Friday, April 25, 2014
Monday, May 03, 2010 LPichotta, Community Member, asks

Q: Whole Body Migraine

I suffer from Migraines not only in my brain, however also in my spine and large joints. I have difficulty walking during & after a migraine because of the severe pain.

When I get a Migraine it not only affects the blood vessels in my brain. I also have severe joint & muscle pain in my spine, neck, hips, feet. What percent of migraine sufferers have these same symptoms?

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Answers (2)
Nancy Harris Bonk, Community Member
5/ 4/10 5:55pm

Hi LPichotta,

 

I'm sorry to say there are no statistics on the number of people who have symptoms like the ones you experience. There may be other Migraineurs who suffer similar signs like you do. 

 

Good luck

Nancy 

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LPichotta, Community Member
5/19/10 12:53pm

Thanks for your reply. My Neurologist, Dr. Richard Golden also a migraineer, suffers from similar symptoms. I am going to have Nerve testing soon to find out if there is more going on than just migraines. I have also asked to be included in a clinical trial regarding PFO.

 

 25% of adults has a patent foramen ovale (PFO), a small opening between the upper chambers of the heart that allows some blood to bypass the filtering system of the lungs.

Studies have shown a higher prevalence of PFO among people with severe migraines, leading some researchers to think migraines may be triggered by small clots or chemicals that reach the brain with the unfiltered blood.

 

I will post updates. 

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Murphy, Community Member
5/ 3/12 2:05pm

I would love to know the outcome of the nerve study.  I have talked to many migraine sufferers and no one I know has had the "hit by a bus" feeling AFTER a migraine like I've been experiencing.  I have severe aches and pains from my head down to my toes.  The feeling usually comes after my migraine has subsided. 

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Poppy, Community Member
9/21/12 12:44pm

Hi,

It is 3 days after my classic migraine with aura, the headache and nausea lasted two days and now I am left with pain(fairly severe...I can't sleep) all over my body...cramping, shooting, aching. About the only place i don't have pain now in my head( which was agony the last two days). It is 2am and I can't sleep so I've taken painkillers and thought I would google "whole body migraine" to see if anyone else feels the same! Yes I do feel like I've been "hit by a bus". OVer the years (20 now, as I have had these symptoms on and off since age 19)I have had  a lot of different neurological symptoms at different times, often not associated with any headache, I have had all sorts of tests (MS, arthritis etc)and am having MRIs again(last ones 10 years ago were clear) Sometimes I think these symptoms can't be migraine but the more I read I believe all my symptoms are related to migraine...numbness, pins and needles, shakes , sweats, freezing, nausea, muscle twitching....I think migrianes are much more complex than people think, I only get the extreme migraine headache when I get the classic migraine with aura a few times a year, so it's hard to link all these symptoms up when people commonly believe migraine is just a headache(even Doctors I've been to often don't know much).

Anyway I have read that the after migraine effects have a name "postdrome" and I can relate to the severe pains from head to toes....Really migraines do suck don't they!

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By LPichotta, Community Member— Last Modified: 09/21/12, First Published: 05/03/10