I've just been put on Topamax for migraine prevention and already feel the side effects. Especially the no need for food. I've heard ill lose A LOT of weight. Will I?
A key point to remember is that side effects listed for any medication are POTENTIAL side effects. We may or may not experience them. It's important not to start a new medication assuming that we will experience those side effects, or we most likely will because our minds powerful enough to influence whether or not we experience the side effects. Taka a look at Hope Is an Essential Element of Migraine Management.
In the clinical trials of Topamax for migraine prevention, those who lost weight lost an average of 2.3% of their beginning body weight. Although it was a farily common side effect, not everyone in the trials lost weight. In the clinical trials of Topamax for migraine, the number of people who lost weight depended on their dosage. At 200 mg per day, only 2.1% of participants experienced weight loss as a side effect. If you need other information about Topamax, take a look at our Topamax profile.
Hope this helps,
I lost 18 lbs before the other side effects made it impossible to function/think/speak. I personally call Topamax "poison pills" and I don't believe they should be prescribed. My suggestion: do further research on the side effects of this drug. Dianna
OMG reading these, I thought I was getting Alzheimers!! I have been on Topamax for over a year and started have thinking/ speaking problems! I'm only 41! I read alot of these comments about not being able to form a thought or sentence while speaking...THAT IS ME! I am stopping these pills!
Hello and welcome!
I understand your frustration with Topamax. Had the same issues myself with cognitive side effects.
PLEASE talk with your doctor to get instructions for tapering off it. It can be dangerous to stop it suddenly.
I lost about 30 pounds over a year. Topomax did not stop my headaches - it made my imitrex tablets work again. I found the side effect of topomax to be AWFUL. It negatively affected my memory, my ability to express myself and my personality. I would go completely blank when I needed to speak in public. I became quick tempered and generally disagreeable. Eventually, my doctor took me off topomax and started me on depakote. Then I gained 40 lbs in about five months. So I would not advise getting rid of clothes. You may need them on your way back up to a bigger size in the future.
What did you use after the Lodorol? You said something about a 30 day "something" to get rid of the worm's/bloating?? Was it some kind of detox? Interesting.........Just curious because I might try it! Thanks~ P.S I just started Topomax about 2 weeks ago and I haven't lost any weight yet but I just had an emergency complete hysterectomy 3 months ago too. So my hormone balance is out of whack.
Don't recall weight issues, however, I got a kidney stone from Topamax. I am doing so poorly again and had no success with so many drugs that my doctor is talking about trying the topamax again. This time he would work with a urologist to change the pH of my urine to (hopefully) prevent kidney stones. I am scared to death by this but don't know what else to do. I am not sure I can walk around worrying about another kidney stone and I am not sure if I can go on like this with migraines all the time. Now possibly from meds + an antibiotic that put me over the edge I am having severe stomach problems too. So many complicated health issues that is ruining my life and that of my family. It is so hard. And that people don't understand. I've been in the hospital because I can't let the migraines go due to previous stroke and increased risk of stroke with prolonged migraine. And, while there have had nurses make reference to "drug seekers". Now am also schedule for second occiptal nerve block as first did not work. I don't know what to do anymore.
When I started on Topamax I lost over 15lbs and had to monitor my weight per my doctor. I found that the key is even though you don't feel hungry to get in the habit of having a snack every couple of hours. Make sure it is a nutritious snack. I call it grazing. I still have to eat dinner with my husband, but it is smaller portions that are easier to deal with because of no hunger thing. Hope this helps and hope Topamax helps your headaches.
I don't know if you will lose weight. My daughter was on Topamax for a year and was up to 400 mg a day and she put weight on. The doctor told her it was a side effect of the drug.
Hi! I've lost a total of 82 lbs. over the course of 14 months and I really needed to lose the weight. I had to work toward the loss at the beginning (say the 1st month) but after that I simply had no appetite.
However, it has now gotten to the point that I have to really watch that don't lose any more. I struggle to make certain that I eat enough to maintain my weight and I know that if I don't I won't be able to continue the Topamax.
