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Anyone out there dealing with nerve damage to legs caused by migraine brain damage?

flausa97
10/02/08

I have had migraine for over 30 years.  I am 55 years old.  In February I woke up one day with awful throbbing pins and needles in my feet and legs.  In March I had an MRI, that according to my neuro. showed that the migraines had caused brain damage, causing the damage to the nerves going to my legs, and now hands.  On top of the throbbing and buzzing and wringing sensation that never stops, I also have stabbing pains like a bee sting or ant bite many times a day.  Sometimes a sharp pain will make me jump.  Sometimes my legs just ache.  Some days I walk with a pronounced limp.  And I could go on and on with all the strange and pains and sensations.  Has this happened to anyone else.  This has been going on for almost 8 months now, and is just getting worse.  I see my doctor tomorrow and don't even know where to start.  I have tried and stopped several medications already like Mirtazapine, Cymbalta, Geodon, and Topomax because I can't stand the weight gain, swollen face, and other side effects.  I'm prepared to just stick it out as long as I can, but am wondering if this has happened to anyone else.  Strangely enough, since I pretty much gave up even treating the migraines, they aren't nearly as frequent.  I seem to have traded the daily migraine for this leg thing!  Sorry this is so long.

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Teri Robert
Teri Robert
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Teri Robert is Writing a SharePost
Author of "Living Well with Migraine Disease and Headaches"

Patient advocate and writer Teri Robert's career moved in this...

Sunday, October 05, 2008

Hello,

 

I'm so sorry to read about your situation. You're the first person I've seen with lesions or other brain damage that's causing symptoms. I suspect there may be others who don't know what's causing their problems. Did your doctor give a name to the type of damage you have? Perhaps neuropathy? I know people with neuropathy from other sources who have found relief from Neurontin.

 

Sorry you haven't had more responses. Maybe others will still see this and reply.

 

I know you're going through a rough time. If you'd like some additional support, come join our discussion forum. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.

 

Best wishes,

Teri

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