My doctor thinks it was an occular migraine when I woke up completely blind, about 15 minutes. ??
I've suffered from migraines since I was a child, and have usually experienced what I call "falling rain". It's like shiny drops that fall gently down. About an hour later, the migraine hits hard, usually on the right side of my head. When it's on the left side, it's much more painful. They've decreased since I hit menopause, thank god! (I used to get them almost every month)
About two weeks ago, I woke up completely unable to see. There wasn't blackness, there was an intense bright white light, and that's ALL I could see. I waited about 15 minutes, trying to control my panic. I finally, very slowly, started getting my vision back. My left eye slowly grew a hole in the whiteness, very blurry around the edges, but it continued to grow. About halfway through, my right eye started to clear. I called my FP right away, and left a message with the nurse. I had an appointment the next day, anyway, so I was told to just come on in then, and talk to the doctor about it.
I woke up the next morning afraid to open my eyes, but it was fine, and I haven't experienced it again. When I went to my doctor, he looked perplexed, then asked if I'd had a headache afterwords. I said yes, not a migraine, just a regular headache. He looked relieved and told me that I'd had an occular migraine. Everything I've read since has failed to mention total blindness, just the regular aura.
I live in Wyoming, in a tiny town, miles from any other town! We have visiting specialists once a month, but no neurologist. The last time I traveled to him, he told me that my balance problems (I keep on falling) were the result of TIAs. Then he walked out of the room. An hour of driving for a 5 minute appointment.
I can't drive anymore, due to periods of confusion, where I might wreck the car. I am 52 years old, with hypoparathyroid as my main diagnosis. I also have fibromyalgia, COPD (I have quit smoking, as of Febuary of this year), I have several "patches" in my brain, which haven't been explained, other than the TIA diagnosis. I was briefly checked for MS, with a negative result.
With all the problems in my brain, that whiteness scares me. My doctors initial perplexity, then seeming to grab at my (non-migraine) headache to give me a diagnosis of occullar migraine worries me. He's a wonderful doctor, very caring, but I still worry. Can you tell me if this truly IS an occular migraine symptom? As I said, I can't find it anywhere.
Thank you,
jaz
Hi jaz,
I bet you were scared, I know I would be. Complete blindness can be a symptom of Retinal Migraine (Retinal Migraine - The Basics) and is fully reversible after the Migraine is over. But here's the thing - one of the most important things you can do is to get an accurate diagnosis. To simplify matters and make it easier for people to get information and treatment, doctors usually go by the gold standard for diagnosis, the International Headache Society's International Classification of Headache Disorders, 2nd Edition (ICHD-II). Under ICHD-II, there is no diagnosis of "ocular" Migraine. We do see it used, but doctors use it differently, so it really doesn't tell anyone what type of Migraine you actually have. You can read more about this in Ocular, Optical, and Opthalmic Migraines and The Type of Migraine Does Matter.
Research is now showing that Migraine may be a progressive brain disease. We have an article you can continue reading: Migraine with Aura Linked to Late-Life Brain Lesions.
We do have a Migraine specialist in Cheyenne, WY you may want to look into. Some states don't even have one specialist, so in that respect I guess you are lucky
You can see our patient recommended Migraine specialist directory HERE.
I hope this helps.
Nancy
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jaz
Saturday, July 04, 2009 at 01:37 AM
Nancy Harris Bonk
Monday, July 06, 2009 at 12:58 PM
















Thank you so much, Nancy! I looked up the doctor, and if I can find a ride, I'll give him a call on Monday. It would be wonderful to finally figure out what's wrong with my brain. I'm terrified that I'm developing Alzhiemer's, because my memory is shot, I forget words, I lose my train of thought quite frequently. But I also have muscle control weakness and such imbalance that I frequently fall. I use a cane now. I quit smoking in Febuary, but I had 40 years of it, and I know that's done a lot of damage on it's own. But if migraines all my life could have caused this brain damage, I finally might have an answer!
Again, thank you, Nancy!
jaz