I've also had a lot of hair loss, which is either due to the Topamax or some sort of nutritional imbalance. I'm seeking answers for that problem if anyone else is experiencing similar effects I would like to hear about it...
I have been taking 200 mg Topamax daily since December 2007 for severe migraine. I have lost approximately 50 pounds since starting on this medication. Fortunately, I can afford to lose this weight and have no problems doing so. Hopefully you will not lose your appetite.
I have heard that. I hope that's not why you want to take the medicine.
I guess it depends on how much Topamax you are taking as well as what other drugs you are taking in combination. If you are taking Lyrica with Topamax, for instance, you likely won't lose anything.
So, on to your original question. I'm a male, 49 years old and when I got on Topamax and my doc cranked up the dosage to about 400 mg I lost about 15 lbs if I remember correctly. I was mostly due to Topamax changing the TASTE of most of the foods I was eating. I just didn't want to eat them any more so watch out for that. Eating simply wasn't a pleasurable experience for me.
I lost nearly 4 dress sizes.
Exactly how much weight did you lose &; how long did it take?
i know some people loose weight and some dont... my lawyer lost 50 lbs on it
i have been on topomax for a few years.. i think its great.... it didnt take my migraines away but they arent as often as they used to be.. i dont have any side efects from it...
my neurologist did tell me to make sure that i drink tons of water with it cause it can incrrease risk of kidney stones
HI, Some people do and some don't. I lost about 25, before I stopped taking it. I had the side effect of feeling like it was way toooo hot all the time, like 200 degrees when it was only 65 outside. I was standing on the porch. Was kinda scary, to I quit it, to go back on Neurontin. Hope this helps, just eat often..
maybe a couple pounds
You may lose some in the beginning but eventually you'll stop and just maintain your weight. Just remember to eat. I know somedays I get busy and totally forget to eat a meal or two which is not good. It really depends on you and what you do as far as eating. I've been on topomax for two years now and had lost weight but now I'm staying the same.
All I can say from personal experience, my two courses of Topamax, thankfully, began my weight loss. i probably lost about 15-20 lbs. Other factors contributed to my continued weight loss, having now dropped about 70-75 lbs (245 to 175 or less).
I wouldn't worry to much about dropping THAT much weight, but, i think it will begin a slow drop, but should stabilize.
For me, it was nice to have all my clothes fit, but, now, I'm at the other extreme, nothing fits, as everything is much too big.
This makes me feel better, I was worried that starting it again it wouldn't work. The first time I lost 55 pounds. I went off and gained it all back and just started it back but don't seem the same. Hopefully I start to see something soon because this is very depressing. I am on 600 mg.
I am also on topamax and have always had problem with my weight...not to much but to little. The first 3 months were hard and I didn't eat much and lost quite a bit, but it has tapered off quite a bit now and my appitite is beginning to come back slowly. The average person....average weight and height may only see a few lbs lost the first few months and then start to go back to the way they were. If you really want to lose weight in a healthy way you should eat more small meals throughout the day and exercise, unfortunately the side effects causes you to not want to eat and your metabolism with slow down to a slugs pace by the 3rd month.
I hope this helps with your question.
I've lost about 30 lbs, most of that was the during the first year on only 50mg. Now I'm up to 150mg and into my 3rd yr but I seem to be holding that weight. Some of that was just dropping extra weight from being on another medicine. Topamax did mess with my memory, my words and my blood pressure when I first started on it. Now I've found out that I also have fibromyolgia--which has fibro fog to deal with and explains my other memory problems. I've was put on Topamax actually for polyneuropothy (jabbing pains all over). The extra benefit that it would help my migraines and have a side effect of losing weight was just bonus package. If I actually get down to my original healthy weight of 145 again (another 20 lbs.), then I'll start to worry about losing any more weight. I do dislike how somethings taste, especially my sodas. I've found that diet lime coke is the only one that taste good. Something about the lime or lemon added to soda or water helps take the metallic taste out.
