through this. Its going to take awhile see you in six months here is a new rx. I am tired of the rx's. My Family does not understand and I feel like I am going out of my mind. I wake up and I take meds I go to bed and I take meds nothing seems to work. 14 years of migraines and the last 3 1/2 weeks after my hysterectomy has been a nightmare. I am on a prevenative and anti depressant and pain meds for the migraines. Where do I go from here? I truly feel I have no where to go from here except learn to live with it.

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Answers (4)
1/ 5/09 11:10am

MLEBEAU,  

 

Know that almost everyone on this site has felt how you feel right now. You are not alone!  

 

Some of the best things you can do for yourself - you are already doing! Educate yourself! Read! Learn! Ask Questions! This is why there is a site like this!  

 

The best advise I think anyone here can give you is don't give up! Keep trying to find answers for yourself - and if that means firing a few doctors, then so be it! You deserve the best medical treatment there is!  

 

You didn't mention in your question how long you have been on your current preventive plan, but it can take up to three month to notice any benefits from it.  

 

Now, onto the serious stuff. You should NOT have to wait six months for an appointment with your doctor. Most follow ups are done every 6 weeks to maybe every three months. It may be time for you to check out a Migraine Specialist.  

 

Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.  

 

As far as family and friends not understanding - been there! Done that! And it is the most frustrating thing in the world! Teri Robert came up with some really great information for friends and family who "don't get it" which I strongly encourage you to share with anyone you care about. Migraine and Headache Information for Those Who "Don't Get It" will explain that Migraine is NOT just a headache and that it is a genetic neurological disease for which there currently, is no cure.  

 

You mention you have a "daily headache that turns into Migraine"....are you sure this is not Medication Overuse Headache, aka rebound? Take a look at Medication Overuse Headache: When Remedy Backfires. If this is the case, preventives will not work until the MOH cycle is broken.  

 

Have you tried Midrin to abort Migraine? It is commonly used in Migraineurs who cannot take triptans. If you have not tried it, ask your doctor about it.  

 

You mention you recently had a hysterectomy? This can make Migraine better, worse, or have no affect at all. No one can say one way or another how hysterectomy affects Migraine, since everyone is different.  

 

I know you're going through a rough time. If you'd like some additional support, come join our discussion forum. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.  

 

Good Luck! I hope to see you over on the forum!

Eileen Gray

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1/ 4/09 1:35am

Just read your last question and I really feel for you. I do know what you are going through because I was there 12 years ago. It does seem that nothing is working and you have no one to turn to but you do need to remember that you have just gone through major surgery and your body is trying to heal and adjust to the new hormones, if you also lost your overies as I did. I remember my head hurting so bad I didn't want to move and nothing worked at first. I could get rid of the migraine with Imitrex but could only use it three times a week. It did take a few months for the preventive, Indreal to kick in and then I went to a mirgraine every other day and then every third day. I found an ice pack on my head helped, and I now use Head On, on my forhead to help cool it down. There are a lot of meds out there and you will find the one for you.

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1/ 4/09 12:14pm

I felt the exact same way for a looong time. I was on 2 different preventatives and taking imitrex 3 or 4 times a week. The doctor I was seeing just kept piling on the perscriptions without even really listening to me. Eventually I ended up in the ER with a 4 day migraine that wouldn't go away. After that I found a different doctor - who explained to me that my headaches were so bad and so frequent BECAUSE of all of the medications, especially the imitrex (which causes rebound headaches).

 

I've been detoxing on all my meds for almost 3 months. I feel fantastic. I can't believe I accepted the way things were for so long. Aside from being off medications, I have been seeing a holistic n.d and special message therapists.

 

I know exactly how you feel. You feel hopeful when you take a new medication and then you just get let down all over again. Then you lose your hope completely. There are plenty of other options out there that don't even involve perscription meds.

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4/ 7/09 5:55pm

You're not alone --I can't use Imatrax or any of the others that most use because ofstents in my heart.. and yes I suffer daily too and yes it stinks-I had a manager who had never had a bad headache let alone a migraine and she wrote me up for to many call outs at work because of my migraines  Cry I hope karma bites her in the butt--oppps sorry.I carry my pain killers in my pocket at work and also my midrain. At times I wish I could stick my head in the ice machine but can't. I print off what I can from here and give it to another manager who has compassion  who suffers from migraines also but not like us.

            Keep your food journal,weather for the day-down here rocket lanches( I live  abouts10 miles  from where they send them up from in Central Florida.

      I can't afford togo to the ER all the time and hate sitting at the neroligest office till he can give me a shot.

     Sorry about babbling on-just know there's alot of us here wwith you.

                                                             HUGS

                                                                 Midnite

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By MLEBEAU— Last Modified: 12/18/10, First Published: 01/03/09