Saturday, October 25, 2014
Sunday, November 21, 2010 jessica, Community Member, asks

Q: pseudotumor cerebri am i going blind?

I have loss vision in my left eye due to a surgery tring to correct pseudo tumor celebri everything was okay as far as headaces although i loss the vision in my left eye the headaches were chronic so i did feel better about them 6 mts have passed and now the headaches are back and they are wrost than before i have also loss sum vision in my right eye and i have diffcuilties seeing at night i dnt know what to do any answers

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Answers (1)
Nancy Harris Bonk, Community Member
11/23/10 11:26am

Hi jessica,



One of the main comlications of Pseudotumor Cerebri, now known as, Idiopathic Intracranial Hypertension (IIH), can be vision loss. I'm not sure what type of eye doctor you are seeing, but it is a good idea to see an ophthamologist rather than an optomterist, although not everyone agrees with me on this. Here is the difference: an ophthalmologist is a medical doctor who specializes in diseases of the eye. They have spent four years in medical school, had a one year internship, maybe three or four year residency, possibly followed by a one to two year fellowship including lots and lots of training and diagnosing eye diseases, conditions and performing eye surgery. About twelve to fifteen years of school and training. An optometerist has four years of college plus four years trade school (optometry)  learning to fit glasses, contacts and "recognize disease" so this schooling equals eight years.  


So, having said all that, if you haven't seen an ophthaomologist, please see one soon. And it absolutley sounds like it is time for a Migraine specialist - especially since your "headaches" have returned. Especially if your current doctor isn't able to help you. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.


We have some good information for you on this topic, continue reading these articles; Idiopathic Intracranial Hypertension (IIH) - The Basic

Headache Attributed to Idiopathic Intracranial Hypertension - The Basics.

I hope this helps.


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By jessica, Community Member— Last Modified: 12/26/10, First Published: 11/21/10