Although, I do have a friend who had severe hallucinations (waking dreams) that made it completely impossible for her to stay on Topamax. So be alert to your body and what is going on for you! Good Luck and take care.
how soon will i start losing weight and how much do you normally lose
I've been on Topamax for over 6 months and so far i've lost over 46 pounds. I have little or no appatite. Hope that answers your question.
I am currently on 100 mg of topamax a day and haven't lost any weight. I was hoping I would. When I first started taking topamax, I had the side effects of nausea, so I needed to nibble on crackers (felt like morning sickness all over again). Luckily that passed after the first couple of weeks. So hang in there, the topamax is WAY better then the 3 - 4 migraines a week I was getting. I hope you get the same great results.
I lost (and still losing) 30 lbs in 3 months. Went from 136 lbs to 105 lbs. Be prewarned you might stiffen up in the neck and jaw, get confused really easy and can't drink sodas or fizzy drinks . But I eat like crazy, the trick is to eat healthy when you do eat, to keep healthy. My doc has me drinking poweraide and walking 20/30 min a day. The little bit of exercise counters the stiffness that the topamax causes..... especially when they increase the dosage, its a little (some days it could be miles rather than mins) but it really helps.
I hope this helps.
My 11 year old has been on Topamax since Feb. At his last dr. appt he has lost 5 pounds but he has also grown a couple of inches so that probably translates into a larger weight loss. I was told by his neurologist that it would eventually taper off.
I want to know the answer to this. I'm interested in controlling my migraines and also losing weight.
I have been on Topamax 2 seperate times, each time with seperate results. I noticed that if you are more active, you lose more. The first time I was on it was 3 years ago and I was heavy and active and I lost 94 pounds in the 8 months I took Topamax. I should note that I was trying to lose weight so had a regular excersize and diet routine. I stopped taking the drug when it stopped preventing my migraines. Now i am trying Topamax again and it seems to be working. I am not dieting or excersizing this time and have lost 7 pounds in a month and a half. The weight loss is different for everyone, my sister was on it for 2 years and only lost 10 pounds in the first few months, she was also much more fit than I was, I don't know if that factors in or not. Good luck
If you are not overweight, then you should not really lose too much weight at all. I am on 50 mg. of Topamax bid, ht. 5'6", wt.. 102 lbs. I did not lose any weight.
As one eats less, your metabolism slows down over time.
You can always snack on a piece of fruit or have some yogurt to keep your calorie intake up.
Sorry that I have seen this question a bit late, but I haven't been into the site in a while.
I am on it and those feeling of not wanting to eat will go away. I lost about 10 pounds and that was all.
I was on Topamax for 6 months and I didnt lose Any weight, it just made me feel like crap. I had nightmares, carbonated drinks tasted horrible, I just felt like a walking zombie.
By the way it helped with my headaches at first but then was short lived. It then made me iratable, affected my memory it then became awful. I found it good for the short term.
Hi Morgan, my experience with Topamax as it relates to weight loss was fenominal. I lost almost 50 lbs. within a 6-9 month span.
I was wondering you say youlost almost 50lbs in 6-9 month span what dosage were you on and did you battle other side effects?
i've been taking Topomax for almost a year now and haven't noticed ANY weight loss, so i'm not sure why you think you'll lose weight.
I've been on Topamax and lost about 10 pounds. My taste buds are very sensitive. I have heard that others have had to go off of it because they lost too much weight. I haven't had that experience. I do have lots of other side effects such as forgetfulness, concentration and I think my hair and nails are thinning. I can't go over 75mg or else I lose my mind.
I hope that helps.
Depends on how well you avoid the side effects and can stay on it. Personally, I had severe problems with cognitive functioning and with balance. I've seen it referred to as "stupimax" due to this. I sure do hope it works out better for you!
