A very thoughtful question. I am compelled to respond. Me and my MS get along if I give the illness the respect it demands. Its OK if I don't let it take total control of my actions, movements and thought. My MS intrudes into every aspect of my life in some form or fashion. Sometimes I (and others) adjust sucessfully ..sometimes not. So I exercise, diet, take my meds and my vitamins, drink lots of alakeline water, take rest breaks, try, try to do more than I think I can....all in an effort to tame the beast....to slow the train down...you know have the energy and strength to have fun....at least to participate
This week I going with my family to VA Beach for a couple of days. I am determined to walk from the boardwalk to the ocean's edge and return ...This will be no small feat for me. I going to take my time and lots of water. Guess I'll find out if all this exercise is working.
Great (very relevant) question. Thanks for asking.
Dan and Jennifer,
I don't think there's an easy answer to your question. If there was, I guess we'd all master the art of winning over MS! We try to think of ourselves as people who just happen to have MS, and want to live our lives as "normal" as possible. The reality is we have MS and we have to live within our own constraints of the disease, and that makes our life a little outside of "normal".
How we look at our situations is what makes all the difference in the world. We have to set some physical boundaries (schedules) to achieve a certain amount of wellness, and within these boundaries are what we can physically do without having to pay the consequences. We'd all love to continue our pre-MS schedules - myself included - but that isn't always advisable.
I guess what I am trying to say is we have to make peace within ourselves and with our MS and honor what it is telling us to make our plans accordingly. Does this make sense?
You were planning quite an ambitious itinerary and I, for one, am glad you thought better of it and cancelled. Reading your words make me tired!
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Wow, I agree that this was an ambitious schedule! It's hard to know who is actually in control sometimes. I guess it turns out to be a draw sometimes.
Coincidentally I will be traveling "home" for my 25th high school reunion this week. With lots of discussion (and me pushing a little bit), we are flying out Thursday evening and not returning until Monday afternoon. In this case, I have been in charge (and hope the MS doesn't present any surprises).
I'm sorry that you weren't able to make this trip home, but I do think that it was probably a wise choice. :)