Well, I happened to have just started working out and walking alot more (a getting healthy contest at work) when I started Topamax. And I think it was around March so the weather was getting warmer and my mood was getting better anyways (and there were far less reasons to eat - ie, Halloween, T-giving, Christmas, Valentines, Easter candy...... can you tell I'm a sucker for sweets?) SO, I lost about 15-20 lbs over 2-3 months maybe. And I needed to.
BUT, now I'm on 300mg and I eat like a horse again, though healthier. I've been on it about 3 1/2 yrs or so and that food effect has totally gone away. Fortuanately, at a recent visit when my doc and I discussed adding another med, I emphasized that while I may be "thin" as he said (uh, I'm a comfortable size 8-10), I convinced him to not add a med that is known to cause weight gain. I still walk daily (though I pay for the gym I rarely go and just need to drop that membership) and since we're having another contest at work, I've even been doing some pushups and ugghh, situps. So maybe I'll lose that 5 lbs that have crept back on.
BTW, though you didn't specifically ask, I've been lucky - just a little tingling and fuzzy headed at the beginning. No side effects now. It's really cut back the severity of my HA. Now I'm working on CDH and morning HA (maybe caused by teeth grinding and even though I've used various night guards, the grinding is still there). Always a work in progress.....
When I first started taking it I lost about 15 pounds. It was gradual. But two years later, I've gained it all back and then some.
I've been on and off Topamax for about a year. It kind of depends on my dosage. When I go over 100, I lose more. But the more I take, the worse the side effects are. I stopped at about 100 mg per day and stopped my weight loss at 20 pounds. A friend of mine was on about 250 mg per day and lost 40 pounds before she stopped losing.
I did at first, then I had to start another drug and now I have gained wt.
I gained weight.
I personally did not lose any weight on Topamax. Nor did I gain as I did with other drugs.
From my experience it depends on the amount you take. Serveral years ago I took 400 a day and lost 35 pounds (weight I had gained from other meds I had since stopped)...BUT the problem was I couldn't eat -nothing looked good although I was very hungry. I also had severly abnormal thinking. I did not realize it was the meds at first-I thought my symptoms were due to my Mom being diagnoised with severe dementia and I was unable to deal with it. As soon as I decreased to 100 day my psych. symptoms stopped-it took a while to regain my desire to eat. Of course, you or anyone else may not have any of these symtoms. I will tell you as I lost weight the feeling of the not needing food became painful and I couldn't sleep because I was so hungry-obviously I was taking much more med than I needed but only you and your doctor can decide that. Although I had initial problems, Topamax has been the best thing for my migraines. Only you and your doctor know what is best for you.
I've lost about 10 lbs on Topamax, but that is not typical of everyone. Everyone's body is different, so you may experience more or less. Just be sure to drink a lot of water to reduce your risk of kidney stones. Also take it the same time everyday.
Initially when I began Topomax 3 years ago, I lost about 12 pounds over a 3 month period. I was down to about 112 from 124.
However as my body became used to the drug, I gained a few pounds back and am maintaining my weight at 118 pounds (normal for my height of 5'2) more than contining to loose it.
Hope this helps!
I was on Topomax for three months. During the last month I lost most of my desire for food, even coffee, which I love...
I lost over 6 pounds on Topomax and became anorexic. First time in my life, and, there was little relief for the headaches. I was tired all the time.
My brother had been on it one year, and then experienced his first kidney stone attack, and he quit Topomax altogether, as kidney stones are a side effect and he nearly passed out from the pain of it.
He is now on Namenda, an altzheimer drug. Very mild, few, if any side effects, and he finds it as effective as Topomax was.
I lost about 5-6 pounds then things leveled off. But for me, I also became pretty stupid, that is, real problems with short-term memory and organizational ability (mentally). Since I am an elementary teacher, it caused big concerns, and I didn't realize the cause, as it seemed to creep up pretty gradually. When my neurologist asked me why I stayed on it so long (2+yrs), I told him I had lost my edge to discern and make decisions. Not everyone has the difficulty, but the fine print and research does mention some 'cognitive issues'. I'd rather be soft than stupid.
I know one lady who took for another reason beside migraines. She was on a high dose and lost a lot of weight.
I guess it has a lot to do with individual- if taking other meds, their own personal metabolism. And too - how much you stand to lose. But weight loss is a main side effect of Topamax. I am just getting started with it too. I can tell it is cutting into me eating excess- like late at night is when is get the munchies. I just don't want the late night food now. We'll see what happens.
It varies widely from person to person, but I went from nearly 160 to about 132 (on a 5'2" frame). I'd put on about 15 pounds on a previous preventive regimen, so I can't say it was entirely unwelcome, but I think I'm at the extreme end of the weight loss spectrum with Topamax. Just make sure you're getting your vitamins and try to eat healthy food, even if you're not eating very much.
I have been taking topamax for over 2 years and I haven't lost any weight. I certainly wish I would have dropped a few pounds. I heard this was a "possible" side effect. One thing for certain is I do not experience migraines as often as I was & if I do get one it is total managable with over the counter stuff.
Welcome to the site. I am new to it as well. I have taken Topamax in the past and took it for about 4 months and had to go off of it due to concentration issues. I could not hold a thought to save my life and when you run your own bussiness and have 2 kids this does not work too well. I did not experience any weight loss while using it, but have heard that that was one of the side effects. I have heard it being call the "Stupermodel drug", because you get model thin and stupid. I hope you don't experience the stupid part. Good Luck!
I have been on Topamax for 10 weeks I have lost 45 lbs and I have no other side effects. I do not get the migraines anymore, but if I forget a dose I will get other symptoms of the migraines. I love the Topamax and wish they had put me on it years ago when my migraines first started instead of making me go thru all the pain and issues and worries that I was having a stroke when I got to the point of having complicated migraines!!
I have been on Topamax for two years now and found that i have gained weight over those two years. I havent changed my eating habits from before i eat healthy and excerise all so i dont get a migraine. I sure do love my topamax once i got though all the side effects.
I think it depends on what your dose is. I lost about 20 pounds when I was on Topomax at 200 mg twice a day (the first time). I had to stop taking such a high dose though because it gave me kidney stones. After a year I went back on it and I am at 100 mg twice a day and I lost maybe 5 pounds at most. The most important thing about Topomax is to stay well hydrated. Drink lots and lots of water and try to stay away from iced tea and ice cream. That is what triggered the kidney stones in my case.
Yeah, you'll lose weight because the taste of food becomes almost revolting. I lost about 20lbs. Now add to that likely depression(more weight loss) and I even had nightmares so bad that I couldn't go back to sleep, causing sleep deprivation.
I suggest you go back and talk to your doctor about the other, unpublicized side effects.
it depends on it you are on other drugs you are on. i am on topamax, lithium, luvox, abiliphy and xanax. i take imitrix when needed. i GAINED 45 lbs. so don't think of topamax as your wonder drug to loss weight. diet and exercise are always the way to go always consulting your doctor first. good luck. dawn
I lost some weight on Topomax, but could not tolerate the side effects. I had increased heart rates, lightheaded, shortness of breath, sweaty palms. Very scary.
I was recentlty put on on Topamax. February 6 was my starting date to be exact. I have a condition called Chiari Malformation Type 1. I have headaches\ migraines for two weeks straight. I am only taking 50 mgs for now but on the 20th im suppose to increase the dose to 100 mgs. When i went to neurologist i weighed 185, i went to my pcp today and weighed 179. That s 6lbs in 4 days due to these pills. I try to eat but when i do i throw it up or the smell of food makes me so sick that i cant stomach to put it into my system though i am very hungry. Im going to take this up with the neurologist as this is a more severe side effect of this medicine. Please do not be taking this medicine thinking that it is a quick way to lose weight. Its not a safe medicine in my opininion. Some people have no problem with it but as you can see i am having a bad reaction to it. Sure some may say i need to lose the weight but id prefer to do it a more healthier way then this way. Its not even preventing my migraines its making them 3 times worse.
I lost 50 lbs but after a while I started having side effects that weren't worth the weight loss. My head was a little better but not much. I was confused and couldn't form my thoughts or get my words out clearly. I forgot everything. I had weakness in my arm and hand and seemed like I couldn't get my coordination to work. I began to have severe stomach pain and pain in between my shoulder blades. I could no longer taste or smell. I was tired all of the time and wanted to sleep constantly. My energy was GONE! I couldn't even clean my house. I stopped the Topamax and within a week all of those symptoms were gone! I am currently looking for something else to take for my migraines.
I weighed about 155 when I started taking Topamax for my bipolar disorder however he also gave it to me for my migraines the side effect is weight loss in the process of about 2 to 3 months I got down to 125 pounds and I have stayed at that weight for almost a year now. the key is this medication does cause you to lose your sense of appetite if you find yourself worried that you might be losing too much weight just make yourself eat little snacks throughout the day rather than trying to uncomfortably force a full meal down your throat that seems to work for me and I have maintained staying 125 for as long as I have and I'm happy about it I think I look great :)
I took it and I did not lose any weight. I gained. It did get rid of headaches. I has constantly in a brain fog and hard trouble finding the words I wanted t use. I am now on different meds. I would not take it.
What dose are you on? Are you working out as well?
I lost 40lbs with in the 1 year then after i just stayed at the same weight.
I just started taking Topamax, August 1st, 2012, and have lost about 5 or so pounds. I have already noticed the ditzy moments start. I am hoping that they will go away, but I have an appointment with my doctor in a couple weeks to go over how the meds are working. We will see if I stay on it. As far as migraines, it is helping. I was having them almost daily and am down to having them, maybe a minor one once a week.
I've been on Topamax for 5 months now and lost a total of 23lbs. The side effects seem to be outweighing the benefits though. It doesn't say it on the bottle but I seem to be losing hair more than usual when i brush it. I looked it up and I'm not the only person this happens to. I also now have a kidney stone. My doctor says it's from the tea I drink but I highly doubt that since kidney stones is a side effect. My electrolytes are also really unbalanced now so i have to have my blood work and urine tested every few months now. Headaches are getting a little better but is it worth it? Not too sure.
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Hair loss IS a potential side effect of Topamax, as is a higher risk of developing kidney stones. With your doctor saying the kidney stones are from tea, you might want to consider consulting a new doctor. We have quite a bit of information on Toapmax - Topamax Information Page.
In case it will help, here's the information about Topamax and kidney stones from the Topapax prescribing information:
Kidney StonesA total of 32/2,086 (1.5%) of adults exposed to topiramate during its adjunctive epilepsy therapy development reported the occurrence of kidney stones, an incidence about 2-4 times greater than expected in a similar, untreated population. In the double-blind monotherapy epilepsy study, a total of 4/319 (1.3%) of adults exposed to topiramate reported the occurrence of kidney stones. As in the general population, the incidence of stone formation among topiramate treated patients was higher in men. Kidney stones have also been reported in pediatric patients.An explanation for the association of TOPAMAX® and kidney stones may lie in the fact that topiramate is a carbonic anhydrase inhibitor. Carbonic anhydrase inhibitors, e.g., acetazolamide or dichlorphenamide, promote stone formation by reducing urinary citrate excretion and by increasing urinary pH. The concomitant use of TOPAMAX® with other carbonic anhydrase inhibitors or potentially in patients on a ketogenic diet may create a physiological environment that increases the risk of kidney stone formation, and should therefore be avoided.Increased fluid intake increases the urinary output, lowering the concentration of substances involved in stone formation. Hydration is recommended to reduce new stone formation.
Prescription bottles are labeled only with the most common and potentially harmful potential side effects. Do you still have the information page that came with your prescription? There should have been information on it about the issue with kidney stones. You might want to start keeping all of those information sheets in a notebook or folder in case you need to refer back to them.